hi both, thanks for your replies - it was ok, quite nice to be manhandled a little less as the equpiment moves instead! Lilacmoon that sounds horrendous - no it doesn’t cover my nipple (thank god as it is really sore already) my skin is really starting to suffer so I will be very glad to get to the end of this week…
Oh NikNak, sorru to hear your skin is suffering ? Mine only ever turned pink and was a bit itchy just below my neck.
Have you asked for help from the technicians?
Something i used to do at my itchiest times, was to put a cold facecloth over the area and this was lovely and cooled it down.
Worth a try x
8 down 7 to go so half way there.!!
Now very pink and a bit sore and starting to get stabbing pains every now and then. Radiographer said this is normal so trying not to let imagination run away with me.
Hope everyone is progressing nicely and se are minimal. We can do this xx
Lilacmoon14. "Think I will try the wet flannel tonight as you say worth a try xx
mcnulcc I must be just behind you, I’m 7 down 8 to go! I haven’t had any changes in my skin so far but am feeling quite fatigued, not too bad tho ?
Amyjb. I was really tired yesterday felt like I was walking through treacle so I increased my water intake and feeling much better today. I have always drunk a lot of water but I think this hot weather is probably increasing issues with hydration. Just applied some aloe Vera gel that I have had in the fridge. Oh the bliss… Feels so much better so will be continuing to apply this along side the cream given by hospital unless they tell me otherwise.
By tommorow night you will be more than half way through treatment what a lovely positive thought to go to sleep with. Good luck with the rest of your treatment hope your skin continues to hold up. Chris xx
Mcnulcc
I’ve only got three sessions over with so far but am definitely just beginning to feel the effects as they seem to be hitting you at 8, not looking forward to the results of the next couple of weeks at all…skin is already quite dark in some areas, I’ve been quite pink in that area since op. Tingly and a few sharp shooting pains, snap.
I wasn’t very good at drinking water as I should, but have to agree that this treatment plus the hot weather has made it easier, as I’m thirsty most of the time …drinking lots does help, everyone’s right about that.
I have some Aloe Vera on standby too, and cold flannels are a good tip - I’m reminded that I always resorted to using them over the years, to help me get through hot nights, (hate being hot while trying to sleep!) - hopefully they’ll work again if needed.
I hope that you will get through your remaining sessions without discomfort, and you are well on the home straight now, only 7 to go…
Best of luck, will be following a few steps behind !
Thistle x
Hi
I can’t believe the 15 sessions are quickly disappearing- only 4 to go!
On Monday it felt like a very long haul.
I got an appointment for my oncologist in October- that seems a long way off, is that normal?
I have gone so far with no side effects, have used aveeno body wash in my daily quick bath with aveeno cream applied after the bath. I eat lots of almonds that should be rich in vitamin E to help skin, gallons of water.
I have read that side effects may still come after end of sessions- hope not. I hope others have an easy passage through
Xx
AnnieApple, same as.
I have my appointment today and i finished rads 5 weeks ago. Its meant to be 6 weeks but I think he must be on holiday next week so they brought it foward.
I’ll nip back later and let you what was said x But i guess its just to make sure all the SE’s have settled and then plan what happens from now on.
I already got sent an appointment for next May for my mammy, and then one for next November for my clinical review. My NHS trust seems to be a well oiled machine!!!
Hope everyone is looking forward to two zap free days xxx
Thank you to everyone in this forum, my path has been fairly straightforward but still worrying. I have welcomed the information here and when I read I think this is my time to think about me and my condition with others going through similar scenarios. My family are supportive in that I am asked if I’m ok but it’s not the same as having people who UNDERSTAND and have been there.
I am so looking forward to the weekend of not going to the hospital and so very pleased that I only have 3 to go!
Xx
Annieapple
Thanks for the post, it’s everything I’d like to say too !! I have 10 sessions left but could not have got so far without the help and support on here, with people who really understand…
Love the tip re almonds and Vitamin E, I adore almonds, what a great excuse to eat loads, washed down with all the water of course !
All the the best for your last 3 sessions, after our weekend off…yay…
xx
Lovelies,
Saw my Onc yesterday and all is well.
He asked about SE’s and how my skin was, checked I was still moisturisering and asked about my general health.
I had a few questions for him but in the end i decided not to ask what grade my blip had been as I think i was too scared of the answer!!!
I also asked about chances of reoccurrance and he used a website to enter all my details and the details of my blip and basically I have the same odds as any other normal person my age so that made me feel better!
Another appointment in 6 weeks to see my BC nurse and thats when they will sign me off.
Wow, from first going to the doctors when discovering the blip, to being signed off in 6 weeks time, just 6 months from start to finish in total.
So my lovely rad ladies, you’re getting there and the hard part is nearly all done.
Just keep it going with the water and moisturiser seems to be the ongoing message even when the actual zapping ends.
Have a relaxing w/e
???
10 out of 20 sessions done! Yay!!! Am feeling really tired but not too sore. More stinging and stabbing type pains. Am using Zerobase emollient cream which seems to be doing the trick. The radio therapists are all lovely and so far it hasn’t been too bad. Has anyone given their radiotherapy dept a box of chocolates or anything at the end of their treatment? Just feel like I want to say thank you somehow xxx keep going everyone xxx
Jclarke4 I have also done 10 sessions and apart from being really really tired my se are like yours stinging and stabbing pains but nothing near as bad as I imagined. I also wondered about getting the radiographers a little token to say thank you. Was thinking maybe some nice biscuits for their break time. Will wait to see if anyone has any better suggestions.
Lilacmoon14 great news about your appointments really pleased you are well on the road to recovery.
Have a great weekend everyone. Slap on the cream and drink plenty of water x
I just joined and I must say I’m so ever so grateful for what has been said here. Its difficult to make friends and family truly understand and to share with a community that is experiencing the same journey has become so beneficial. And this has only been two hours of joining.
I finished my rads treament last week and i have experienced tender nipple and the skin has come off around the treated area, shooting pains and itching, it almost feels like at times it is on fire which apparently is common. I also have large breasts so although told not to wear a bra found it diffucilt not to. The hospital gave me some silcone pads to use to protect the area from chafing, which has helped. Also because of the itching they gave me some gel which they advise put in the fridge before use, to use on top of the moisturizing cream they gave. My boob currently looks like a patchwork and under my armpit it is very dark. But they say this should settle.
Welcome Madambutterfly xx
Has anyone else developed a sore throat? Not like a cough but quite painful to swallow? I’ve just googled it (tsk tsk) and could be a rads SE. I’m going to bring it up with the radiographers today but was interested to see if anyone else had it??
Amy x
You Googled! ???
Step away from the search engines ?
I know, naughty ay Lilacmoon14 ?, especially worrying when one site said it could be a symptom of throat cancer, thankfully the cancer research site said it was a rads SE and the radiographers confirmed that for me this afternoon, phew ??
I did the same thing before finding this site and omg when I say I was petrified to what my Google diagnosis was … Thank you for being here.
Can I ask a question and advice. Did anybody dye their hair during their radiotherapy or after. I didn’t as my hair has been falling out so didn’t want to do anything whilst having the session, but now I’m thinking would it be ok. My hair has become like straw as well. Been using loads of different types of hair conditioning products.