Hello Renee
I only just realised what you are going through …you are paying twice what you need to pay but that’s good if you can donate one to a useful cause. Would they not issue you a false leg so you can at least get use of both your sketchers …
Sorry your pain is still giving you problems …if it doesn’t get any better …then chase up your oncologist maybe …
Think sketchers should be issued by NHS on prescription …brilliant support for us bony mets ladies. .I feel like a little budgie …bouncing with energy !!
Hugs xxxx
Hello ladies
Well feel sorry for all the holidaymakers here in Devon today …it’s cold, wet and windy …I’m lucky I have all my home comforts but they are just wandering around in soggy flip flops and disposable ponchos …not much of a holiday but hey hoo …the sun will come out again soon.
Hope everyone is ticking boo
Xxx
Hello Renee
I thought u were radio silent for a few days …hope you are beamed up again to the forum …
My sketchers were a birthday pressy but I have 4 pairs of similar ones from matalon. .I just live in them. I would honestly say they are brilliant for hip and leg support.
I hope you find a good site that you can donate your shoes. .I’m sure they will be well received but I hope the army personell are all female as I don’t think the males would appreciate sparkly high heels or pink furry slippers …ha ha …
Hugs xx
Hi I’m new here, diagnosed with secondary bone only breast cancer in Feb.
Been having Examestane (no side effects) and Zometa (Zoledronic acid) and getting more and more pain in my hips (where the cancer has been treated with radiotherapy back in March)
Is there anything we can do for the aching and stiffness?
Hello sylvie
Welcome to the forum where we are all real people and can associate with the side effects of our treatments! !
I think the bone strengtheners and exmestance can increase bone pain especially when it hits the bad bit’s and it’s hard to know what’s happening …
I take cod liver oil daily but I think all those sort of things do help …I have extensive bone mets too …I try to avoid popping painkillers and tend to use a hot water bottle or heat pad …I think a gentle walk daily at least does help the stiffness a bit but only what you feel you can do …
Hopefully …you will stay here with us as it’s a busy thread and always someone around when u feel a bit down in the dumps …there’s so much information too …
Hugs xx
so today is the first erubilin session not quite sure what been going on.
im finally here with mom, but we have been back and for to the ER first it was an infection where the biopsy was done on her tibia. and since shes been throwing up everyday were not sure if its the anti biotic or not? we tried changing it and still same problem. not sure if its the pain meds? if its the cancer? all i know is that nthg seems to be getting better…hopefully this chemo does the trick
im not even sure where i should be posting anymore if its the erubilin thread or bone mets or lung mets or liver mets…
Hello remade
A bone scan is a whole body thing of bones which shows “problem spots” …not always cancer but I had mine at dx and haven’t had another for 20 months …the ct scan is only the torso …no head, legs or arms.
It’s painless but you have to have this radioactive stuff injected and then wait two hours …it takes about 30 minutes but radiographer is sat beside you all the time. I think I read somewhere that they don’t do them so regularly as ct scans …but different hospitals do different things …
Hugs xxx
nothing to do with bone scan ,but just thought i would let you know my lap top has been playing up for days ,so decided to buy a new one ,then grandson came and took it right back to factory settings,hey ho its as good as new,just wanted to say i am still here .
Hello Renee
Yep I often have to take my laptop back to factory settings when my grandchildren have been dabbling on it and loading down various things …glad you are back with us again.
Hope you are comfy again with pain etc …and just think how much money you have saved on not buying a new laptop now …splash out on something else nice.
Hugs xxx
Does anyone on this thread ever get days when they itch all over, with no rash?
I’ve had a couple recently, days apart!
Today I’ve got backache from sitting badly in front of the Tv on Friday and have convinced myself it’s a kidney infection with NO. Other signs at all - am I the only hypochondriac on the thread too?
Hello Moijan
I replied to your text this morning …sorry was asleep.last night …the itchy problem is a strange one isn’t it …I’m only on letrozole but sometimes I itch …no rash but once I start can’t stop … like a family of ants is partying inside and is doing the birdie dance ( oh I hate that dance !!l) …I usually just jump in shower and boom boom it’s gone.
Now .I know I’m a numpty with medical things but I think that mets in the bones can be itchy …before i got dx …I itched the top of my leg a lot …later on a huge hole in femur from mets dx … I might be talking rubbish so ignore me ladies as nothing proven !!
Hugs xxx
Afternoon ladies, hope everyone is keeping well, I’ve just been out for lunch with my good friend and finished up with a big fat chocolate pudding for dessert on the first day of my diet…that’s willpower for you!
Moijan, don’t know if you have read any previous post from me omg itchy scalp has been the bain of my life lately, to the point where I have been close to tears, I have itched that much it’s got infected twice. I spoke to my onc about it and she kind of poo pooed the idea that it could be anything to do with my treatment/disease.
Hugs Janette xxx
Oh jellytot …I do feel for you as most of us only have the one arm and the poor veins there harden and say “no more” …I think I’m remembering right but the radioactive stuff for bone scan …has to go in the back of the hand …so maybe you will be spared the ow ow ow bit on veins that are newer!!
Hugs xxx
Oh Jellytot!! I hear your pain!!! They can do it on the hand too. Make sure you drink at least 1pint water beforehand and keep the armhand warm. Also, tell them and thye use a blue needle or butterfly which are smaller. I know that for CT they can’t though…
i’ve got liver mei next week and panicking abiut the canula but they’ve said to see the girls in onc for them to do it. Might help?
Morning ladies
Hope you are all coping well!
Ladybird’s is really suffering with leg pain recently and also has grown a tangerine sized lump on her kneecap! The gp has booked her in at Didsbury Spire Hospital for a scan on it. Dr said local NHS hospital would take too long. It appears to be a bursitis type lump but has been there for more than two months. Anyone else had similar?
Take care
Chris xx
Hello Chris
Good to hear from you but as usual I have no answers but your GP is on the ball getting a scan done quickly …try not to worry not everything is cancer related …I had a growing wart thing on my leg for a year …thought it was something sinister but it just fell off !!
Keep in touch …hope some other ladies here can help more than useless me …
Hugs to poor ladybird xxxx
hi Chris…never had that, but maybe not anything awful xx
Carolyn, ended up at the gp because latterly got ache over left hip…thought was it a kidney infection but wee test showed nothing…so fingers crossed.
i wanted to share re Cannulas etc,.at my hosp had to have three scans, so got them all on one day…mri, then bone scan then ct, so the one cannula dealt with all three instead of three cannulas.l.l.try and do that if you need to…have done it three times during the past three years.( oh and none needed back of hand)
Hello Moijan
Maybe hip pain is just old age and not cancer related …we blame everything on it or treatment side effects but forget things could just be age related sometimes and we would have got them anyway …ha ha …I’m quoting what my very kind friend always says to me !! But wise words xxx
Well clean carpets .bet u feel nice and refreshed .having a dog doesn’t help …we have cream carpets…aagh spend so much time shampooing them …going to replace with dark ones later this year …no excuse as son is a carpet fitter …
Hope u feel a little more cheerful now …good days and bad ones …