Hi,
I am only 6 weeks into my journey but I was just wondering if there is anyone out there in the Oswestry/ Shrewsbury area who may be embarking on or going through their journey now or who has been through it and can offer some reassuring words!
I am 32, Oswestry based, diagnosed with IBC on the 05th Feb, had MX (20.02) and axcillary clearance (08.03), dont yet know if HER2+ or not. Recovering from ops now before i have chemo and radiotherapy in 4 - 6 weeks time!
I don’t have children as we had just started trying but we are going through fertility in this inbetween period so again, if anyone has any similar stories of hope they could share I would so appreciate it. i have never really used websites like this before so i am just feeling my way round!
Lots of love
Hi Sunshine
Really sorry you find yourself here, I know how isolating it can be not having someone of a similar age to talk to. I live in north wales so not too far away, I was diagnosed 11 months ago and felt really alone. However, just after i finished chemo the Younger Breast Cancer Network (UK) Facebook group was set up by Tors who posts on this site. Through this group ( which now has over 300 members) I have been able to link up with a number of other younger women in the north wales area…it really helped. Maybe you’d like to join the group for a bit of extra support and link up with us north wales ladies…this is the link Search Results | Breast Cancer Now
hello sunshine,sorry you find yourself having to be on this site.i am from shrewsbury but older than you at 50.could you ask your breastcare nurse if she is able to put you in touch with someone your own age or in similar circumstances?i know there are a few people from shropshire who meet up.if you look on left of screen under talking to others in similar situation then go to in your area you could put a message on there and see if any of them are younger.hope this helps.hope your recovery from the operations goes ok and good look with the fertility treatment.somehow we manage to find the strength to cope with this damned disease ,take care denise x
Sorry you have to join us on here, but I’m sure you’ll find it a great source of info and support.
I was just starting my journey two years ago. I had a big lobular lump, grade 3, which resulted in me having an mx, with immediate recon, node clearance, chemo and rads. None of it is nice, but it is all ‘doable’.
I’m back at work full time, have pretty much adjusted to the ‘new normal’ of my life post treatment and am getting on with stuff and enjoying life to the full. Hence, I don’t visit the forums as much as I did. But ventured in tonight and saw your post and had to respond.
I’m one of the Shropshire group that meet up once in a while. None of us are as young as you are, but we range in age from our early 40s upwards - and we are quite a ‘young thinking’ bunch. We are just starting to talk about another meet up and you would be more than welcome to join us.
This is the Shropshire thread we use: Search Results | Breast Cancer Now
If you want to pm me with an email address or mobile number, that can be useful for keeping in touch too.
Good luck and remember, there’s no such thing as a silly question!
Dx
Hi Sunshine
I live near Welshpool so not far away; I’m in my 50’s but like to think I’m young at heart! I am now just over a year on from being diagnosed; I had high grade DCIS and had to have a mx in Feb last year but fortunately did not need any radio or chemo. They found some nodules on my lung following a pre-op scan and for weeks they couldn’t tell me for sure whether these nodules were malignant or not. It was only after I’d had a CT scan and bronchoscopy in June that they could tell me for definite that they weren’t malignant. It is an emotional roller coaster of a ride and like you I’d never used websites like this before but I now use it all the time for support.
When I was going through all the trauma last year of diagnosis and surgery I was so stressed and just couldn’t function. It was all I could do to get through each day; night times were difficult as I couldn’t sleep, it was also the time I would have panic attacks. Approaching the first anniversary was also a difficult time for me BUT now its been and gone I am starting to feel much better emotionally and starting to feel able to move on with my life.
Are you being treated in Shrewsbury or Wrexham?
If you ever want to meet for a chat then please send me a message via this website, if not, that’s ok too.
Hi Sunshine. I posted before but it seems to have disappeared. I am also from the Oswestry area and know it very very well. Sorry you have to join us here. I have BC twice at age 37 and 41, lumpectomy, chemo, rads, tamoxifen. Then another lumpectomy, chemo ,rads , zolodox, oopherectomy and Femera. If I can help with anything please let me know. WOuld be nice to speak to a fellow Oswestrian so feel free to PM me. I am also a member of the FB page that Queenrefusenik mentioned and can highly recommend it as we are all young women who are going thru/ or finished our BC treatment. Take care x
Thanks all,
Really appreciate the support!! I have sent a PM to DJ007 and F1Fan with my contact details on!! would love to get in touch and would def be interested in joining the Shropshire group!! I guess I just feel that it would be great to have a hug from people who just know how this feels without having to try and explain!!
Jane, I will send u my details too but i am being treated at Shrewsbury!! Had my ops at Telford and touch wood, recovery going well!! Just sore but for 9 days on I’ve got a good range of movement back already!! touching lots of wood now!!)
Big hugs to all xx
Hi Sunshine, I live in Oswestry and I was diagnosed two years ago at the age of 35, though I was misdiagnosed for several months so should really have been diagnosed at 34. I had surgery in Telford and six rounds of chemo in Shrewsbury but I managed to get private health insurance so now I have my treatment in London. Annoyingly, by the time i was properly diagnosed I was Stage 4 (liver mets) but I’m currently very well and I just have scans every couple of months and treatment whenever something pops up. My last scans were clear so I have been able to take a break from them for a bit Send me a PM if you’d like to chat and maybe meet up!
T xx
would love to get in touch and would def be interested in joining the Shropshire group!!
Send me a PM if you’d like to chat and maybe meet up!