Thank you. I did find out that MDT meetings are on wednesdays and thursdays and that only results ready by monday 5pm are discussed, so at best it’ll be a whole other week to wait. I’m really struggling at work, not eating or sleeping. I know it’ll be bad news but I need the facts to stop me speculating. I know everyone has to wait but everything so far has been longer than I was told. Hope you are well. Thanks again.
Ah sorry to hear that. I can only suggest maybe try calling tomorrow to ask whether you were discussed at MDT today or will it be tomorrow? They can call you on Friday? The waiting is the worst and I understand you just need to know. They will only tell you the type of cancer of it is then you will need further ultrasound to check the lymph nodes more than likely and scans. Let’s try and stay positive though and just try to take your mind off it for now. I know it’s hard as my diagnosis in January was delayed due to staff issues after Christmas Try calling them again and express that you are struggling and need to know ASAP xx
I’m thinking of you and hope you hear soon.
Thank you. I will call them on monday as they will know by then if its made the next MDT meeting. I really want to know before xmas so i can focus on that. I expect i wont hear until after xmas now.
I would think if it’s on next week’s MDT meeting they would call you following the meeting hopefully. I would express to them your circumstances and you need to know before Christmas. I am sure they wouldn’t leave you until the New year. I really hope you get the news soon . Try and focus on other things to keep your mind occupied. Sending you love and hope xx
I called them today and left voicemail saying I wondered if my results were ready. They called back and said I could come on Monday. Hoping it’s good news.
That’s good to hear! I am glad you’ll hear. I hope it’s good news for you Please keep me posted and stay strong xx
Glad you are finally getting results. Hoping that you get good news X x
Thank you. I hope all is good for you too.
Great news I hope you get all you need on Monday.
So I got my results and looks like I’ll be here a while longer. Fortunately it’s not the worst diagnosis. Grade 2 Invasive ductal, hormone receptor positive. Good luck to everyone waiting. Thanks for all of the advice and support so far! Youve all been amazingly kind and helpful.
So pleased you have the results, obviously not what you want to hear but the MDT will have a plan. Make notes if you can, there will be a lot to take in.
Hi
I was diagnosed grade 2, hormone positive invasive ductal in September. I’ve since had a lumpectomy and slnb in October then a full axillary clearance in November, going back on Wednesday for those results and hopefully a treatment plan. Have they told you what your next steps are going to be yet?
Keep in touch and let us know how your getting on
Sending hugs
Jackie xx
Hi Jackie. Thanks for your reply. They said after lumpectomy on January 23rd i will wait 4 weeks or so for results of sentinel node biopsy then start radiotherapy and anti hormone drugs. Not sure if I need chemo until after lumpectomy results. Glad to hear your treatment is going well. X
It sounds very much like mine. My slnb showed it in both the nodes that were removed and why I had to then have a full clearance. I was told radiotherapy & hormone tablets originally but now not sure of chemo because the lymph nodes were positive so waiting now.
Jackie
Very similar yes. I hope you get to avoid chemo. I wonder if my sn biopsy will be clear? The ultrasound didnt pick anything up in nodes. Going to concentrate on christmas and my children, then worry about it all in january. Hope you get good news soon. X
Have a lovely Christmas
Xx
Be thinking of you on Wednesday when you get your treatment plan.
Hi bluesatsuma,
Sorry to hear you have been diagnosed with BC, not the news you were hoping, but like you say, not the worst diagnosis either. Its similar to mine only I have a mix of invasive ductal and invasive lobular. I had my lumectomy last week and it wasnt too bad at all. Also hoping to avoid chemo but will fing out next week when I get results from surgery.
I hope your mind has settled a bit now that you have some answers. I know I stopped googling after i was diagnosed and just used this forum along with the info the doctor gave me.
Enjoy your christmas with your family and hopefully you will breeze through the treatment in 2024. And know that you are not alone, there is a good many of us here going through it all with you. Xxx
Hi
I hope you are recovering well from your surgery. Don’t forget to do the exercises daily, they really help with movement.
Once you have healed you may want to treat your skin and improve your scarring. www.pennybrohn.org.uk a charity based in Bristol but offer U.K. wide help via zoom, offer a scar therapy course which I found very beneficial.
Some people use Bio oil, I did and my scar looks really good. The radiotherapy team were really impressed with my scar when I went for planning.
www.cancerhaircare.com recommends a similar product for much less money Called Ren Gen Oil Re-Gen Oil 125ml | Health & Beauty | Skincare - B&M
Amazon, primark and many other suppliers. I know the Penny Brohn team recommend Rosehip oil as they feel it’s more ‘natural’. It’s what works for you.
Wishing you well in your recovery and your future treatment plan.