August 2023 Starters

Hi
This thread is for anyone starting chemo in August and is looking to share help and support.
Sue xx

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Hi everyone :slight_smile: I was meant to start chemo in July for TNBC but this kept getting pushed back and now I finally have my first appointment on Monday. Feeling nervous but also relieved it’s finally happening. I had to transfer care as I wasn’t happy with my original care team but my new team are amazing and they’ve made me feel completely at ease. I got a Little Lifts box from my new team today and it really brightened up my day! Hope everyone is doing well x

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@Yasmeink how did your first appointment go ?

Are there others out there starting chemo this month ? The thread is very quiet probably due to the forum being read only for 2 weeks .

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Started last week on EC
Not too many side effects, and everything manageable
Except one day i did get dizziness and heart palpitations and had to go to a&e. But everything was ok.
I’m a bit worried about it happening again at the next cycle

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Well done for getting your first one under your belt. @Sue_C @Shi any advice for tulip ?

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Hello fellow August starters, I am having my picc line fitted on Tuesday & my first chemo EC X 3 on Wednesday followed by Docetaxel X3 & rads x 15; Nerves really settled in now! I did go to a headwrappers workshop at my hospital yesterday, learnt fun ways to tie scarves, met lovely people & got a little goody bag too, can highly recommend to you all xxx

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Hi @Jill1998 thank you for checking in! It went well, no reactions and I was able to go home after 5 hours. I’ve only really started feeling side effects from yesterday but both my boys haven’t slept well for a couple of days so it could be that too! Hope you’re doing well :slight_smile:

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Good luck! I hope it goes ok xx

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Good luck next week @NikiJK

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Tulip :heart: take it one treatment at a time :heart: you will settle into a routine but always be vigilant during chemo :heart:take your temp and even with no temperature if your wee burns call your unit, it’ll probably be a uti from the chemo and will need antibiotics as will thrush mouth which can happen too from chemo :heart: always ring your team and check during chemo :heart: sorry you find yourself here but do ask away everyone will help :heart: Jill, sue and I are bcn forum community champions we don’t have this against our names at the minute because the forum update glitches are being worked on. Just wanted you all to know :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Hello everyone. Hope you are all doing ok
I had an appointment today to discuss the plan. I will be starting on EC for 3 cycles and then having Docetaxel along with Phesgo for 3 cycles. Just waiting for an Echo appointment then I will get a starting date. Just want to get started now. x

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Hi @sindy5 ! That start date will come by so quick! I was told I would be waiting 2/3 weeks for one and they got me in 9 days later. It’s such a relief to finally get going but I did make the most of the time before by catching up with family and friends I hadn’t seen in a while, just in case my side effects didn’t allow me when I started (I did miss out on my friend’s hen last weekend because I was so tired but I have a 3 year old and a 3 month old who both don’t like to sleep overnight so I’m not getting a lot of sleep at the moment!) but I did see her before chemo and we had a lovely afternoon so I didn’t feel too upset over it. Hope you’re doing well and best of luck :slight_smile: xx

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Thanks @Yasmeink Im thinking I might be joining the Sept thread as I might not have started in August. Has anyone decided to continue working or have you gone on long term sick? I’m a teacher so have been advised to stop but I was just wondering if anyone has continued working? Thanks x

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I’m on mat leave at the moment anyway but I have already asked my employer about going straight onto sick leave as soon as my mat pay runs out. I have heard some people manage to work well in between cycles though as everyone reacts differently xx

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Hi sindy, I’m an Early Years Teacher & have been told not to go to work because of infection risks, quite relieved to be honest that the decision was made for me!
Good Luck, I had my picc line put in today, 1st chemo tomorrow :pray:xx

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How did you get on Niki ?

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Aww thank you for asking, had a rubbish couple of days, very tired & achey, feel like I’m on a boat or something, but seem to be turning a corner, yesterday was my last day of steroids so hoping I can get some proper sleep soon, the nurses at the unit were all so wonderful & supportive. Hope you’re doing ok too, it’s a crazy rollercoaster isn’t it? Xx

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Fingers crossed for some sleep tonight :crossed_fingers:

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Ladies you may want to join the September starters thread too. I think due to the forum being out of commission for a couple of weeks this thread has had surprisingly few contributors .

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