Great news @songbird1 , I hope the rest of RT goes as smoothly
@anne3 hope you get good news with your scan Loving the idea of a healthy positive New Year indeed
All the best and take care everyone xxx
Great news @songbird1 , I hope the rest of RT goes as smoothly
@anne3 hope you get good news with your scan Loving the idea of a healthy positive New Year indeed
All the best and take care everyone xxx
Had my last chemo/cycle 6 (2 times delayed) yesterday. Rang the bell, made me quite teary. Hope everyone else is at this stage or nearly there too.
Lap 1 done. Hopefully never have to go through that again.
Well done @sez Like you say: lap 1 done a bit of rest and then onto the next lapā¦ and bit by bit youāll get there What comes next?
Sending Happy New Year to all xxx
Well 2024 can do one but I have no doubt 2025 will come with significant challenges, PTSD or just TSD because the post part may be a long time coming.
Just a wee heads up to anyone moving from docetaxil & carboplatin to just radio and Phesgo. I had a 9hr A&E visit on Monday night due to crushing heart, significant, discomfort. I think itās probably down to still having Phesgo but no steroids, antihistamines or antisickness and starting radiotherapy. My visit was inconclusive as pains had passed by the time I was seen (had been going on for 7hrs), I hope you all transition red flag free and Iām sure my body was just adjusting but getting home at 4am to then do 2hr round trip in morning for RT wasnāt great. They did say my neutrophilās are down at 1, which explains why I feel lousy but no filgrastim injections to boost my t-cells this round. Hoping to build my strength back up but itās not going to be a quick process.
Sending new year healing vibes to you all for this year xx
Oh no, that doesnāt sound good. I had my first Herceptin injection yesterday, my fourth but the first on its own, and so far I feel absolutely fine. My first radiotherapy is due tomorrow morning. I have been trying to hold my breath at times, but donāt think I have practiced enough . Back on letrozole as well, so expecting some reaction from that.
@bigpickle Iām sure your breath holding will be fine. Iām right side mastectomy but still had to breath hold. They did a few practice runs and it gave me an idea of what to expect. So far Iāve found RT straight forward but itās early days (4 rounds in, 11 to go) and Iām aware of possible side affects but as always, prepare (as much as I can) for the worst and hope for the best.
How many rounds are you getting?
Best wishes for a smooth RT journey
@songbird1 I am having 9 sessions on consecutive days, barring weekends of course. Will be finished on 14 January. I have plenty of aveeno moisturiser and have heard that it is good to drink plenty of water . My poor bladder!
@bigpickle i bought cream and lotion that a friend had used successfully and have loads of moogoo but they told me i could only use the cream they gave me, zerobase, which has been great so far.
Iāll be finished on 16th. Hereās to being finished that leg of the journey soon!
@songbird1 , @bigpickle so glad youāre already on the next step of this ladder were climbing, hurray
@songbird1 it does seem like a lot and honestly i can imagine you could totally do withoutā¦ a huge hug
Iām still a bit away from RTā¦ my surgery is booked for the 29th, so a wee wait still and only after that, no clue how long, will i be having RT. Dreading the recovery and not the surgery per say, but im sure Iāll be emotional on the dayā¦ oh well ā¦ the sooner done the sooner it will be over withā¦ obe thing at a time i keep telling myselfā¦
Hereās to the best 2025 we can muster with health and why not ā¦ kicking *****
Hope make some giggleā¦ take care lovely lot xx
Well a new year is upon us, letās hope we can all get though these next steps without too many issues. Best wishes to you all xx
My last Docetaxal and carboplatin today. Just need this done. My nails have started peeling was hoping to get away with that, itās crazy as not had chemo for 5 weeks so thought side effects would have stopped. Was hard to come back today as I have been mentally feeling good.
Seeing surgeon on 14th. To book surgery, wig appointment 30th need to start feeling normal again if thatās even possible xx
@lilly123 yay for last chemo today!
My nails have been a tragedy for the last month and get worse every day. They are just hanging on but itās so painful if I accidentally tap them. I find the easiest tasks impossible atm, I hope yours donāt get as bad.
People are talking about āthrive in 25ā but with my neutrophils so low, thriving is perhaps a bit over ambitious but hereās hoping itās not as bad as last year!
All the best xx
@songbird1 and @lilly123 i feel your pain, my nails look awful and I caught one the other day which provided some very blue language as it is now hanging on just about!!
Well done for your last chemo mine is next Tuesday all being well and seeing my surgeon on the 20th. Hoping for surgery mid February x
@galdiolus the nail business is stomach churning. My chemo dept said theyād never seen nails so bad (looked like theyād been trapped in a car door).
Good luck with your last round next week xx
Ouch that sounds awful. I seem to have got away with it regarding my nails. Strange how we get different side effects.
I am also well into my radiotherapy. Had my fifth of nine today. Only issue is the hospital is always running lateā¦ !
Iām so happy to hear the RT is going well @songbird1 and @bigpickle , Itās really uplifting seeing how well you are doing, although @songbird1 it definitely looks painful, hope the protections help, fingers crossed with a hug xx
To everyone, wishing you that the side effects donāt linger and that youāre able to m9ve onto the next step, whatever that might look like. Take care with a hug xx
Ah ouch you must be suffering! My nail beds are sensitive and tingling from neuropathy but my thumb nail is peeling from the bottom up Iām scared to touch it!
Iām 8 days post my final chemo and it has quite frankly put me on my arse! Having a 6 week break was not a good idea! Anyway itās done and surgery booked for 29th Iām hoping lymph nodes all clear and then itās targeted until August!
Sadly my mother in-law was diagnosed on Tuesday. She had a routine mammogram and they found a small 5mm lump ductal carcinoma NST. From what I understand she is having surgery and lymph nodes checked and thatās all. Fortunately none of the dreadful chemo. they caught it early enough to prevent it progressing.
I am so looking forward to the spring now, feeling the warm sun on my face and having some normality back in my life. Im sure youāre all feeling that too? Iām not sure I will ever be the same again, my body has aged dramatically had anyone else noticed loss of muscle mass and skin elasticity? Iām 48 so I guess it was coming anyway it just happened very quickly!
Wishing you all well on your radiotherapy and hoping itās as comfortable as it can be for you xxx
Yeiks and outch @lilly123 ā¦ i havenāt had much nail issues just a thumb thay has a darker area developing, but im keeping an eye on it just in caseā¦
Iām also having surgery on the 29th, so Iāll definitely be thinking of you . Iām dreading more the recovery than anything elseā¦
I did notice thay every movement makes my legs hurt, mainly calfs but guessing itās because Iāve never been very active but much less nowā¦
Definitely looking forward to spring, my favorite time of year That definitely made me smile so thank you xx
Sorry to hear about your mother-in-law and fingers crossed sheāll be spared the rollercoaster weāve just been on
Take care xx
Di
@lilly123 sorry to hear about your mother in law, fingers crossed her treatment goes well.
Good luck with your surgery, mine was back in May which seems a lifetime ago.
Some days I have felt about 90, shuffling about and becoming breathless. But it has been 4 weeks since my last chemo, and I feel so much stronger now. My pace has picked up on the dog walks and I donāt get breathless anymore. Radiotherapy has been a breeze so far.
So looking forward to better weather and longer days. Bulbs coming up in the garden and our camellia is full of buds. Better days are round the corner.
Lots of love xx