@sunshine-smile oh I know, I’ll be back to the chemo unit for the next year for my targeted therapies but I think knowing I’m not going in for chemo will help ease the dread I feel going in just now! Not dread so much, as they’re all amazing but you know what I mean. I want to mark the end of chemo, as for me chemo was the scariest part and the worst part in my mind. So dinner and cake with my family is the way I’ll do that.
I’m like you too, I have surgery then radiotherapy after the chemo (as well as targeted as mentioned) so even though it won’t be “over” the chemo feels a massive milestone to celebrate being doing with.
Can’t wait to see all upcoming photos of (maybe) Riley!
Thank you all so much for your lovely comments. I know I don’t post much so I really appreciate you still being there for me. Sometimes this journey is so lonely. Of course I would never wish it on anyone but it helps to have others that are going through it too.
@louise15 - Thank you so much for reassurance. I hope it’s true - for both our us! - that the first one is the worst. Some days I seem to lose the ability to take one day at a time and I just feel so overwhelmed by it all. Everything you say rings so true to me…I just miss living my life but I guess that’s just how it’s going to be for now.
I am trying really hard not to get over excited, but I know you ladies will understand - I have found a new hair on my head! It is about 3mm long, near the front so I can see it in the mirror. I don’t know what is going on elsewhere on my head, though my daughter thought she could see signs of life last week, and my original shaved (maybe 30% coverage left) hair is definitely looking longer and has more colour as a result. I am hopeful it may not fall out again on paclitaxel and that I might have a more “normal” looking spiky look by the new year , and certainly by the time I have to return to work.
I also have stubble appearing on my legs amongst the longer bits that I hadn’t shaved in the hope I’d not need to . So every up has a down side .
Just thought I’d share as it’s brightened up my day. Hope you all have a good week xx
Ooof @bramble1 this is magnificent news!!
If my bloods are okay today I’ll have my 3rd weekly Paclitaxel tomorrow - and whilst I haven’t noticed any new hair growth since finishing EC, I haven’t clocked any more hair loss either. So maybe there’s hope for all of us x
I’m glad to say that the hospital has properly sorted me out!
Breathless, tachycardia and general crappiness & fatigue is because I’m anaemic. My GP is sending a prescription to the pharmacy as I speak. The GP wants to do further tests to see if it’s an effect of chemo or whether there’s some other reason that I’m not absorbing iron particularly well. I’m veggie though, so I suspect that’s not helping
My EC dose was reduced to 75%. In previous cycles today and tomorrow have made me very unwell, but today I just feel rough and hungover.
Hopefully, when the iron tablets start kicking in, I may feel like I’ve recovered from a cycle, before having the next one!
I feel so far behind the rest of you! My first EC was 28th August, then my third one was delayed when I got COVID.
I’ve just had my 3rd, one more EC to go and then onto Docetaxel & PHESGO for four more cycles. Sigh.
Hello all So much has been going on since my last post…everyone moving on to new chemo drugs, a new puppy and even hair growth!
I hope those who’ve been having a rough time are coming out the other side
I start Paclitaxel tomorrow and I had an extra week of recovery between my last EC and first Paclitaxel. I felt rough as arseholes for most of the 2 weeks after my last EC, but perked up and felt relatively human for my extra week. I was very tired, but that’s probably down to me doing lots of things to make the most of my bonus chemo-free time.
I had a lovely weekend away with my family at a holiday village in the New Forest where I got to walk an alpaca! And went on lots of lovely walks with my pug, my ‘kids’ did some archery and I just generally enjoyed not being stuck at home.
I’m not looking forward to getting back on the chemo train, but it’s only for 12 more weeks and I’m chuffed that I got through the 4 cycles of EC without punching someone in the face!! I’ve been assured by my oncologist that Paclitaxel will be an easier ride….so fingers crossed that he isn’t a lying bastard
Hi @toad Sounds like you’ve made the most of your extra week in between EC and Paclitaxel. Onwards and upwards now, I had my second weekly Paclitaxel yesterday, hence the very early morning reply, steroids insomnia has kicked in .
I have tolerated Paclitaxel relatively well up to now so I am hoping the bubble won’t burst. Last week I had PX and Herceptin injection, I worked a full day on the Tuesday and Wednesday, felt rough on the Thursday and Friday but picked up for the weekend and went out to meet some friends.
I came out with anti sickness and 2 Steroids, no injections . That really does suggest it must be gentler on your system as I used to come out with 12 Steroids, anti sickness and Five injections.
Hope it all goes well
It’s great news that they’ve been able to able to identify what is wrong! What a relief for you. We have similar treatment plans I think…except I only had three x EC. I’m now a week on from my first Docetaxel and Phesgo (three more to go).
This is alll basically to say that I’m not too dar in front of you! I think it feels neverending nomatter where we are on this journey! One day at a time x
Hi @bramble1, just wanted to say congrats on the new hair. I think I have a bit of new growth too, but as I was going grey its a bit difficult to tell. Here’s a tip you might not know of, if you invest in a silk pillowcase it can really help with skin and more importantly for us chemo people, hair. I have been using silk pillowcases for a couple of years now and find them lovely. Best wishes xx
, and certainly by the time I have to return to work.
amongst the longer bits that I hadn’t shaved in the hope I’d not need to 
. So every up has a down side 
So much has been going on since my last post…everyone moving on to new chemo drugs, a new puppy and even hair growth!
