Hi Vercors, I remember you too…I’m so sorry you find yourself back here on the forums but this is a very supportive and informative thread and some of us have been posting about our bone mets for many years now. Take Care…xx
Hi to vercors too. We are a supportive bunch on this thread. I don’t know what I would have done without the ladies on this thread x
Sarah
Has anyone with a diagnosis grade 1. Had bone mets? I’m being paranoid.
Hi Swissy
Sorry you are in a scary place. You need to check whatever it is out with your doctor. Meanwhile try not to worry too much (easier said than done I know).
Hugs.
Hi Swissy
Sory yu have had to join us but as Thumbie says try not to worry too much. I was diagnosed in Sept and was convinced I wouldn’t see Xmas!1 but am still here and reasonably well after two sessions of radio and bone infusions and Arimidex. It’s a question of changin things to make life easier and then getting on with life.
Godd luck and every-one is in my thoughts
Love
Trash aka Rosiexxx
Trash, you were diagnosed with bone mets the same time as myself,(it was also on my birthday! and the onc wanted to chat about hospices…what a good present that was!). I actually thought that was the end, until i read the comments on this site, which made me realise that i can still plan ahead and get on with life.
All the best everyone else. I hope everyone is keeping well.xxxx
Hi Swissy, I was Grade 1 had a very small tumour, clear margins and hed radio and Tamoxifen for 5 years, I found my Liver mets due to a huge gallstone i was being scanned for, which is how thry spotted it.
I also have bone mets, both not behaving themselves at the moment!!!
I get scan results tomorrow at 2.15…
My Dad is also having his results tomorrow at 3.30, he has secondary rectal cancer and was all clear after his last lot of chemo, so obviously we want a good result this time too.
I haven’t told either of them about my appointment as I need my mum to go with dad and I know she will come with me but there is no time for her to go with both.
I am having company to mine, so have support there too.
Fingers crossed please ladies as I worry about my dads more about mine as i’m sure he does the same lol.
Good luck to you all, we are all at different stages of this grotty treatment and I can’t thank you all enough for the support and love on this site.
Clare x
Good Luck Clare…both to you and your Dad! Hoping you both get the scan results you want! That would be a nice start to Christmas!
and love and best wishes to your Mum, it is bad enough with 1 family with secondaries…but 2!
Take care now and let us know how you get on xx
Good Luck Clare - sorry to hear that things haven’t been going your way recently but hoping that change is just around the corner Good Luck for your Dad as well - a worrying time for all of you right now so I’m really hoping that the results are good for both of you.
Hi to the newbies As everyone has said, we are a welcoming bunch and, like some of you, I found this forum so supportive and informative when I had my bone mets dx 3 and a half years ago. I also thought I’d drop dead but, as you can see, that’s not been the case! Hoping all your treatment plans are either sorted soon or are well under way as I think we all felt more able to cope with this cr@p diagnosis once we knew what we were dealing with and how we were going to do it.
To Swissy - I’m not sure if you’re Grade 1 and stage 1 i.e. primary or if you’ve had a diagnosis of spread. If you have/had primary BC and, as you say, being paranoid, please don’t be! Unless you’ve got specific symptoms that last over 2 weeks please try to get on with living and not worry about secondaries - they’re really not worth it
Nicky x
Hi Every-one
I can only re-iterate the comments about the support from all of you and the encouragement. I’m feeling a bit low to-day as I have rang my Onc to see him before appointment in Jan becasue the pain in my left hip has returned. it went away after last radio sessions. Problem is that now I don’t know if it’s my hip joint going( as my right one did and was replaced earlier in the year) or is the b----- cancer again.
Hopefully it can be sorted out soon. Thinking about you all
Love
Rosie aka Trashxxxx
Hi Rosie,
I feel for you in the uncertainty about your hip pain and hope you get to see your onc soon to find out what’s going on and get it sorted one way or another.
Be thinking about you…
Ruth x
Full of aches and pains today. Trying to rationalise aches being due to travel, over 150 ish miles to the coast at the weekend. Also am very cold. It’s only 2 c here. Chilly!!!
Hi there all, I’m a bit shell shocked for the last fwe days, as I posted the other day my dad and I both had our scan results at the same time, different hospitals. His was very good results as he has the ‘all clear’ for another 3 days but they told me that I have a matter of weeks to live…may not even see christmas. Its hard to say as I don’t really believe it!!!
I’ve told my children and obviously family but just feeling numb…
Mum and dad will be arriving any minute so may it will feel real, once I have seen them.
spare a thought for me ladies, I’m scared.
Clare x
Oh Clare what a terrible shock no wonder you are scared, I would be too. Thinking of you and may you be surrounded by love right now.
Lots of Love from me…xx
Clare, how terrible. I can’t imagine what you must be going through. Of course you are scared. It’s just so unfair, I can’t find the words.
Xxxxxxxxxxx Sarah
I will spare you more than a thought Clare. Warmth, love, hugs and peace coming to you from me.
Sadie Xx Xx
Clare my thoughts and prayers are with you. What shocking news to have to come to terms with - and they have given you so little time it is almost beyond belief. Thank you for sharing it with us and I hope we can all be here for you should you need us over the coming days.
Dawn
xx
Clare,
So sorry to hear your news, as with every-one else, you are in my thoughts and prayers. Try to stay strong and take strenght from the love all around you.
Love Rosie aka trash xx
Clare
That is absolutely awful news…I am shocked! Sorry can’t get my head round it, what did they discover on the scans? Is there no further treatment you can try, or is your liver not able to tolerate future treatment? To be given weeks is quite shocking, but Christmas is days rather than weeks away. so hopefully you and your family have a close time together (although I can imagine it will be difficult for you all) Wishing you and your family the strength to cope with Christmas and what happens next!
Clare stay strong - I am absolutely shocked by this awful news!
Clare - I read this thread even though I don’t often post on it but just had to say how very sorry I am to read your awful news, although those words are far too inadequate. It is hardly surprising you feel scared - I would be terrified. I too can but wish you the strength to try and cope as best you can. That goes for the whole of your family and friends. Is there any chance of getting a second opinion? Or some other drug?
Thinking of you x