I never knew they came in a tab form!
I’ve just had my first infusion (every 6 m for 3yrs) & feel dreadful !
I’ve just taken a lorazepam to ease the pain (I initially used left over post surgery meds but started feeling sick from them)
My onco said it’s like having a Covid jab
I beg to differ
It’s like full on flu
I’m hoping tomorrow is a better day 
I’m sorry you are feeling so rough after your infusion. I normally feel flu like for. 3/5 days. Struggle to do much at all. Luckily it’s only every 6 months for 3 years. I’ve done 2 so far.
Hope you feel better soon.
Sorry, Linda! I missed your reply the other day! Thanks very much for clarifying this for me. So it’s about a 90 mins. wait before that first cup of coffee. 
I may go for my walk during that time and once I get back, I’ll be able to have my 
.
Thanks for sharing this with me. It’s always helpful to hear from others who are on the same medication regime.
xxxx
I’m sorry to hear you’ve not been feeling great from your first infusion, idcand49. I hope you are feeling a bit better today?
xxxx
Hi Lizaki-I hope you are well? Do you mind me asking what dose are you on re-Alendronic Acid? My GP will hopefully have my prescription ready later this week, after dental check up, and I’ve checked with my regular pharmacy-they have plenty of 70mg tablets but if I’m prescribed a different dose, they’ll have to order them in and I am going away this week-end so it may be difficult for me to get a different dose unless I find another pharmacy that has them. 
Hi I am on the 70 mg once a week tablets.
Super! That’s reassuring. xxxx
I started on Alendronate 4 weeks ago because my dexa scan showed some osteopenia and osteoporosis.
I’m due to start Anastrozol which has been found to increase the osteoporosis.
So far:- Taking it once a week while uptight is a pain.
I have suffered with more back pain than usual due to " bone modelling"?
But I’m hoping this will ease off over the coming months.
I would like them to consider giving me Denosumab a subcutaneous injection once every 6 months.
The nurse practitioner is going to ring in February, I can put it to her then.
Honestly it was rough - I had to call in sick Monday as couldn’t even wfh (I didn’t even do that for chemo)
I had 10/10 flu pains (muscle aches / bone pain) temp & severe shivers
Silver lining is feel 10000% better
Nxt infusion end of May & hear it’s not as bad
Hi Jeanie,
I’m sorry to hear you’ve been suffering with more back pain-yes, I read about bone modelling too. I can’t understand how something that is supposed to help improve our bones can actually increase bone pain (and even risk of fracture-I read). It is all a bit mind blowing.
I hope your chat in February with your nurse gets you where you want to be, vis a vis your meds.
xxx
Idcand49,
I’m glad to hear you are feeling 10000% better. My best guess as to why some of you who are taking infusions is that they are 10000% more potent than the weekly tablets-given how infrequent they are. I’m no medic, but that would be my best guess-they must be strong.
I’m glad to hear that your May one shouldn’t be as bad. I will have everything crossed for you!
xxxx
Please can I ask what day you had it and when you started feeling ill I have my 1st one 14th jan and am a little worried as I will only have been back to work 2 weeks ? Thanks x
The chemo nurses tried to book me in for a Mon & I couldn’t take the time off so booked it for Fri afternoon (don’t work then)
So glad I did!
Started with taste buds going (I threw away my glass of Whispering Angel so knew I felt off 
) and severe chills about 3ish hrs later
Followed by horrendous bone & muscle pain
My thoughts were “just being” hurt
Didn’t get any sleep Fri as pain was too much
I didn’t have this at all during chemo so it threw me
A temperature followed on Sat and Sun the pain became manageable
I called in sick Mon as still felt achy but it was mainly to catch up on sleep
I’m still feeling meh but did go into the office this week, had parents evening etc so think my body just needs some r and r
Xx
Gosh I think I flagged this convo instead of replying. I’m so sorry if that is the case can admins please ignore the flag. I get confused with the symbols.
Marla13, thank you so much for your reply. It has given me the nudge I need to be more proactive regarding my personal health. I’m contacting my health provider tomorrow to request a Deca ssap. Best wishes Unis
Best of luck Unity and do keep us updated if you feel like it! xxx
Just an update to anyone on Thyroxine and a Bisphosphonate. My doctor prescribed Alendronic Acid for me, and both he and the pharmacist said that I can take my thyroxine at the same time as the Alendronic acid because these two meds do not interact. It may be worth asking your GP or pharmacist if you’re taking both. 
Is it ibandronic you are going to take? i have just been prescribed this, 1 x 50mg tablet daily for 3 years. would be interested to know how you find it. i dont start mine till after radiotherapy next week 
Hi Rocky2.
I have just this week come to the end of my three years of daily Ibandronic Acid (50mg). Yay! No side effects that I have been aware of but inconvenient would probably.describe i!. It has to be taken first thing in the morning then you have to stay upright for an hour (sitting or standing) so no taking it and then snuggling back under the bedcovers 
. Then there is no eating/drinking or taking other medication until at least half an hour after taking the tablet. Thus no cup of tea or coffee to keep you occupied for that hour. In my case I then have to take a thyroid tablet which means a further 40 mins before I can eat!
I was warned that taking it increased the risk of bone necrosis in the jaw (even after stopping the tablets) so was advised to have 3 monthly dental check ups and be extremely careful with dental care. My dentist, fortunately, is very aware and understanding.
It becomes a routine and as I said at the beginning (for me) not really unpleasant just inconvenient, but I’m so glad I’ve ’done my time’ now😀
Hi Rocky,
Good luck with finishing your radiotherapy-that’s great news! No, my Bisphosphonate is called Alendronic Acid. I believe this is not the same as Ibandronic-but they are both Bisphosphonates. xxx
Hi had my first zolendronic acid infusion monday and hasnt been pleasent,only just feeling slightly better today. Shivery and bone pain,nausea,no appetite and awful constipation, felt like i had done another round of chemo .
Not sure ill be having another in 6 months although have heard the side effects arent as bad the second time hopefully 