Hello ladies. Thank you for all your lovely comments about my good news. Pippin, I did leave like a bat out of hell but my heart is still on this site. I keep up to date every few days because in such a short time I got to know you all so well.
It has been an experience joining this site and tbh I still wonder whether the doctors are right.
I’m no longer on Letrozole and can tell you that my aches and pains have reduced considerably so Carolyn was right about that causing the most pain.
Still waiting patiently for them to deal with my slipped disc and yesterday attended my first music festival using a mobility scooter for the first (and hopefully last) time. That was an eyeopener as well. Spent quite a bit of time being ignored and feeling lonely because couldn’t get in with the crowd. But I blinged up the cart, covered my head in flowers and once I’d mastered the controls, shot through the crowds with a huge smile.
I know I’m lucky and I’ve had an insight into how secondary breast cancer feels but I still belong here albeit as an outsider looking in. I still feel your triumph, scanxiety and pains. And I will be watching, laughing with you and crying from frustration that I can’t help.
Hello Renee
Wish I could find a decorator for that price …bargain and worth it …my son’s are so busy I don’t mention it either. …
I’m sure the herceptin is doing a good job …it’s a very good treatment …unfortunately not for my cancer status …your oncologist will be able to check things out to put your mind at rest.
Enjoy your day and big cuddles to your lovely dog …we have had three alsations in years gone by and they were all lovely .
Hugs xxxx
Hiya sue
It’s nice for you to pop your head over the fence and say hello …we love to hear from you.
Aagh …mobility scooters …never tried one but went out twice in wheelchair after my hip op …hated it and manage now with just a stick …worst thing people think that because you are in a chair you are deaf too and shout and talk slowly …
Hugs xx
Hello Renee again
Back some time ago we started a thread about wheelchair users etc …it’s called femur pinning and I’ve just brought it back up for you to read …you will see it in the list now …enjoy
Hugs xxx
YES! Carolyn-I think they are used for that too- maybe yours is less likely to melt tho - but one things sure-the machine will sound a bit ‘bonky’ anyway sorry for not saying- it’s the Royal Academy Summer Exhibition, (which turned into Moijan and her cheek exhibition) of artwork- I am an artist -tho on sabbatical. But not of that ilk!
So- if my pain turned out to be Amer pain- would they give me rads? And would that help? I know I’m an old hand at bone mets but up till now no symptoms in the btm
Moijanxx
Hi Moijan
I’ve just replied to your text …I honestly don’t know really …I get pins and needles in my hip and femur but I think everyone is different …rads do help with pain levels.
Before I was dx with mets …I had a large bruise on my femur which itched a lot …after scan it was found to be a hole in the femur through mets …it was never painful though.
Only a scan will define what’s going on and put your mind at rest .
Bon …nice to hear from you and I hear we are trying to get together with barton soon for a lunch. Maybe you need to stop walking around in 4 inch heels if your feet hurt !! Ha ha …sorry about your feet. .
Ff.
All the very best for your new job …I’m sure you will settle in very quickly but you have twice the stress this week with scan and results too happening but we are holding your hand across the pond for you and hope e and e is doing its magic.
Hugs xxx
Good morning ladies from sunny Devon. …NOT …it’s wet and horrid here today …road works everywhere too.
Thank you for the cream tea and catch up yesterday Barton and Bonariensis …it was really nice especially in the castle surroundings.
Feel so sorry for holidaymakers and school kids with weather like this …
Hugs everyone xxxx
Just looking for some advice . I have been on tamoxifen and denusomab for 6 months now and apart from hot flushes have been managing well. However in the last week I have had hip pain in a new area of my right hip and mentioned yesterday at my appt and was told to see how it goes. Due to go on hols so trying to put out of my head but worried tamoxifen has stopped working and next appointment is beginning of sept. Anyone else ever experience new pain and turns out to be nothing?
Hello Wendy
I’m on letrozole for bone mets and have been getting more pain too in my hip etc. I’m seeing oncologist next week and am going to ask for scan etc …it’s always a worry what is happening inside the bones. I always try to think back and see if I have caused the pain myself with moving awkward or doing too much etc etc. My son’s large dog jumped on my lap last week and so I’m blaming him for extra pain !!
Hugs xxx
Ff. …best of luck for scan results tomorrow. .we are all holding your hand and hoping you have put on the big girl pants ready !!
Starting a new job is a bit stressful but hopefully you will take it all in your stride and settle in quickly too. Although it’s only 3 hours a day , hoping the travelling time doesn’t add to your day as I know in US …it’s all about distance between locations …in the UK here where I live …everything is all huddled together .
Hugs xxx
Thanks ladies. I am going to jet off and try to relax and then if still causing me to fret I will ring and try to get an appointment . Fingers crossed for you all whilst I’m away x
Hello ladies! Some kind of good news!! Today I had a call from my onc who said that after speaking with other 3 MDT’s they have decided that I am on the right path BUT the best news was that they reviewed the scans and the cancer hasnt progressed as fsast as they had originally thought ???. So still on exemestane and zoladex, will have radiotherapy on spine and a chat with spine surgeon anyway…
also he mentioned about having the ovaries removed by surgery so will probably need more info abuot that too!!
Hello jellytot
All the best for tomorrow and your new drug trial …think you will be a first here on the threads with that treatment.
You must feel that your life is all about hospitals at the moment so hopefully once it all starts you will get a break from so much to and fro !
Hugs xxx
