Hi fairy - hope you start to turn the corner soon. What side effects have you got this time round? Day 4/5 is usually the worst point. Fingers crossed you will feel better soon xxx
luckily not many so far, extreme fatigue tho all i have done is sleep. im a lil achy and cant taste anything either…when is everyones last chemo? xx
My last one is 16th December x
Hi August ladies… hope everyone is good…I’ve been resting these last few days I went downhill on day 4 and then yesterday …with horrible side effects yesterday…nearly called 111. Never had so much pain and discomfort felt really bad…worse than Fec…!! Was in bed most of the day, but just couldn’t settle…I ached everywhere, but mostly my legs… had a horrible migraine type headache that wouldn’t go and lots of chest pains or spasms which got me worried…I cried…I swore…I threw things I was so down…hate these chemo side effects so much.!! My mouth is so sore and dry that I’m not eating much nor drinking much…just sips of anything that tastes ok !! I just don’t have any appetite as food taste vile and I don’t have any energy…so I know that’s not helping…but I am trying to get something inside me …but it is so hard to eat when mouth is sore… I’m day 7 today and feel better although my stomach is upset and has been for a few days… I just cant take so many horrible side effects together. Its so depressing…I am really struggling…
Meesh73 sorry for the delay in getting back to you…Yeah there are not many people still cold capping a lot of ladies see loads of hair falling out and presume the worse that it will all fall out…this is NOT the case…you will shed loads around the 2nd chemo…I lost a lot and thought that’s it. Its all coming out…but I read lots of other peoples stories over the years and they all said. Don’t give up with the cold cap…yes you get tingling and scalp is very sensitive and yes you feel like all your hair is coming out. But I’ve still got around 50% left and I started with short thick hair… it will thin continuously. But I only got that one major hair loss around chemo number 2 …I have a thin patch on top of head and also on crown. But I have a thin covering of hair which I can just to say cover. I’m tall so not many people can see the top of my head and I have a decent covering everywhere else…albeit a thin one…!! Lol
I wash my hair with palmers coconut conditioning shampoo once a week and use a little simple conditioner as well…my hair looks better using this shampoo than simple shampoo which left my hair flat and lifeless… I’m now in my 4th chemo doxetaxel and still cold capping although I’m feeling the cold more on top. But it only lasts 10 minutes then its bearable… and is a shorter regime… I’m glad I persevered with the cold cap because I nealy gave up …but when I read other peoples stories they all said. Hang on in there. You will lose hair. But you will keep enough to get by…good luck
Fairy, I’m 27th November last chemo…(if I last that long) !!! Lol x
Hugs to everyone. How are you all doing. Ali and Sib Are you ready for no 5 ?
Does day 8 bring any relief from doxetaxel hell…?? Xx
Feel your pain Fairy and Sue, im day 18 after 4th chemo 1st docetaxol and only just starting to feel anytbing remotely like human. Still horrid taste no appetite and completely debilitating fatigue. Can this really be treatment!! Achey bones stopped for me day 10/11 when i was in hospital but had severe problems with hands sore swollen unable to write, wash dress. They are now shedding skin .
Next chemo due Wednesday and not sure im up to it but dont want to delay the end of treatment either. Due to finish on 15th Nov .
Sending love to you all. Hope we have the strength to continue and see this through. X
im the 27th nov too… ah we are all getting near the end now
Hi August ladies, sorry to hear you’re all suffering a bit this time round. Try to stay positive and stick with it as you’re all nearly there!
Sue 58, thank you for responding especially as you’re not feeling great I really do appreciate it. It’s good to know that the tender tingly feeling is normal. I’ve been using a natural shampoo and conditioner by weleda (doesn’t contain sls or parabens so is gentleman hair) as was already using this prior to chemo. I’m going to continue cold capping whilst I still have hair on my head, I also found the first 10 minutes the worst after that it’s ok. Unfortunately I’m on fec for all of my chemo so will have to take the longer treatment 
Good luck ladies with your remaining treatment! Hope you’re all feeling better soon, at least it’ll all be over for you before Xmas!
Also meant to say I’m sending you some ???hugs and sparkles 
????? plus some ???from the October forum as that seemed to work for one of our ladies who ended up in hospital for 6 days after chemo 1.
Sib, I keep saying the same. How can treatment be so horrible…but I know it has to be strong to kill the cancer…but it’s killing me in the process…!!! I don’t know if I can do the 5th one to be honest, but I know to get the best results I have to…I just cant cope with all these horrible side effects…and the mouth thing is getting me down…no saliva…food tasting bland…!! I cant wait for this. To be over…x
Meesh73. Thank you and good luck…keep cold capping xxx
Sue58, sorry if it looks like I’m butting in but have you been given a mouthwash for your mouth? I’m sure I read either on the September or October thread that some have been prescribed with a mouthwash? Just thought it might help you. ?
Yeah I have been give Diflam…but it didn’t seem to be helping…I’m trying warm salt water rinses which seems better. Thanks. Not butting in at all lol. Xx
I also read somewhere on here that bicarbonate of soda is good too mixed with water (read so much stuff whilst I was trying to prepare, can’t remember where I read it) can now blame it on chemo brain, rather than rubbish memory!
I have tried difflam and bicarbonate of soda but nothing takes away the nasty poison taste, really fed up as so weak and faint from not eating . X
i ask the gp for the oral thrush med and take it from day after chemo and mouth has been good for last 2 treatments… nystalta or something
I’m the same Sib…will ask my doctor tomorrow if she can prescribe something…its a bitter metallic taste. Everything tastes vile…I’m getting faint from not eating much…sick to death of it. Mouth is so dry…!!! Xx. thanks fairy and meesh
Just caught up on this thread, sub how are you now?
Sib sorry, not sub…silly predictive!
Hi i amfrom sept/oct tbreads and had sore mouth on round one of chemo
I am usnig the biotene toothpaste and mouthwash but my Gp gave me Benzydamine mouthwash for the sore gums and ulcers and Daktarin orznge oral gel for thrush. It got much better with this. So now day 5, round 2,i have been using them and although my mouth is sore its nothing like last time. Xxx
Sib and Sue,
I remember falling apart after my first tchp. I didn’t think my body could endure it 5 more times. Maybe I’ve been lucky but it has got slightly easier with each treatment, and the side effects a bit less intense.
Try sipping sparkling mineral water through a straw. It keeps the mouth moist and less vile. Fennel toothpaste and soft toothbrush to refresh the taste can help as well. Food just is t the same but day 8 is usually the turning point to improving slowly.
I was given a full week tapered course of steroids with my third round and it really helped too.
You will get through this and win!
Lots of love xxx