Hello everyone can I ask if anybody has had problems in the pelvic area? I am having trouble with my bladder, needing to urinate all the time and it feels like something is pressing on the bladder,
I have had ultrasound - clear and had cystoscope which was clear. The person who did the ultrasound said maybe it’s nerve related or maybe caused by chemo.
I am just grasping here. I have had breast cancer, chemo, surgery and radio. I really don’t know what to do next but it’s driving me insane. Thanks
I’m sorry @pussycat26 that sounds awful. Like @Jill1998 I was wondering if you were on anything else . A few people have had bladder problems whilst on aromatase inhibitors as well. It might be worth giving the Nurses on the helpline a ring tomorrow from 9am on 0808 800 6000 and discussing it in more detail with them . Xx
I would also pester your Oncologist if you still have one and your BCN. From both a professional and personal point of view I’ve noticed that bladder symptoms in women are not always taken that seriously . I’m glad that you are going to contact the helpline as if it is a side effect of treatment which sounds likely they will have heard of it happening before . I haven’t had the feeling of pressure that you describe but it I’ve had bouts of cystitis in the past and antibiotics didn’t really do much . At one point I was having complementary therapy which was slow to take effect but did work. Now I take D-Mannose and drink lemon barley and plenty of water . I don’t usually have orange or cranberry juice or much coffee or alcohol . It may be worth you keeping a diary to see if any food / drink / medication ( if you’re on anything) or supplements ( I’ve heard that zinc can irritate the bladder) or activity makes it worse . Xx
Hi Joanne. Yes, I get that too, but I’m five years on from treatment and taking anastrazole. 18 months ago I had urine infections, but that’s clear now. I’ve been putting it down to age!! I also get the occasional urge leak which is a nuisance. Can’t squeeze like I used to!!! I think coffee might the main irritant.
I recently had to go to A+E ( broken big toe ) . They had a notice up in the waiting room about the benefits of swapping to decaffeinated and one of them was that it can help reduce bladder irritation so it’s obviously quite a big thing . I still drink ordinary tea though xx
I am on the last stretch of being on Letrolze
5 years up in June and at first I thought I was having cystitis a lot but was told that it’s the tablets affecting the nerves in my bladder.
who did the ultrasound said maybe it’s nerve related or maybe caused by chemo.