I was thinking of you earlier and wondered how you were getting on. I’m on day 5, I feel pretty much like you. I don’t think I’ll be getting out of bed for the next couple of days. On my last cycle I found it gradually got better from day 7 so remember it will get better and by Easter you’ll feel good again x
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I really hope so. Day 7 and I’m in bed again. The pounding headache is relentless. Not even my migraine tablets are working. It’s probably the injection, on top of all the other side effects. It’s tough. Thinking of you. Did they lower your dose? Xxxxx
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Yes they lowered my dose by 20% but I still feel the same. It’s day 5 for me and my whole body hurts to touch and I’m only going to bathroom and back. I know it’ll lift in a few days but it’s really horrible feeling like this isn’t it. I’m sure it’s the injections and stopping the steroids. Really hope you’re ok x
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Hey @stafford22 sorry I disappeared. Having my chemo cancelled made me feel like I shouldn’t be here. I got in a state about my MRI results and the possibility of it having spread to my bones. Just went inside myself really as I just had to wait.
Results were that there is an 11mm lesion on my pelvis but they still think it’s benign. They are referring me to a spinal unit MDT for them to give an opinion. I think at best they agree and at worst I’d need 3 month scans to see how and if it develops.
Got surgery on Thursday 17 April for full lymph node clearance to see how many in addition to the 2 sentinel nodes are cancerous.
It’s a win win surgery really. If there is no or very low cancer then I won’t have chemo. If it’s a higher number then at least that cancer is gone and I’ll know for sure I need chemo.
More waiting, more healing, more results to come. By 2 May I’ll know for sure!
How are you doing? I hope your second round was more manageable than your first 
Xx
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Sorry to hear about your pelvis but good they’re monitoring you. You def have a good plan going forward and I really hope you don’t need to go thru chemo. I’ve had a dose reduction but still feel pretty lousy. By day 7 I’m feeling much more like my oldself so I just need to get thru the next few days. You take care x
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Hi @warmfuzzies - wondered how you were doing so thanks for update, hope your plan does come together soon. Very frustrating waiting so jope the surgery/ results are as hood as possible. Let us know. @saints33 and @stafford22 sorry to see you’re having a rather miserable time of it, hope things pick up.
I’d had a good week after 1st chemo until last night and I woke up at some unforsaken hour just feeling bloated and uncomfortable, got up to get a drink and felt dizzy but it went off. Not a great night, this morning I fed/ let out the dogs and then sat and watched tv under a rug. Sipped mint tea, had a digestive biscuit and a ginger biscuit very slowly. Now feeling a bit better. Need to walk dogs, its drizzling out there but at least I won’t have to water anything outside! Just telling myself I will get better at managing these things. Back for chemo tomorrow! Will just count them down, it can be done.
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@stafford22 @saints33 hang in there, take the medication and rest. This will pass, you’re both super strong ladies. Hugs xx
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Day 4 of TCHP is kicking my ass a bit, just feeling really spaced out and completely zonked, plus joint pain galore! I was going to try to stretch and go for a walk etc but all I can do is sit still and sip my hydrating fluids, all of which taste really weird and gross. Chemo really is a bugger, isn’t it?! 
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Yeah it really isn’t nice is it. All we can do it’s take the meds, stay hydrated and tick off another day. Hopefully we will all be feeling a bit better tomorrow x
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How are you feeling now.
Like poo. Still in bed. Can’t shake this fatigue and icky feeling. Sleeping is like being in a coma. Zero energy. How about you? X
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Horrible isn’t it. I can’t sleep but I feel v tired. I had a shower earlier but felt lightheaded so didn’t stay in there for long. Now back in bed. I feel so tired x
Make sure you tell your oncologist about how you’ve felt (write it down day by day). They reduced my dose but at the moment it doesn’t feel any different I still feel rubbish.
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The SAME exact thing happened to me. Managed to shower and wash my hair and thought I wasn’t going to make it. Felt so weak and lightheaded/shaky. Put myself right back to bed. It’s so hard. I hope it picks up and doesn’t stay like this the entire time, I couldn’t cope
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It does lift. You think it won’t but it does. I just looked in my diary and on day 10 I felt normal again x
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Hello everyone, I came across this group yesterday and have found everyone’s posts very helpful if daunting.
I’m starting chemo on Tuesday 15th - 4 rounds EC three weeks apart then 3 months of paclitaxel, then surgery.
I have a grade 3 HER2+ tumour and it’s in my lymph nodes. No cancer anywhere else as far as they can tell… Chemo first so that isn’t delayed by surgery.
I’m trying to get ready for chemo but it’s hard isn’t it when you aren’t sure what side effects you’ll get, to what extent and when. I had been going ‘well we’ll cross that bridge when we come to it’ but after reading this thread I’ve decided to assume that I’ll get everything badly! I don’t think that makes it more likely but at least I’ll have some things in stock to cope… So thanks guys 
Had a week of appointments last week including seeing the dentist who prescribed some extra potent fluoride toothpaste and gave me advice about looking after my teeth. Also had my already short crop cropped shorter. And on Friday had a Port A Cath fitted which was a scary procedure but actually ok.
Tomorrow I’m having a massage 
- apparently massage therapists have to have special training and insurance to work with cancer patients, and have to keep a handspan from any tumour. This lady sounds very kind and accommodating and happy to treat me on my side or sitting up until port site is healed. I had a massage at a spa day with my two grown-up girls very soon after diagnosis and felt so great the next day - physically and emotionally. I think the messages we give our bodies are so powerful (and often negative) and my spa day made me think that a regular massage, if I’m up to it, would be a great way of telling my body it was worth it - if you see what I mean.
Ok that’s enough intro from me! I feel very lucky to be well supported and a breast cancer unit that has a v good rep. Thank heavens I don’t have children to look after, I feel so much for those of you that do. Sending everyone healing vibes xxx
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Welcome to the group, massage sounds amazing! It is hard to know how you’ll feel. I’ve been extremely tired, but no sickness. The meds are v good for nausea x
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Welcome @lizn1 although sorry you’re here. Just checking if you’d spotted the HER+ thread, more brilliant warriors who are at many different stages of the long HER+ treatment regime. You sound well prepared, always better to have something on the shelf ready even if you don’t need it. Otherwise it will always be early hours of Sunday morning when you really wish for a pharmacy! Enjoy the massage.
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Hi everyone, I’m due to start my chemo in a couple of weeks. I’ve had a lumpectomy 4 weeks ago, still sore but healing well.
My chemo will be Paclitaxel weekly for 3 months, I will also be having Herceptin injections every 3 weeks for 1 year.
Radiotherapy will follow chemotherapy.
I am going to cold cap and hoping for good results.
Any advice greatly appreciated xx
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