Biopsy results - more questions than ever

Hi, for context I am 23, loads of breast cancer history in my family and I’ve had a growing lump for two years.

It took a year for me to finally have a biopsy, after many different doctors either telling me that I had a lump that definitely needed to be removed, or that there was no lump even there. Madness!

My symptoms have been bloody nipple discharge, a lump and I am in consistent pain all in my left breast every day of the month and have been for months.

After a year of being referred so many times and feeling like I was being made out to sound insane and naive, they finally did a biopsy. The results came back benign fibroadenoma (they sent a letter that I didn’t receive) and they discharged me.

However, they didn’t use the ultrasound to scan for the nipple discharge or the rest of my breast they only scanned the lump. So I have no answers to what is causing that, and their attitude was if it’s bothering me that much to just get re-referred. And they have said they won’t remove the lump as it’s not big enough, even though I am in absolute agony with it.

Where do I even go from here? :frowning:

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Hi starbornsea

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Hello starbornsea

Thanks for posting.

It sounds a difficult time as you continue to be in pain and don’t feel you have the answers you need.

You explain having a fibroadenoma confirmed following a biopsy, but do not have an explanation as to what is causing the pain and nipple discharge you are still experiencing.

It sounds as if it would be helpful to talk this through with your GP and the treatment team at the clinic you attended for assessment especially as you are still describing significant pain in your breast. They can assess you and may be able to advise you on pain relief. The hospital can also provide you with copies of letters sent to your GP.

You mention that you have a family history of breast cancer however most breast cancers are not inherited. There are only a small number of people who will be at a greater risk of developing breast cancer because they have a significant family history. If you’re concerned that your family history is significant it may help to also talk to your GP about this.

In this situation a second opinion is often helpful although you explain having seen many different doctors.

If you are unable to resolve concerns about care or communication, you can raise this. The process for this varies depending on where you live in the UK.

England: You can contact the Patient Advice and Liaison Service (PALS). You can find your nearest PALS office on the NHS website.

Wales: If you’re unable to resolve a concern directly, you can contact your local health board.

The Welsh government provide guidance to people living in Wales on resolving concerns or issues with NHS services. This is called NHS Wales complaints and concerns: Putting things right

Scotland: The Patient Advice and Support Service can provide advice and support with raising a concern. You can register a concern or complain about your care by contacting the feedback and complaints team at your local NHS health board.

N. Ireland: The Northern Ireland Direct website provides information on the standards of care which you can expect from NHS services in Northern Ireland. You can also seek advice from the Patient and Client Council They can listen to your concerns and are able to provide information, advice and help if you want to make a complaint.

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, If you have hearing or speech difficulties prefix our number with 18001 and the call will go through Relay UK. Our helpline has access to telephone interpreters if language translation is required.

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Best wishes

Jane

Breast Care Nurse

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As we are unable to monitor for further replies, this thread will now be closed. If you have any additional questions or would like to provide feedback, please start a new thread, call our helpline, email us or request a call back.