Sib…sending lots if hugs to you…that must have been awful for you today…you might have to change to abraxane like mishy did…she had the same problems I think…thinking of you. Xx. you will get there very soon. Xx
Sib that’s what happened to me on the Doxetaxal they might give you abraxane which I had after the doxy was halted its not used as often but if you can’t tolerate the taxols they sometimes use it the reason I wasn’t allowed that drug you’ve been allergic to is because it has similar ingredients to the doxy, it’s an awful experience mu onc says there are two types of reaction to chemo I had both types in two sessions which was my my chemo was halted so don’t worry they will find a replacement for you if necessary xxx
Hi,
I had my chemo on Thursday. This time the steroids have sent me spinning. 4 hours sleep in Wednesday night, only 2 hours last night! Hoping I can sleep tonight but my dose only starts reducing down tomorrow so not overly optimistic! Been busy busy shopping for Xmas, cooking, and running round like a headless chicken!
Thanks for info Mishy, im very down as my chemo has been stopped twice now andcway past 1sr finish date and wont make 2nd finsh date either. OH and youngest son think i just need to accept tnis an move on, but its not that easy, very isolated just now.
Doctor I saw yesterday adviced there a few more options but some may need approval from a committee (probably due to cost) so more delay possibly . Though my biggest fear is that the taxol chemo appears to give the best outcome against 10 year survival rates for my type of cancer.
I know tjis would be hard but its so much more difficult than i thought. X
Abraxane is very effective in the family of taxs bilut made up with a human protein product instead of solvent which they think is what I was allergic to, my onc explained this all to me in great detail because I had two reactions to doxy he thought it would be irresponsible to try palitaxol and went straight for the abraxane for me he refused to cancel out chemo as I was TN and didn’t want to give me a full regime abraxane is normally used to treat secondary and mestatic breast cancer only to be used in primary in extreme circumstances which is what our case was I know exactly how you are feeling right now I did too I was terrified there were no options left for me now or in the case of a dreaded recurrence your MDT will have a back up plan with another drug suitable for you xxxx
Yes Sib I think some of these drugs are very expensive a nurse on chemo ward let slip mine was she thought I was on a trial xxx
Sorry Sib I was meant to say he didn’t want me to not have a full regime x
Thanks for info Mishy, just what i needed to hear. Feeling a bit brighter niw. X
Hi August ladies. Hope everyone
is well ?
Well today I have just had my LAST CHEMO…!!! And I am so relieved its done and dusted…just got to get over the side effects then look forward to christmas…with radiotherapy to follow in January…
Big hugs to everyone else that’s had chemo today Fairy and Helen ? And hope Sib and Ali are feeling ok …
Good luck to the rest of you August ladies who have chemo this week …big hugs to you all xxxxx
Great news Sue, it must be a great feeling. Xx
Fantastic news Sue! Well done for getting to the end of Chemo. Hope the side effects are bearable…
Hope everyone else is doing well this week. xx
Sue, last chemo, that’s great news I’m so pleased for you. I hope your SEs are minimal.
I’m day 13 from my last dose and still trying to shake this cold. It’s frustrating as I have minimal SEs from the actual chemo. Anyway, I’m finally starting to feel better. I’m looking forward to next week when I can start taking vitamins again. Lumpectomy on 18 December is next for me.
Hope all you ladies are doing well xx
Hi ladies
My name is Jo and I started chemo back in August too.
I’ve got 13 days to go until my last one!! I’m on FEC-T for breast cancer. So it’s chemo, surgery, radio.
It’s been a journey for sure bumpy, teary, frustration etc. The lump has shrunk dramatically, so I’m preparing for a mastectomy but praying for a lumpectomy on the side lol!
How does it feel sue to be done??
Does anyone else live in fear of their temp spiking too?
Thank you for reading
Jo x
Thanks Ali, Mary-Kate, Sib and Butterfly for your lovely comments and welcome Jo to the lovely August thread…
I do appreciate that some of you who started beginning of August with your chemo have had a delay or two or have had hospital admissions and I know that must be frustrating and I know I was lucky in that respect, but there is light at the end of the tunnel very soon for you albeit a week or two later than planned and even tho my chemo has finished I’m still thinking of you all nearing the end and crossing fingers all goes well…!!
Day 3 today and feeling good but tired…thanks to the steroids…!! Hoping side effects will be easier on me like last chemo was… manageable…
Jo how did you find the Fec-T chemo ? Did you have any problems with the docetaxel ? I hope your surgery goes well. I had a lumpectomy with lymph nodes removed in June so just have radiotherapy to go in January… been a long 8 months for me with so many emotional ups and downs, but I think every lady on this forum has gone through this as well…some of the ladies have had a tougher journey than me, but they are a very strong, positive group…
Hope everybody is well and good luck to those with treatment this week…Sib I hope you have a good week and get the right chemo to get you through this…x
Ali, good luck for surgery…hope all goes well for you…
Hugs to you all xx
Glad you’re feeling good at day 3 Sue. Thank you for being so positive, it’s makes all the difference hearing from someone who has just finished and is still smiling
Docetaxel is horrible! My first dose I ended up in hospital and with burns on my hands and mouth. They’ve reduced the dose by 20% this time around and it’s made such a difference. FEC was a walk in the park lol!!
I just dislike the day 7-14 thing, I feel overly paranoid and worried abounwn infection even though I haven’t had one in the last 5. It plays with your mind lol.
Here’s a huge hug and high five to the girls here. Keep going!! You’ve got this.
Lots of love
Jo xx
Thanks Jo…I also had my 5th and 6th docetaxel reduced by 20% and a few extra steroids to help after my 1st docetaxel made me feel absolutely lousy and so depressed…I really struggled with my first t…!! But the next one was so much more manageable…made a big difference… so I’m hoping this last one will be the same…yeah I will be happy when I get to next weekend and taste buds should resume to normal…!! And all the aches and pains are gone (thank god for epsom salts) !! I didn’t enjoy Fec much either as I was really nauseous with it…
Fairy and Helen , how did your chemos go on Monday?
Big hugs to you all xx
Hi ladies. Haven’t been on here for a while. I’m on day 14 of my 5th cycle (2nd Docetaxol). Having lots of ectopic heartbeats over the last couple of days which are horrible. I’ve had all the heart tests previously which are fine. Just wondered whether any of you experienced these? I seem ok when I’m sat or lay down but when I get up and about I get them quite a lot.
Well done to all you ladies who are coming to the end of their chemo, my last one is next Wednesday!
Hoping the last one will be manageable.
X
Sue Ali great that toy have had your last one it’s great feeling isn’t it strange too when you don’t have to have another one on chemo day I start my rads next Friday have had the scan tattoos etc we will see what that brings!!! I know tiredness is a SE but don’t know about other stuff!
Sib I hope you get sorted soon so you can crack on and get this bit of it over x
So on five weeks or so my triathlon will be over, this thing has changed me so much as a person I don’t think I’ll ever be the old me again xx
Have a good day everyone and yes everyone gets paranoid about the temp spike thing I’ve been walking around aldi with a scarf over my nose and mouth incase I catch something and it been 4 weeks today since last chemo
???
Hi Ladies, went to hospital today to discuss my treatment plan, a specialist team from the nearest largest cancer centre saw me, I was advised if I wanted I could stop chemo now, but I want to take all the treatment I can to reduce chance of reoccurrance. Its been decided i will start carboplatin next week , they hope I can tolerate 2 or 3 sessions which will be given on 3 weekly cycles. Any reaction will mean chemo stops permanently . Carboplatin is apparently thought to be good for brca2 gene cancers, which I have. Oncologist also said that they see the level of side effects and reactions i have experienced in less than less 10% of all chemo patients . Trust me!! So now looking at end of January to finish chemo. Trying to remain positive.
Love to you all. X
Hi Sib excellent news you can carry on fingers crossed it all goes well for you! I’m do pleased they found a drug suitable for you (I don’t have the brac gene well I haven’t been tested!) I know being TN it was important to me and my team that I carry on so I’m thrilled you can too, it’s funny to think that you want to have more when something like this happens but you have to take everything offered don’t you, I was told the same as you too!! Trust us to be that small percentage of unlucky buggers ??