Hi ladies I mentioned the bone pain to my dr who prescribed codeine, however when I spoke with my consultant on Friday he has changed it for the one shot now 24hr after my chemo (my next one is wed) might be worth asking those who are really struggling.
He did advise I will probably still get pain for first couple of days but that should be that and take the pain meds. Xx
Hi all, just catching up on messages, sorry to hear about peopleās skin sensitivity issues, and reactions to injections. Iāve also had to have a change of dressing on my PICC because my skin pretty much comes off every time they redress it. But itās getting much better now with new dressings. Anyway, just wanted to say hi and hope youāre all doing as well as you can.
Can I ask what exercise I should ideally be doing? I feel a huge pressure to be keeping in shape and eating the perfect diet during treatment - does anyone else feel this pressure? But, Iām not exactly feeling like i want to be lifting weights and pushing my body right now, nor am I motivated. ! And sometimes I want to eat crisps ! Is that allowed? LOL. I walk my dog most days and Iām running around after kids so Iām very active and a good weight etc. But should I be doing resistance training 2 times a week and eating only green veg?!?! Haha
It really did take my breath away! I have never felt pain like it and nothing I could do would help. It has eased a lot now but my goodness I hope it doesnāt happen again. I do wonder if it relates to the fact I didnāt drink as much yesterday as normal as I was in the hospital for most of the day.
I know others have mentioned this on the first injections but didnāt have the same pain since so maybe itās just the shock to the system and will be better for future ones.
Iām on filgrastim injections and although the bone pain wasnāt as bad as youāve described I had to take pain relief the first time as I could really feel it in the bottom of my spine and was worst when sat down. But Iāve not had any pain since that first time and have been on them a few weeks now. Hope this is reassuring .
Iām glad it went ok but sorry youāve been hit with fatigue. The second treatment has been worse for me too. Fatigue, nausea, feeling quite down and anxious about everything. I have started to pick up the last couple of days just in time for number 3 this coming Friday if my bloods are ok. Iāll be half way though so thatās a positive and iām still clinging on to my hair.
Hope you are able to rest and recharge a bit. Itās so tempting to do more when we feel ok though isnāt it? x
Taking the injections after my first treatment the bone pain was horrendous. I had pain in my chest, back and pelvis. It felt like I was being crushed and came on in waves like labour pains. Thankfully I didnāt experience anything like that pain while doing the injections after treatment number 2. It really does take your breathe away. Hope you are ok now?
Hi @daffodil10 crisps and treats are most definitely allowed during chemo. If you are lucky enough to taste them 
Main āNosā are avoid: probiotics; food that goes off quickly; blue cheeses due to the bacteria; avoid open access salad bars; definitely not GRAPEFRUIT and SEVILLE Oranges as these interfere with chemo. Dont leave food in the fridge for days on endā¦normally OK, but during chemo you have to be more aware of bacteria getting into foods. So I eat food same day as cooked mainly. Never keep rice/eggs more than a day. If I cant use it, I freeze it. Or bin it.
Theres a thread on this Forumā¦ Cancer Made Me Eat. People have found useful.
My Nurses said, we dont care what you eat so long as you eat.
I increased my Protein (at least doubled it) and my carbs and green veg. So my body had enough energy and nutrients to cope with chemo. Which savages us. I drank loads (2-3 ltrs a day) to wash out chemo in the first week. Some say at least the first 72 hours.
Re exercisesā¦. Jurys out on my sideā¦.Iāve heard many varying advice on this one. So its hugely confusing.
If you do too much it can knock you back and result in extreme fatigue. So you have to listen to your body. It is being pummelled.
Would you exercise during flu?
Its thought that exercise is good for bone strength etc, It is, absolutely, but during chemo (?), Im not so sure it makes a huge difference. After chemo you have years to help your body.
Going for steady walks are safer, and good for our mental health. But some ladies have gone too far and ended up crashing during chemo.
I needed to rest a lot. If I did too much I was left with crippling fatigue. I was on EC then Paclitaxel. I had to keep moving gently. I had to really listen to my body and had to do jobs in bite sized mini portions. If I felt my body going wobbly, I stopped straight away, rested, slept, until I felt better.
MacMillan have great advice about fatigue. Chemo creates fatigue, its poisoning our bodies. So our body struggles. If its struggling then thats not the best time to hit the gym.
But, some ladies are not affected much by chemo and have been able to go to the gym, go jogging. Thats great if your body can do it.
Everyone is different. Our bodies react differently to chemo. So we really have to zone into OUR bodies. Not anyone elses.
If you want to do something and feel your body can cope, do it. If you get tired, stop.
We all want to be fit fleas again. We all get frustrated if we have had to slow down. But we do need to look after ourselves.
Ive finished chemo 2weeks ago. It can take weeks to get over chemo. The cumulative impact gradually got harder over the last month for me, but this is the same for many of us. I literally had to rest all the time. If Id have gone to the gym I would have seriously made my fatigue/health worse.
Im starting to get more energy. Ive been out more. But, if I start to struggle I still need to stop.
Hope that helps a little. 