AUGUST '17 Chemo Starters

Glad you feel better Ali! We just dont know how we are going to feel one day to another. It sounds like a busy week for you which is good as then times goes more quickly.x

Enjoy your meal Cathysid and be spoilt. You can shout to me now you habe your voice back!
Not heard from rbe BCC course yet, maybe today.x

Well done Joe for last chemo! Mines on the 19th, phew!
I had an op b4 chemo and recovered rather well but I need one after chemo too to take away lymph nodes. Dont be too nervous, you will be in good hsnds.xx

Mishy, Sib, Sue have a good day. Chill day for me after work at weekend.xc

Herceptin and first Carboplatin yesterday, another long day, 9am to 3pm as they watch me closely now for reaction and carboplatin is made specifically to order using your blood test results. Felt a bit sick and yucky last night but not too bad. Next treatment is 27th December. Feelung very emotional tbough crying alot also losing 4 of my fingers nails (lifting off) despite having them painted black. Very debilitating and painful any hints and tips? Worried about infection too especially on lymph clearance side what should i look for.?
Hope you are all ok and ses are manageable. Xx

Gosh, I do think that emotionally it is getting tougher. Maybe we are all getting more run down the longer it goes on.

Sib, my nails are starting to look ropey too. I’ve cut them as short as possible. My father in law had the same problem and he found taping his finger ends meant he caught them less and was more comfortable. Have you got good anti nausea meds too? I am on akynzeo as the carboplatin makes me very nauseaous too. None of the other anti sickness meds worked for me. Hope you feel better soon, and get some good days before the next one.

Butterfly and xena - big hugs.
Lots of love cx

Sib, glad you managed ok with yesterdays chemo…and the new drugs…hope all is well with you…and I can understand you being upset and emotional about chemo and getting it over with , it must be a worry for you…I’m emotional most days…!! But so tired, so that may contribute…!!
My nails are hood but I didnt paint them dark, I just left them with clear nail polish and so far no problems or no ridges… my toe nails are a little sore and they have dark nail varnish on them.!!..

Hope all other August ladies are well and managing SEs …
I’m day 11 today and starting to feel a bit better in myself, just not sleeping well at the moment… side effects have been like chemo 5 (with the reduced dose,) much more manageable , so glad this is the last time I will feel like this…I’m a person that’s not ill very often and only had 3 sick days from my job in 11 years…so this last 4 months has been a struggle physically and mentally for me…I hate not being myself , but to get rid of this cancer its something we all have had to endure… onwards and upwards as they say…
I must say I think were the quietest group on this forum…lol. hope everybody is OK ?
Big hugs to you all xxx

Hello ladies. How is everyone doing?

I’ve had a busy few days and I feel very tired tonight. Realise I’ve probably been overdoing it. Off to visit hubby’s family in Yorkshire tomorrow for the weekend so I will be taking it easy. Hoping we don’t get snowed in there!

I hope you are all doing ok and managing your SEs xx

Hi Ali and ladies,

Yorkshire sounds a lovely little break, but take it easy chic. Rest is our weapon ;).
This is my third week, feeling tired but good. Played in my band last night and thought I’d have a big crash after but was fine and had the best night sleep!!

4 days until last chemo!

Sending loads of love and hugs to everyone xx

Hi all,
6 days to my last chemo and surgery is now booked for 10th of January. Feel like I’m coming to the end of a long rollercoaster only to get straight onto the log flume!
Enjoying my good week, catching up with family, might even have a glass of organic red wine tonight!
X

Hi ladies. How are we all doing with the snow? We had to cut our weekend away short to make sure we could get home. I still have a cold! Although I feel ok I’m starting to worry that my operation on the 18th won’t go ahead.

Butterfly, Xena, Sib, Sue how are you all feeling? Cathysid have you managed to get rid of your cold?

Good luck with your last session next week Jo xx

Snow and colds def not good!! I got myself some boots 1st def i feel one brewing so hoping to keep it at bay!! Don’t know if it works mind!
Dreading snow coming iur way with daily rads it better stay away don’t want any spanners in the works ?:snowflake::snowflake::snowflake:?

The emotions thing is definitely cumulative i think its because everyone is so tired towards the end of treatments i know i had an emotional breakdown yesterday felt like ? feeling really sorry for myself wishing it was all over and done with

Mishy - hoping you feel less ? today! We all have ? days, more so I’m finding as chemo goes on longer. Big hugs and strong vibes to you x

Butterfly - my thumb have cracked too, despite copious moisturiser!Also my fingertips have gone numb so I’m struggling with zips, necklaces and picking up small things. Still got the Xmas wrapping to do so that could be tricky!

Jo,
Good luck with last chemo this week! We re nearly there now!

Ali, my cold has gone but still coughing up mucus and criaky voice though! Drinking my fresh veggie/ginger/turmeric/raw garlic juice and taking vitD and echinacea. Hoping you feel better soon- these thing certainly take longer to beat on chemo.

Sue - hoping the side effects have passed and you are ready to enjoy a good week. I know how you feel about being ill - I was never off sick, 100% attendance at school - it’s so difficult not being fully functional.

Sib - hoping you are hanging on in there. Feel guilty to be finishing when you still have a little way to go, but we will still be here for you. Soon you will be there too. Hope the fingers are ok and not sore?

Xena - hope the side effects have passed now and you feel better.

Ck - lovely to see you looking so well and making us all smile!

I’m just heading home after my sisters wedding. Had a couple of glasses of vino - more than I’ve had in the last few months! And had lovely times catching up with family. My wig didn’t fly off even when I had to join in the kids disco and do that song with actions … you know the one… ski, swim, comb your hair, spray, superman! Ha ha it was a laugh!

Worried about my fingers and ability to do surgery when I go back to work :frowning: Hoping the last chemo doesn’t make it worse.

Lots a love,
Cx

Hi Cathysid
Have a safe journey home. It was lovely to see you on Thursday. My daughter says you come accross as a kind, helpful, calm lady? I nearly fell asleep towards the end. Its great to hear its your last T next Thursday and mine 5 days later! Touch wood we will all have manageable last treatments??

Snow not too bad in Stockport but very cold! I changed my plans going to two Xmas markets. Brrr! The past few days have gone so quickly as had something on every day and now organising a charity event on Friday for my local Cancer care centre. Time has gone so fast since diagnosis and fitting things into our 2 good weeks makes it go so quickly.

I see what you say about emotionals. U had a couple of weepy days for no reason. I dont rhink we realise how tough this is andxwhst we are going through until we actually think of that side. We tend to just concentrate on coping and getting on with rhings and I feel it will hit me on the last treatment. Im expecting waterfalls! BUT not to forget, its just end of chemo and still have an op and 15 rads so only halfway there! Phew!! But at least have a month b4 op.
Speak later.xxx
P.s Bananarama were brill last Weds!!

Sorry im not replying but im Struggling to type as I have really sore fingers (and toes) with 4 finger nails hanging off. Fingernail thing is huge problem can do very little even washing is nigh on impossible
Im very down just now, crying everyday at everything, the emotional side is really tough and my family are all shocked at how easy i cry now .
Day 5 after 1st carboplatin and ses not too bad, other than nausea and rhe dreaded constipation due to anti sickness meds! Got to be really careful dayb7 -14 on rhis chemo as wbc really drops so you are very susceptible to infection, been
advised by hospital just to stay indoors!
Isolated, Irrational and irratated is probably best way to describe me ar moment.
Sending hugs to you all, keep posting as I love to hear how everyone is doing. Xx

Great to hear from you Sib. Your finger nail problems sounds really sore. Mine are hanging in there but I know that might change at any time. Sorry to hear that you are having a hard time emotionally. I think we are all suffering, I know I am still up and down. The feeling of isolation is hard but you will get through it and at this time of year staying in is the only way to protect yourself.

I have my pre op assessment early tomorrow morning which I’m not looking to. I have white coat syndrome so there is always a drama about my high blood pressure. Then I have the dentist which I am absolutely dreading. My teeth have always been quite weak and I know chemo can damage them so I’m fearing the worst.

I hope everyone else is doing ok xxx

Hugs and strength to you, Sib. You will get there. The road seems long but it will soon be a distant memory. Is there something you can do while you are stuck at home? An online course, art or crafts, reading, writing, planning a holiday for next year, online yoga or Thai chi? Hope it passes quickly for you xxx

Sib hope you are feeling a little better today sorry ti hear your having a rough time its won’t be kong now when i was having ? i reminded myself of that and now I’m doing rads its not long for me now not going to lie im so looking forward to it being over but for now keeping positive that’s what we all need to do ???

Morning lovely ladies,

For all you going through a rough emotional time and feeling down, I want to send you a hug and a smile. Take hope, there will come a time when you will look back at this journey and see how strong you really were. Don’t be too hard on yourself, watch your fav movie, treat yourself to a square of chocolate. Keep going! You’re doing great and I’m praying for you!!

Last chemo today!! It feels like it’s all gone quickly yet I know there were days which dragged they’re heels. Looking forward to having my PICC line out too so I can have a proper bath with both arms under water haha!!

Keep smiling beautifuls and breathe.
Lots of love
Jo xxx

Jo, last chemo that’s really great news. I hope you are feeling well and the side effects are minimal. Thanks for the hug I’ve really needed it today.

Butterfly, good news on the dose reduction. I had one for my last 2 doses for exactly the same reasons. I’m still suffering with my feet but I’m hoping I will be lucky and it will get better eventually. I had minimal side effects after the reduction so fingers crossed you will too.

I had my pre op today which went well and they had no problem getting blood from my 1 and only vein. My lungs are clear despite this cold. All good but I feel like I’m always expecting bad news these days, which is probably why I had a meltdown at the dentist and burst into tears. My poor dentist was so lovely and I was worrying for nothing as there are no problems at all. She recommended a special toothpaste to help replace any floride lost during treatment, which costs £11 for a small tube!

Love to all August ladies x

Hi Butterfly. My operation is booked for Monday. Getting quite nervous now. It’s so good to hear it’s not just me that is prone to these constant meltdowns. It’s so embarrassing. I hope the dentist goes well for you tomorrow and you get your gentle clean. I saw the hygienist today and she was very gentle just in case my immune system isn’t fully recovered xx