Hi
Just had third Chemo(FEC) and even though I was told about the funny taste in my mouth I get the most annoying,slightly painful,burning ache in my nose! Any help/tips would be very grateful x
I have tried so far…cola cubes,rhubarb and custard,starbursts,chewing gum,menthol chewing gum and chewy haribos!
Darcyb
bump
green tea with lemon with fresh ginger sliced on top worked for me. I certainly couln’t eat bread, it just tasted foul. Can’t help with the nose thing though - sorry. I am assuming, its because taste and smell and closely linked and may have affected your sinus?
Worth mentioning to them on your next visit.
Good Luck
x
I had a funny feeling in my nose to. Never did get rid of it till after all the chemos were done. The nurses hadn’t heard of it before. So I never found a solution. It kinda ‘tickled’ constantly, quite annoying!
Good luck finding something for it!
Hi Darcyb,
I was told this when I had my first FEC. My nurse said some ladies get it.
I have itch / pain / burn in my nose very soon after, before I left the clinic - can’t remember whether is the F or E or C causing it. It felt a bit like I want to sneeze, so I usually have some tissue with me. It usually wears off after about an hour.
xx
P.S. Also get the funny taste in my mouth 
Hi all
I get this when F is pushing C through my system. They go in E C then F. I really don’t like the way my head feels but it does wear off. Debx
I got the same feeling with all my chemos the only thing that worked for me was sucking pineapple chunks. They are worth a try hope they work x
I’d forgotten about this!! I seem to recall I was warned about it, and told it was down to the anti sickness drugs which they give you prior to / with the FEC infusions.
Thanks for the comments, will continue on the quest of making this bloody treatment more bearable x
Darcyb
repeated myself??
Hi,
it is the Cyclophosphamide that gives you swimmers nose and it is a common and horrid side effect. They can help you by giving it to you more slowly as hand injected drugs are not as smooth as a drip. In my area they always give the C last as it is the one that causes problems usually and then you are at the end of your treatment. The pain in my head was like non stop brain freeze and they had to keep stopping as I could not cope, so the onc made me have piriton iv in case I had a bigger reaction as I had 8 of them. They made it much better by giving it to me by electric drip on the slowest setting, so this might be sonething to mention. The slightly longer time was a good trade for less pain.
Good luck in your treatment
Lily x
Lily I was so pleased to read your reply. My chemo goes in fine, apart from the last one, its like brain freeze right in the middle of my brain and behind my eyes. It comes on as soon as the C has been injected and its really nasty. She did inject some piriton this time that took away the tingling, but the pain was still there, and lasts for around 5-6 daus after, althought easing off over time.
I’m in again on Wed and my chemo nurse usuallty rings me the day before so I’ll mention what you have said to her.
Did you have the piriton before or after?
Emma x
Hi,
I was told this is a really common reaction but some people just have a slight sensation and others like us have much worse. The onc said I had to have the piriton iv down the tube before the C. The great thing was that it completely knocked me out and I slept through all of that part and just used to wake up at the last 5 minutes when I could feel the pain but only just. I had no reaction in the days afterwards. I remember the pain exactly as you describe and was oohing and ahhing and thought I might die on the spot! The nurses din’t mention the piriton it was only when i told the onc that he said taking no chances in case the reaction built up. I don’t think the BCN can add to your medication so maybe you could insist she mentions it to your onc before Wed to check it is ok.
Good luck for Wed, will be thinking of you and let me know how you get on. Number 4 wow well on your way now hang in there:)
Lily x