Renee
Tell your oncologist of problems as mine always says …it’s living with cancer and some sort of quality of life that counts …
Maybe u need to train your dog to wipe her feet! My son’s dog is a boxer. …he’s the most mucky dog ever …he shakes his head and the slobber hits the lampshades, curtains etc …it’s a never ending job of cleaning up …
Hope tomorrow is a good day for you.
Hugs xxxx
Now Carolyn, today has been interesting, I fed back to lovely onc that my p.n. was much better, casually mentioned my hip and I said ‘well, it hurts if I touch it-it wouldn’t if it was due to mets, would it’ he said ‘well, it would actually’. However, I think it’s muscular and went to see chiro this pm -she delved deep into my btm muscles - said my pelvis is skewed( again) gave me some excercises to do with a spiky ball( relating to bum) and actually, I think she’s right … prob not mets at all! Lovely onc did offer me an MRI, should things not improve-so have a back up plan. Xxx M
Yes Ramade, btm and hip felt a lot better this am…however, my drive to and from the hospital reset the problem!have moved the car seat again in the hope that it helpsxx
Well Moijan and remade will be thinking about you both and your spikey balls tonight …ha ha
To all ladies waiting for scan results or having a bad time …the big girl pants are all washed and ready for you to put on.
Sorry to disappoint but I haven’t eaten much chocolate lately but today I ate a whole terry chocolate orange …I feel like a hamster on steroids on one of those treadmill thingy they run on all night!!
Ff …I’m glad u have left the stress behind and u now have a new challenge but the big loss is the patients as you are a very unique special person and not many of us could do that type of work.
Rest, relax the weekend you deserve it.
Hugs xxxx
Ff
I think they will be perfect under your caprice pants and what’s a bit of lace showing …they are going to be more comfy than those thong things we used to wear for fashion !!
Hugs for next week xxxx
Ff…yes, good luck. Now xx
Carolyn…ill put this in brackets so the others dont look too closely but
( arent those knickers…THE knickers you wore to that pub on the day we first met -along with our O.Hs?)
I had thought they were some new Devon summer fashion or such like…xx
Mx
Hi again Ramade, its hard to keep making yourself shove that spikey ball all over your bum, isnt it when you have noone else around to encourage you?
( Carolyn - are we allowed to say BUM on here when its not an official swear day?)
but getting back to you Ramade…just realised we could get together and practice…am thinking of going to the Summer Exhibition at the RA tomorrow…if you can meet me there we could ‘display’ ouselves
demonstrating how to wield the spikey ball.
Moijan???
F/F good for you girl!!!
Wishing the best of luck in your new job!
Hugs Janette
Hi Jellytot, sorry to hear you have had some bad news but please don’t be too down about it.
I like Carolyn am in the “letrozole gang” and it had been amazing for me, actually I have just spoken to my bcn and got the latest results for my tumour markers and they are now comfortably sat at 17!! I have been on it now for just over 18 months and at start my TMs were creeping up to 176!
My mets are in my spine as well as my hips, ribs and femur.
Take care hugs Janette xxx
Jellytot …
Welcome to the letrozole club …Jeanette and myself are very much on the same page with our mets …although my oncologist doesn’t do tumour markers like many others … it’s a easy little pill to tolerate …but if u do need support from us …just shout out !! Jeanette and I both have itchy scalps …I think people watching me must think I have nits !
Hugs xxx
Ff
That is the way to interview for a new job …hands on and not answering silly questions on a form !!
So go for it and enjoy …
Moijan and remade
Pity u don’t live near to each other as u could start off a “spikey ball club” …wish I was a fly on the wall in your houses though !! Ha ha …
I’m trying to do a lititle medication to help me sleep but not very good yet …all that deep breathing just makes me cough but I do a few omms and aaghs and have bought some Buddha’s too …but I prefer to rub their bellies for good luck for my lottery ticket at the moment !!
But little steps xxxxx:relaxed:
Hi All
Well I am in work and having computer problems hence I decided to check in with yourselves.
Funnyface congratulations on your new job. Dreading going to work each day because of a boss is stressful I have been there but always managed to come out The other side.
Jellytot don’t despair your Onc will do whatever they can. That is what I keep telling myself and as I am a glass half empty person it is hard to see the positive but 6 months on from my diagnosis I am coping better.
Went for a smear test this week and was told it may be inconclusive due to my condition. So that upset me and I have a sore throat that won’t budge so have been told to see the dr. I am trying to forget I have this but every week seem to be at the drs or hospital. Next week is injection day but after that am off on hols. Cant wait.
Have a great weekend all.
Very dull here in London and looks like it will rain again but being positive I have a brolly?
Wendy
Hello ladies
Pmol and Snuzd
Sorry to hear that the hormones have stopped working so well …we all get in a sort of comfort zone popping these little pills every day but they do have a shelf life for controlling the little blighters …hopefully the oncologist will have something else in the magic bag to kick in.
Some ladies here have years on them …some don’t so it shows how individual we all are …
Sending hugs xx
Now then…yesterday, after I struggled home(well, hobbled actually)
I Sent an update on my trek to the RA Summer Exhibition…and lost the lot!
anyway…sadly Ramade stood me up! hadnt got my spiky ball with me, I had to keep
prodding and kneading My left cheek in order to be able to keep going…goodness knows what the hordes of other people thought! Anyway, I just knew Carolyn would like some pictures, as it was an exhibition…so here below, we see in first place…the spiky ball, next …the RA, and lastly,…the welcome very very welcome, sight of my bus appearing, to take me back to Victoria station! Boy Was I grateful to see
That.
Hi everyone, haven’t posted on this forum for a week or so, as I mainly use another forum now. However, I missed all of you lovely ladies so have caught up with the last few pages. Has anyone been to a breast cancer meeting ? They’re having one in Maidstone on Monday, came across it by chance ( pressing wrong button on IPad).
Ive got extensive mets in my skeleton including my entire spine. I’m fortunate in that I have no problems in my spine. The reason my spread was found is that my GP thought I had Piriformus syndrome. Eighteen months later it was found that I have extensive bone mets. Apparently, the original treatments hadn’t worked so I’d been walking round about 8 years, without any real symptoms.
Funnyface, congratulations to you. I told you there would be a new pathway for you. You will be sorely missed I’m sure.
Welcome to newbies, you’ll find loads of support on here with these gorgeous funny ladies.
Hello Moijan ( the Queen of spikey balls now)
Well what is a RA exhibition? Thinking about the spikey balls …I have 2 like that I use in my tumble drier to stop the washing tangling up. Maybe I will join your spikey ball club now !! Ha ha …not.
Pmol …hope u get on the trial as it’s the last step before chemo really isn’t it?
Hello babsy
I think a lot of us got missed with our bone mets and it was put down to old age before we got scanned. .I was told mine had been there years too so the little blighters were well settled before I got treatment …
Hello everyone …happy Sunday and hope u r all enjoying your coffee and croissants this morning.
Hugs xxxx
Hello Renee
We also got loads of rain last night but it’s fine today.
Long day tomorrow for you but hopefully the treatment is blasting the little invaders !! No haven’t chosen carpets yet …got to get decorated first but somehow not looking forward to upheaval. .maybe later in year!!