Arimidex terrible side effects!

hi

New to forum. 

I’ve been on Arimidex 3 years almost. 

Seems like side effects getting worse.

Mood swings, joint pain, lack of energy. 

I won’t my old self back ! Not sure I can go another 2 years!

I’m 62 and feel like 82!

Thoughts?

P.s. have no idea how to get to single space

Welcome to the forum . You could post about this in the hormone therapy section of the forum too , I will post you a link . It’s a very individual decision regarding continuing with hormone treatment -  risk versus side effects / impact on quality of life . Have you discussed your percentage benefit on hormone treatment this may help you make a decision. Has your Oncologist discussed Tamoxifen  as an alternative,  some people find it less harsh on the bones / joints so may be worth a try .Best wishes Jill x

Hi

I see that people don’t tend to reply to these ‘intro’ posts (I’ve just posted my first one!) but thought I would reply to say I had that drug some years ago after they found LCIS, to aim to prevent cancer in the future.  I had to stop taking them as I found my blood pressure became raised, and I kept getting cystitis.  However I’m going to have to start taking it again as I do now have cancer!

Anyway, I was going to say would be it be worth asking your consultant or nurse to try a different drug?  Other ones might be more tolerable.  Good luck!