been told to expect the worse & i have cancer but awaiting biopsy resulrs

So i found the lump 2 wks ago. i went to my doctor who said she thinks its nothing but sent me to the breast unit anyway. well i went wednesday, expecting it would be ultrasound (im 32) & alls fine off you go. how wrong was i. i then had a mammogram. then saw a consultant who told me they can see the mass that i found & also a shadow under my arm. he basically said we are very extremely concerned about this. i asked if he thought if it was cancer & the response was yes vut i hope i am wrong. i was then taken for biopsys (needle & core). I spoke to the lady doing these & she actually performed the ultrasound earlier that day. i asked if she thinks i have cancer. she said yes. she said as i have to wait until monday for the results etc i should prepare myself over the weekend for the worse. so i lnow i have it but keep thinking theres still a chance theyve got it wrong. i am so scared but doesnt feel like its really happening. so im on the waiting game til monday. im sure i have it, surely they wouldbt have gone as far as they did with their words on wednesday?! X

Dear helenstevo,

Welcome to the forum.  I’m sorry to hear you are going through such a tough time.  I’m sure other members will soon notice your post and come along to offer some support.

You could also phone our Helpline for information and emotional support.  They are open from 9-5 on weekdays and 10-2 on Saturdays.  The number is 0808 800 6000

Very best wishes

Janet

BCC Moderator

Hiya, what a shock that must have been - I feel for you so much!

 

I too am young (40) and like you and so many of us, I really felt that it would not be cancer - but unlike you, when I was ultrasounded and mammogrammed  I was told that it didn’t look cancerous.  So…one week later (last week) I was so surprised and startled to be told that my lump is  invasive cancer. 

 

The first week since diagnosis has been really, really tough -a real emotional rollercoaster.   I’ve felt a bit detached from reality, but I have zoned in on the things that I can do and the questions that I think will help me understand my new situation and asked my breast care nurse (or if not there anybody else in her team).  Have you got a bc nurse yet?  When they’ve not been available, I have found the bcc helpline( in the post below) invaluable I really have.  No one is better at understanding or helping you with questions about your situation at the moment than those people or ladies like ourselves who have had a diagnosis.  I urge you to give them a ring today or tomorrow morning if possible. 

 

Talking and occasionally crying has really helped me over the past week and my emotions have settled a bit more.  Everyone on here seems to find waiting and the unknown the most anxious times.

You’re not alone - we’re here!

 

Please do get back in contact,

Gentle hugs,

P

 

 

 

 

 

 

Thank you. bless you, i hope all goes well for us both! Ive not had a definite yes as yet but been told i should def expect i have it. So this weekends going to be a long one! Keep in touch xx

Thank you for your replies. its scary to see how many people this evil disease affects! I am dreading the treatment stage as i feel i am a right wimp. i think i hace read that if offered, if you just have lump removed & radiation if it ever returns & have to have mx tou cabt have them reconstructed after having rad. not sure if this is correct info? If it is i feel id orefer to have both removed with reconstruction to give peace of mind for the future. i would be paranoid in case it rerurns but ice been told it still can with a mx too!! Not sure nhs would remove a “good” breast though. sorry for the ramble! I am sat here googling & over thinking all sorts. in a way i cant wait to just know on monday! Hugs to you all xxx

That is bad that you are left in limbo. I must say I found my lump on Saturday - went to the GP on Tues, she said probably nothing but referred me for a test. She said two week waiting list on NHS and I didn’t want that hanging over me so I paid to go private - got the appointment the next day Weds. Got ultra sound scan doc told me nothing just tissue. Got needle biopsy and the cells were cancerous. The consutant told me there and then. That was on Weds. The same consultant also works in an NHS hosiptal so he told me to go on Thurs for a core biopsy mamogram and blood tests and booked me for an MRI on Tues coming. I also have an appointment to see him on Thurs for treatment plan. Everything has moved so fast - but still it feels like ages. So, I can sympathise with you that you have to wait for even a diagnosis. Luckily, I had a scan of my armpit and they say there is no nodes effected. The consultant said I have caught it very early and that’s a good sign.  I am hoping it will be cured asap by maybe surgery and some other treatment besides chemo. I am 35 and a single mum of a 3 year old and a 5 year old so I HAVE to get better. 

 

I hope you get the results as soon as poss. xxx

Thank you so much for all your replies, info & support. seems we are all going through the mill! I asked my doctor if i went private would things be done quicker but got told no. i also am a single parent to an 8yr old son. so i have to get better! I am antibiotics tosay as i have a chest infection, the doctor has also given me some light sleeping tablets. my phone has not stopped from concerned friends & family, i feel very loved & supported & for that i am very lucky. you ladies also are great. strong women! Just a couple more days to get through until monday! As soon as i am better i will be campaigning that women of all ages should be screened! Love & hugs to you all xxxx

Hi Helen… and everyone else…

It has been really good to hear everyone’s experiences… I too was diagnosed on Friday and I have to say Helen the waiting was truly the worst time for me… as scary as it was to hear the result I felt able to let the tense unknown thoughts go and now feel more positive … I am sure I will sway in and out of lots of emotions. But once friday was over I felt relieved… the hardest thing for me has been telling family and close friends… its almost like saying it out loud means its real when it still feels a bit like it’s not really happening.

I will be thinking of you tomorrow x

Thinking of all of you lovely ladies. The waiting really is the worst part. Take it a day, an hour, a step at a time. Don’t google. This forum really is the best place for answers, reassurance, information, guidance…everything! Everyone has nothing but love and support for you.
I’m a little further down the line, lump found 5 weeks ago and diagnosed 2 weeks ago. With an array of biopsies, mammograms, ultrasound and MRI to keep me entertained in the meantime! (By the way if you want to know the details on what happens at a breast mri…pm me…you will never look at evening primrose oil capsules in the same way again…!!!)
Now I’m booked in for WLE and SN on 23rd. And can’t wait, it’s the next step to beating this. I was adamant I wanted a full mastectomy to stop a life time of worry but do you know what I came to thinking that I could have both removed and still worry, actually they could amputate me from the neck down and I would still worry! So I’m going for the WLE, hopefully will still have a normalish looking boob…if you don’t look to closely and should get back on my feet and have less complications afterwards.
If you’re pre-menopausal it’s highly likely you’ll get both chemo and rads.
Its tough, you’ll be told scary info from the docs, you’ll have to make difficult decisions, you might have to have difficult conversations with your children, you’ll feel alone even when in a crowded room…I might not know you, any of you, but I do know you’ll find some incredible inner strength from somewhere and you’ll find your own way to live with this and you’ll blooming well fight this with every ounce of your body!
You are all amazing :slight_smile:

I have pm’d you joanne. really sorry as im.so new to this i dont understand the abbreviations yet, whats WLE & SN? one more sleep for me. i feel nervous & sick today. i keep over thinking & fear being told its spread so bad all they can do is stop it & try & prolong my life but friends & family tell me not to be silly. think im nervous as i dont know what i expect to happen at this appointment. will it be just results from the ultrasound, mammogram & 3 biopsys & then tell me what treatment or will further tests be done? Will they do an mri? Its just the unknown horrible feeling!

You ladies are an anspiration & are such a help. thank you to you all & wishing you all the very best & a speedy recovery xxx

Hi helestevo

I have found an old thread which has a list of abbreviations used on the forum.  Hope this might help:

forum.breastcancercare.org.uk/t5/Glossary-useful-words-and-terms/Abbreviations-and-acronyms-used-on-the-forum/td-p/434662/page/3

forum.breastcancercare.org.uk/t5/Glossary-useful-words-and-terms/List-of-useful-words-and-terms/m-p/434621#U434621

Kind regards

Janet

BCC Moderator

Thank you.ill take a peek!x

Thank you. I hope your ok. its all very scary! Well not too long now. my appointment tomorrow is at 2.10pm. ive just been sick with nerves. im fearing secondary. i fear my boy at 8 will lose me but think im torturing myself! Ive been struggling with tiredness & pain in chest & struggling with breath for sometime now, i hope its not a sign its in my lungs too. im off to bed soon with sleeping tablet from.my doctor as im pacing & cant keep still! I wish you so much luck. keep me posted xx

Ps was the SNLB bad? Not sure what happens in one. im still getting over the needle & 2 core biopsys i had (such a wimp)!

Poemsgalore ive just noticed your a stones throw away from.me in long eaton. im in spondon x

Yes its confirmed. I have cancer. im .having mri scan wednesday. Operation to check lymph nodes. Got to have chemo to shrink lump before can have surgery. Then radiotherapy then hormone treatment then herceptin as i have the her-2 gene too…not looking good x devastated

Hi poemsgalore im having my treatment at derby. when i went for my diagnosis on monday frim my mammogram biopsys & ultrasound my mum passed out, so although i sort of took bits in im not entirely sure whats going off due to being upset & worried about my mum. I had my mri on wednesday, im not sure wgat its for? Just a scan of breasts to see if any smaller cancer cells? Or can they see if lymph nodes or perhaps other body parts affected? Im going for results today but as i dont know what i had it for im unsure what to expect! I suffer from panic attacks so i feel i need to know EXACTLY what will happen to me at each appointment, they didnt tell me at my mri id have a canular put in arm i had to find out before off here so at least i knew what to expect. the plan of action of mine should nothing change it from mri is…a op on lymph nodes, biopsy, not sure entirely what happens at this apart from blue dye & geberal anaesthetic. then have metal clips put in round lump not sure if done whilst in op or after or even how its done. then start chemo. the clips are to see if its shrunk with chemo. then lumpectomy then 5wks if daily radiotherapy. i have tested her + & have to take herceptin for a yr & hormone drugs for 5yrs. ive heard you can request chemo at home? This would be a great help as i have a son on my own & alsi i am petrified of hospitals. so at 12 today are mri resulrs, whatever they looked at?! Ive suffered for a couple of yrs with breathlessness & pain in lungs especially when lying down. had xray couple of yrs ago that showed nothing. i always feel tired. i am so scared it has spread to my lungs. does anybody know at which point in treatment i will know if itscspread or not please? Thank you

helen xx

Thank you for your reply. i had my mri resulrs back & no further cancer has been found so i have just the 1 lump in breast. i had the clips put in today…ouch!!! They just dropped it on me so panic set in. very sore now. I have my pre op next wednesday, not sure what happens then!! tried to explain my anxiety problems but they never explained start to finish what will happen at pre op. Another appointment on 28th with surgeon & chemo dr i think then op on 29th. results of biopsy op on 7th. they said chemo cant start until the op scar has healed but it doesnt take long. so im assuming itll be second week in november. dreading how bad i may be with chemo as i have my son alone. dreading my hair falling out which i think can be after first lot. think i had better start looking for a wig asap, been told theres a place in notts but dont know name. i want human hair. i doubt the nhs will pay? Sorry lots of questions x

Ps does the chemo go into the vein on the hand or wrist or arm even? They think i should be ok with lungs as ive had symptoms for yrs now he said id be more poorly. so he thinks!!x