Hello everyone can I ask if anybody has had problems in the pelvic area? I am having trouble with my bladder, needing to urinate all the time and it feels like something is pressing on the bladder,
I have had ultrasound - clear and had cystoscope which was clear. The person who did the ultrasound said maybe it’s nerve related or maybe caused by chemo.
I am just grasping here. I have had breast cancer, chemo, surgery and radio. I really don’t know what to do next but it’s driving me insane. Thanks
I’m sorry @pussycat26 that sounds awful. Like @Jill1998 I was wondering if you were on anything else . A few people have had bladder problems whilst on aromatase inhibitors as well. It might be worth giving the Nurses on the helpline a ring tomorrow from 9am on 0808 800 6000 and discussing it in more detail with them . Xx
I would also pester your Oncologist if you still have one and your BCN. From both a professional and personal point of view I’ve noticed that bladder symptoms in women are not always taken that seriously . I’m glad that you are going to contact the helpline as if it is a side effect of treatment which sounds likely they will have heard of it happening before . I haven’t had the feeling of pressure that you describe but it I’ve had bouts of cystitis in the past and antibiotics didn’t really do much . At one point I was having complementary therapy which was slow to take effect but did work. Now I take D-Mannose and drink lemon barley and plenty of water . I don’t usually have orange or cranberry juice or much coffee or alcohol . It may be worth you keeping a diary to see if any food / drink / medication ( if you’re on anything) or supplements ( I’ve heard that zinc can irritate the bladder) or activity makes it worse . Xx
Hi Joanne. Yes, I get that too, but I’m five years on from treatment and taking anastrazole. 18 months ago I had urine infections, but that’s clear now. I’ve been putting it down to age!! I also get the occasional urge leak which is a nuisance. Can’t squeeze like I used to!!! I think coffee might the main irritant.
I recently had to go to A+E ( broken big toe ) . They had a notice up in the waiting room about the benefits of swapping to decaffeinated and one of them was that it can help reduce bladder irritation so it’s obviously quite a big thing . I still drink ordinary tea though xx
I am on the last stretch of being on Letrolze
5 years up in June and at first I thought I was having cystitis a lot but was told that it’s the tablets affecting the nerves in my bladder.
Yes, I know just what you mean. I find drinking non alcoholic ginger beer in the evening helps no end. It’s as though the bladder feels irritated, as well as actually needing to pee every half hour! The ginger beer seems to sooth the irritation.
Also be careful how much and what sort of tea you drink, because that can make it worse. Green tea seems OK (no milk), and Earl Grey once a day, but I avoid normal builders tea. Weak coffee once a day. I do sip water at night.
Good luck.
who did the ultrasound said maybe it’s nerve related or maybe caused by chemo.