Well done Jellytot… hope your feeling a little betterxxx
Mx
Good luck today Renee, will be thinking about you!
Jellytot…beautiful poem!
Hugs Janette xxxx
Oh Renee, that is the best news! Really pleased for you.
Hugs Janette xxx
Yes Jazmi, love and hugsxx
M
Hi Renee
Great to hear good news. I had a rash just after my diagnosis no pain no itch just looked very raw . It turned out to be shingles and gp said it was probably the stress I was going through anyway it cleared up and fingers crossed has not come back . Have a lovely weekend all. I am off to Sainsburys?
Hello Renee
Whoop whoop …super news for you so now enjoy the weekend and now it’s cooler …some sleep .
xx
Best wishes and hugsx
Moijanxx
Hi Ladies
I haven’t been on for a while just to let you all know had my six month scan yesterday and treatments are still working well. So I can carry on having Herceptain and Perjeta thank God I was stressed to bits. I hope you are all doing well mind I am piling the weight in with the medication I need to get it sorted. Love julie x x x x x
Well Jultz …you are very naughty for not checking in for so long …detention for you and no choc for a week punishment!!
Delighted that your scan is good and the h and p ( sounds like what I put on my bacon sandwich !!) Regime is working well for you and of course you have kadcyla option now it’s been approved so you have the gold plan
Not much chance of loosing weight is there with letrozole and all the other hormone stuff but hey ho …buy a bigger size and let it all hang out !!
Don’t stay away so long next time …really missed you …hope u r enjoying the summer house and its not being used as a dumping ground for all the handbags,shoe collections and bargains we buy and hide !!
???xx
Haha Carolyn thought I might be in trouble. I was trying to feel normal going to work and trying to forget about it for a while but the dreaded scan came along lol. The summer house still doesn’t get used and I’m still spending (wasting money ) haha.i still eat chocolate like its going out of fashion too. I’m so pleased katcyla has been approved I signed the petition I was worried for a while. X x x
I also wanted to say I’ve missed you all and I’m back to stay this time !! Do you still take Letrazole Carolyn? I’ve been on 4 different brands and they all have different side effects im trying to work out which brand is the best. Some make my legs ache some give me a sore nose I think I’ve got it sorted so I’m going to ask chemist to order that certain one x x
Jultz
Understand that u r trying to get back to some sort of normal after all that chemo etc you had but the new regime should be easier.
Oh the brands of letrozole are a real old chestnut …I’ve tried four in the 20 months and settled on “accord” which is now marked on my prescription …it suits me best .
I’m hoping Jeanette is reading as we only mentioned you the other day in our pm and she too will dishing out punishment for staying away so long !!
Watching Glastonbury …must fess up …never heard of lots of them …loved Kaiser chiefs though.
Xxx
I know I have to face Jeannette too ive told myself off lol. My husband’s watching Glastonbury downstairs in catching up on big brother. I started a new job I left coral bookies and went to Ladbrokes I have two six hour shifts I love it just enough to keep me going.i am going to get myself back to the gym next week now I know things are ok again i can stop my mind working overtime. I think the accord ones are the ones I like il check tomorrow and let you know I know it’s a thin box x x
Hi Renee
Have you been on docetaxol too ? I was on that first then herceptain perjeta Letrazole and zoladex for the last year. I had stomach problems at first but its settled down now. Im not sure if the weight gain is from herceptain and perjeta or the Letrazole and zoladex. My hairs ok just curly and short from the chemo. I find the meds im on ok i still go to work and try to carry on as normal. My feet ache a bit on a morning x x
Renee also if your hair is thin its best to use a baby shampoo so it’s not to harsh x x
Renee you have same as me im he2 I have Mets to lungs and liver too mine have been shrinking for past two year and when I went on Friday my oncologist said scans were really good and meds were working really well x x your stomach problems will get better mine did im sure I was worse when I ate dairy products x x
Renee it might not be dairy but it might be worth cutting it out just for a week just to see if it makes a difference maybe just eat salads and fish just give it a go its worth a try julie x x
hi there,
some of you may have seen the original thread i opened about my moms recent diagnosis.
well i must say its so heartwarming and relieving to know you ladies are so strong and living with a very similar diagnosis as my mom.
down below im gonna share my moms story and hope you ladies have some empowering stories to share with us. the big change this time around is i am married and have a baby and my mom is so afraid and heartbroken she wont get to live to see her granddaughter.
in april of 2012 my mom was diagnosed with stage 3c estrogen receptive breast cancer with many lymphnodes involved. she had a mastectomy and 8 rounds of chemo and 33 sessions of radiation and has been taking arimedex.
yesterday we found out after 5 years the cancer has spread to her bones. she is 55yo now. she is petrified as well as all of us. there was a lesion on her tibia causing great pain, they did a bone scan and found mets on her forehead, neck, ribs, and near her kidney. yesterday they did a biopsy on the lesion thats on the tibia. we r still waiting for the result and then the dr will determine the treatment plan. in all honesty the first time around we were so strong. but this time shes so afraid im petrified but not letting her see. i would love for her to read replied of people in similar cases who are living life bc shes so afraid this is the end…
looking forward to reading your replies. god bless you all and may the strength be with u to always keep fighting xoxo
Hello
Welcome to this thread where there is so much help support and kindness .
Firstly, your mum is very lucky to have such a kind and caring daughter and at the moment you will all be in shock at the dx of secondaries …we all have felt like that and thought that it was the end but ladies here are living with cancer …some oncologists say now with better treatments that its not a terminal illness but a chronic one.
Once the tests are all in …the treatment plan will be in place …your mum will have a focus each day.
Keep in touch …day or night …usually someone here to reply as we have loads of readers on this thread …some don’t post but are there for you .
Hugs xxx
Hi Joelleck, welcome to the forum, sorry to hear about your mum’s dx.
You probably feel like you are drowning in it all at the moment but I promise it does get easier.
Once your mum has a treatment plan in place and the shock of the dx wears off you will all start to feel more confident about the future.
We are a friendly bunch on here and there is always someone on hand to help/offer advice or if you want to just off load and let off steam we all understand.
Hugs Janette xxx