@foxgem thats bad why couldnt u have anyone with u ?
During covid they stopped allowing someone to be with you and I guess it worked better for them and so they kept that as standard. They can make allowances sometimes if a doctor requests it but in general you go in alone. Even sitting in the waiting room.
I do understand. There are less germs, more space etc
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I am one of the few who is allowed to have my DH with me. Itās part of the reasonable adjustments my oncologist requested. I had three adverse reactions in a row thought I was going to die to the point oncologist had to change drugs and it all added to a heap of hospital based trauma I already had.
TBH if you are feeling concerned, scared or plain worried try and find a way to let the staff on the unit know. they really will do all they can to support you and IF like me you do need someone with you for a very good reason they will do what they can to make it possible.
In my unit its space that is the issue and the fact the nurses need to focus on their patients and not worry about extras people getting in the way.
Sorry but who is a DH?
Dear Husband I think x
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@poppy261 sorry at my unit There are people allowed all the time so i get confused with this idea sorry x
I find it confusing @cazgib10 as my unit always allows one friend/relative to attend. They provide chairs, tea, biscuits etc. Its actively encouraged. Sometimes Ive seen two people with a patient. Less so due to practicalities and space, but the second person has been allowed to stay if they turn up. Theres no pressure for them to leave.
Noone has to book to have people with them. I may be wrong but they just seem to turn up. Come and go.
There is a sign in Reception that discourages huge family groupsā¦.understandable really, but even in reception ive seen three people with a patient.
Seems sad that people have to request to have someone present.
@wibbles are you from England? Trusts are so different arent they. Xxx
@poppy261 thats why i questioned it
DH your correct dear husband and yes l am in England. Your right trusts vary in policies and some chemo units are larger and more spacious than others. Mines big with 3 rooms and a ver large room plus extras but it tends to always run at max capacity.
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It definitely gets confusing @cazgib10 . I never realised Trusts were so different.
I got a Prosthetic from my Trust. After searching the Internet.!!! They werenāt keen to broadcast their Prosthetic Clinic, nor contact me they had a Prosthetic Clinic twice a month . Which I was abit frustrated about.
But when I pushed to go I got a lovely prosthetic. But other ladies were not a fortunate. Quality was not as good.
Ive always had Pegfilgrastim. One only injection. Others ladies have had the huge pain associated with having to have the 5/7 day filgrastim.
Bit of a lottery I think. Xx
@poppy261 cancer care is definately a lottery
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That makes sense @wibbles thankyou . 
I guess the mantra isā¦to always ask about anything and everything @cazgib10 . Nothing is ever too small. Its a confusing world out there. X
Hope you are doing OK this week @wibbles Im aware you have had a really tough time recently.
Ive hopped across Months to get quickly clued up for the latter stages of treatment. But not had time to read every post. But managed to get a rough overview.
Just sending you both love and strength. 
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Random (or maybe stupid?) question, but what did peripheral neuropathy feel like if youāve experienced it? I had my first paclitaxel last Thursday and have had joint/bone pain since, including in my wrists and ankles and a general feeling of sore feet (like Iāve been on my feet all day). Reading the side effects suggest neuropathy is more like a burning sensation or pins and needles but Iām wondering if thatās what my symptoms are or if itās just generally achy bone pain?
@kawan i had that the first dose in hands and feet, really itchy and sore , the sscond dose was better pn a reduced dose , 3 days in i got the burning back in my hands and arms they say if it goes upto ur elbow then the drug isnt safe to continue
Hi, I am just over half way through treatment. My oncologist recommended compression therapy and I also bought Suzzipads to stop peripheral neuropathy.
I only used the Suzzipads for my first infusion - it was such a palaver. Once the ice pads are on you are stuck unable to read, scroll or go to the loo.
My oncologist recommended I look up the Elegant Clinical Trials re; compression therapy. Now I wear compression socks 20-30mmhg and two surgical gloves per hand, one size too small.
I have had no symptoms of neuropathy and at the same time can pop to the toilet, read my Kindle and nibble on a sarnie 
.
Hope this helps
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Thanks this is really helpful. I did wear compression socks and gloves (though not sure either were tight enough) for my first paclitaxel infusion, but think Iāve made myself paranoid that every ache or niggle is peripheral neuropathy? I coped reasonably well with EC so I think my brain thinks Iāve jinxed it and Iāll find the side effects of paclitaxel much more difficult. Not logical I know!
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Hi, from what I have heard it causes numbness or pins and needles on the tips of your fingers and toes. Similar discomfort to burning yourself.
I hope your discomfort eases 
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@kawan i understand how u feel completley I felt the same I got through 2 pac til they stopped my treatment due to neuropathy