April 2025 chemo starters

I just had my first of pax fornightly too, i nearly slept the whole 5.5 hours then in the car home and straight to bed till this morning, couldn’t even open my eyes or move my arms to give my daughter a hug when she came in! Never felt tiredness like it, maybe it was the alcohol. Has a nap this morning though and actually feel alright so hopefully will be better than EC though not looking forward to injections again tmw.

I might ask for a bed next time rather than the chair and just try sleep through the whole thing.

I can’t believe how well I feel on Day 3. I was fine day 2 as well, despite steroid red face! My heart did sink when I remembered the filgrastim started today though.

1 Like

Yeah it was hard sleeping on the chair, not sure how much it reclines but was too tired to even ask! Thats good you feel a lot better, i start my jags day 3 tmw, they do tend to wipe me out a but too but hopefully still ok as got quite a few days planned out. I never got steroids to take home this time, was told shouldnt get much nausea with this one though i did have to take metoclopramide when i got home

Gosh, thank you so so much @stafford22 xx

1 Like

I am on weekly Paclitaxel, 3 down, 9 to go.

Feel very sleepy too after Piriton given before the infusion. I had all 3 in the afternoon, getting home just on time for dinner (nothing wrong with my appetite :joy:) but can’t stay up any time after. This week had trouble sleeping the next night after but so far survived.

During the drip is difficult to sleep, as I don’t do well with noise or light in the ward to relax into sleep or doze off… in addition to cold socks and mittens I decided to wear (no doom scrolling :joy:, however decided on a podcast I could not concentrate on at all). So far it worked against neuropathy. Don’t know if it is just because of a lower dose on weekly chemo or the cold therapy is actually working, or it’s not being long enough to hit me. Keeping my fingers crossed I can carry on, however it’s very uncomfortable.

Additionally I have developed tinnitus around 4th round of EC :roll_eyes:. I read on a separate thread I am not alone.

Also… Nearly all my lashes are gone. I looked at buying recommended at the Look good, feel better workshop fake one from Eylure but not sure if I would like to use glue. Has anyone used magnetic eyelashes? Do they work for us?

Wishing everyone a nice weekend.

2 Likes

I’m using the stick on ones with glue and they’re nice and natural. I looked at the magnetic ones but you still use a type it glue/product for the magnet to work. Day to day I wear an eyeliner and the defines my eye and gives an illusion of lashes!

3 Likes

Thanks, might stick to an eyeliner. Just mentioned to my husband on magnetic one and he got very unhappy about any, potentially strong magnets to go around my eyes :confused:. Getting an engineering perspective on beauty :rofl:

3 Likes

Ha! I know what he means! Try an eyeliner and smudge it along so the line isn’t so sharp, it does work x

2 Likes

Well pride before a fall and all that, the pac side effects kicked in big style. Fatigue, oh my, and joint pain, argh! Serves me right for being so smug :joy:

Ive still got some lashes and brows but they’re thinning. Also I’ve not been able to get them tinted so they pretty much disappear into my face.

1 Like

I thought pac would be easy but it’s not! It’s not as bad as EC but it’s relentless and I never seem to bounce back before it’s my next one!

2 Likes

@stafford22 @greenqueen fingers crossed it improves as you go through. My last one was last week and I think I’ve developed more tolerance to most SE’s as I’ve gone through, tiredness increased a bit and neuropathy developed towards the end but otherwise it seemed to get easier. I’ve also found I seem to be better with the neuropathy if I’m more active.

3 Likes

Well done for getting to the end!

I took a Loratidine this morning as I’ve read antihistamines can help with the joint pain.

Speaking of the end of treatment, I’ve booked a trip to Lanzarote for the October holidays with my daughter and my dad. My dad got his own cancer free status confirmed last week so it’s a bit of a celebration. He’d had an MRI for a lesion on his spine which turned out to be benign, and his prostate levels are zero so all good. I hope I have energy back by then!

5 Likes

Huge congrats on finishing! After tomorrow I’ve to 5 weeks left. So close but so far. I’m determined to get thru them all. My hair is growing back on the weekly chemo x

1 Like

Ive found bone pain worse on the filgrastim jags this time round as first time I’ve had it with Paclitaxel. Went to get Clarityn today but found Boots own make Loratadine much cheaper. Also getting like a sshhh ssshhh noise in my left ear, not sure if thats tinnitus caused by the chemo, if so, then hopefully it eventually goes away!

1 Like

@yjmc I can’t decide if my bone pain is related to the filgrastim or the paclitaxel. Either way it’s annoying! You have just reminded me to take my Loratidine so thanks!

Hi all

So I properly overheated last night and spiked a temperature. The hospital wanted me to go in and have IV fluids and antibiotics. Bloods were all ok so no infection which is good as I have already delayed chemo from last Friday to this coming one. Had to be at the hospital from 9.30 until 2am though to be signed off by the Doctor who was mega busy.

Got to bed at 2.30 and up again at 6.30 for work! :grimacing: Might have to slope off for a little lie down later this afternoon
which is a possibility as I am wfh.

1 Like

@hoggie Oh no that sounds awful. Can’t believe you’re working through this. I could go back to bed now and all I’ve done today is bake a cake.

1 Like

@hoggie ay work? I am well impressed! Hope you’re ok. Also impressed @greenqueen baking cake. Hope everyone managing chemo / heat etc. keep counting down.

1 Like

Excess heat not a problem for me: I live in Scotland…. (16 degrees and cloudy currently…)

1 Like

@greenqueen Im quite envious, love Scotland, which bit are you in? And generally just to report in that this afternoon I felt more like my ‘old’ self than I have in months! Did a pets as therapy visit with my dog, she’s been on rest after surgery on her leg, it felt wonderfully normal, fancy going through this lot just to appreciate that! There’s hope for us girls! Herceptin on Thurs might be a slight backward step but hope not.

2 Likes