Hello you lovely lot
I realised that I haven’t posted here for the last couple of years and, if any of the old crew are still here, then they probably think I’ve fallen off my twig - think again!
To be honest, the breast cancer has taken a back seat while I get on with life and managing Chronic Lymphocytic Leukaemia, which is just a matter swallowing 2 tables a day and has responded really well to treatment.
MY first thoughts on logging on were that it was like being in a foreign country, I didn’t recognise any of the drug regimes mentioned, a foreign language indeed!
I am still on Herceptin (actually Ontruzant) intravenously every 3 weeks and I must be in excess of 340 infusions by now as I have been on this since 2003 and consider ‘no observable disease’.
For those that don’t know me - I was diagnosed with primary breast cancer in 1994 and secondary in 2003. My secondaries were to liver and bone and things didn’t look great.
The rest is history, even the revolutionary drug Herceptin that gave me my life back! Herceptin was only approved by NICE for patients with secondary breast cancer in 2002, so you can see how lucky I was to be one of the first patients to receive this wonder drug for those with HER2 positive status.
Twenty years is such a milestone and I wanted to share with the many cancer survivors out there. I’ve come such a long way in that time and so has the treatment for breast cancer. I know we still have more to do but I just wanted to take a minute to reflect on how far we have come.
To those of you who are on this journey with me - you have my admiration for your courage, for getting up every day and just getting on with it!
My love to you all
What an inspiring story. Thanks for sharing did you change your diet and exercise? Any tips for someone just starting this journey?
You’re a super woman. I am thrilled to read your post. Xx
Thank you so much for sharing your story.
I have only just begun my journey but it gives me so much hope for the future xx
Thank you SO much for sharing, your post was the first I saw after logging on and I really needed to hear such positivity today.
My secondary diagnosis was a shock to me too, after 13 years I was hopeful I wouldn’t have any more problems. But no. I had a seizure and a tumour was discovered in my brain which I was very fortunate to have removed. Just been told I have multiple lesions in my spine which were too small to be seen 2.5 years ago when the cancer returned. About to start Abemaciclib and Fulvestrant.
Thank you so much for posting your update.
It’s fantastic to hear of someone doing so well after a secondary diagnosis. It gives such hope.
I’m close to 2 years since my secondary diagnosis and feeling good.
Lovely to hear from you Blondie. I’ve been following you, with secondaries inc liver since Dec 12. You’ve had quite an impact! Thank you. Sarah x
I remember when I was diagnosed in 2003 there was a campaign by a young woman to get herceptin paid for by the NHS so it’s great to see how successful it is in stopping secondary breast cancer in its tracks for anyone with this kind of cancer. Shame about the leukaemia though, but glad to hear that also is responding well to tablets.
Cancer treatment does seem to have come on a lot in recent years maybe due to greater knowledge of the genetics of breast cancer.
Thanks for your uplifting post. Really appreciated. Xx
Dear @blondie just a simple thank you - such an inspiring message, thank you so much for sharing and giving us all hope x
I just want to say a big thank you to you Blondie and all you other lovely people for your uplifting and positive stories. I too was diagnosed, just before Christmas 2022 with secondary in my spine and liver after 12 years, a big shock.
i have just been on another forum looking for inspiration and I was sorry I looked. One person has her affairs in order and getting ready to go to Switzerland!! Not what I wanted to hear, so when I found this thread I could say it really lifted my spirits.
Thanks to all and I wish you well. Prayers are with you all.
Lovely to read posts like yours. Thank you so much.
Good luck for the next 20 years.
I would love to hear more positive stories, my last scan wasn’t good for bone and liver mets! I was allowed to stay on my treatment though as my tumour markers went down!
I’m only 39 so any positive stories like yours and blondie’s would be amazing