Hi, had BC in 2002, grade 1 17mm, tiny little thing, ER+, had lumpectomy, radiotherapy & tamoxifen for 5 years. Got my 10 year discharge in 2012. That’s it, I thought. WRONG! After a routine mammogram, just been diagnosed with the bastard again, this time in BOTH breasts! Looks like they’re both small lumps of 15mm each, no lymph node involvement according to ultrasound. Consultant sounds concerned and is “throwing everything at it” (his words) because apparently having bilateral BC is quite rare, so CT scan, bone scan, MRI etc. I’ve been absolutely numb & spaced out since diagnosis, don’t know what to think/hope for… I feel cheated. All I can think is how could it happen after all this time! Anyone been through anything similar? Thanks for listening
Hi Clawsie
Sorry that you havent had a response yet, hopefully someone will be along soon to share their experience with you. It may be, because this is rare, that people are unsure what to share with you.
Have you thought about talking with one of our experts on our free Helpline, 0808 800 6000?
Best wishes
Anna
Digital Community Officer
Hi Clawsie, I hadn’t seen your post until Shi from another thread pointed it out to me, bless her!
I had BC in 2002, er+, lumpectomy and rads, zoladex, tamoxifen, letrozole. Like you I was fine and thought I’d sent it packing for good! Then in May 2017 it came back, only on one side in my case but with lymph nodes.
I know how you feel, it’s such a horrible shock after all that time. It takes time to get used to the idea, but trust me, when you get the scans done and work out a treatment plan it will get easier, because you’ll know what you are dealing with and you will be doing something concrete to fight it.
It’s so tough to have to face it for a second time. But you did it once and you’ll find you are stronger because of that. You won’t find many of us on here who’ve had a recurrence after such a long time. But once you get your treatment plan sorted, you’ll find plenty of folks who have been through or are going through the same treatments, and I know they have been a MASSIVE support to me.
Hang on in there, take it a day at a time, it’s not easy but it’s not always going to be as bad as it feels right now. Let us know how it goes, and meanwhile I’m sending you lots of hugs and love.??
Thank you so much for your replies. Feeling a bit more hopeful now, spoke with other patients at & they all regard the surgeon/team as really good and efficient, so that’s reassuring. I’m having a bone scan next Monday, hoping there’s no secondaries lurking
Good luck with the scan, Clawsie! Waiting for the results is one of the worst things of all. I’m keeping my fingers crossed for you, let us know how it goes! ???
Hi there…I think I’m about a week behind you…bloody cak isn’t it? When do you get your bone scan results? Having mine on Monday so fingers crossed for both of us ?
Debbie x
Clawsie, best of luck for your results tomorrow. I hope the news is not too bad, but at least you’ll know what you are dealing with and can start to get your head around it. The waiting is the worst! Just remember we’re here for you come what may. Big hugs.???
Good luck with your results today ???fingers crossed for you x