I’m doing okay side effect wise from my trial drugs.
However, I am having awful hot flushes and night sweats and not sleeping. I’m still struggling to eat and have lost a third of my body weight since May.
Mentally I’m not doing well. I’m so so sad all the time. I’m only 34 and I feel like my life is over. I know I’m on some amazing drugs but surely they are just prolonging the inevitable. I don’t have children and I feel robbed of a life I wanted. I don’t know what the point is any more. I feel so dreadfully sorry for my wonderful husband. I’m so low all the time and I don’t think he knows how to cope (I certainly don’t). We were both always such planners and now I don’t feel I can plan anything at all. I’m sorry for such a mopey post xx
Morning ladies, absolutely horrible weather here this morning!
Nicky, so pleased for you, bet you are so excited and grateful!
Jellytot, really sorry to hear you are struggling, just want to say is please stay strong, sending you a HUGE hug ((((((()))))) xxxxxx
Hugs Janette xxxx
You are not alone I feel exactly the same as you. We too are planners and were looking forward to all the things we were going to do when we retired, when we had grandchildren etc and now I just can’t see that happening. My husband and I have really down days and other days we are as normal as can be and enjoy life. It is such a rollercoaster. Sending hugs Wendy x
Congratulations nicky …so now it’s all about thomas the tank engine and not barbie ( after having 2 girls !) …you will soon learn all the engine names !!
Jellytot …there’s nothing much else I can say as you have had some lovely replies but hang in there …there are good days amongst the bad ones! !!
Xxxx
Bought grandson a all singing, all dancing Printer to do his homework on … ( everything is on his I phone these days not in exercise books like mine was !) Anyway…an hour to unpack it so far …with so many bits and bobs …the instructions are in 15 languages and I’m only on step 4 …inserting the ink cartridges !! It’s going to be a long day !!
Wish me luck …I have 2 tubes of smarties on standby to boost my sugar levels !!!
Xx???
Well the weather is reflecting how I am feeling right now miserable and I think possibly a damn good cry would clear the air. I apologise for being so negative as I normall try to keep this disease in perspective and carry on with getting on with life. I saw my oncologist yesterday for review, following discontinuing Paclitaxol chemo last month as the recent CT showed further progression in the liver. I have also had radiotherapy to my right shoulder and spine due to pain which is still very evident after just over 2 weeks. The plan had been that I would commence Eribulin following a holiday that both consultants had said we would benefit from. So we booked a weeks holiday to Lake Garda Italy by coach and are due to go next Friday the15th we have been so looking forward to getting a way.
However after talking about my shoulder and arm re radiotherapy she asked me about my eyes, specifically how long my left eye had been smaller than the right. So now I am waiting for a urgent brain MRI to see if there are any mets there. I also mentioned that I have been getting SOB on excertion recently since stopping chemo. I do have a known right pleural effusion but again has this worsened since stopping chemo? She has also requested a CXR to see if this is the case and if so this will require draining.
Now I am in limbo waiting on a telephone call re appointments as until we know what we are dealing with I can’t move on and am really anxious about whether I will be well enough to go. Ann xx
PS Big Hugs to all who are also feeling low at the moment this disease is constantly giving us highs and lows in our lives. Two steps forward and three back !!!
Hello anneemay
Phew that’s a lot of bad news to cope with but I’m sure your holiday will boost you a lot and maybe some clean italian air will help the sob effect.
I think the doom and gloom of winter and dark nights is pulling us all down a bit lately …
Hugs xxx
Update on printer installation …on step 6 now …but two tubes of smarties are helping …should be prescribed on monthly prescription as feel good therapy !!
It’s having to keep scrolling through 15 language options to get to the next step. …pity I can’t speak foreign! !
Xxx:relaxed:
there must be somehthing in the air as I’ve been in the gutters too… well, still feel pretty overwhelmed too. I know I should check back to see what I’ve told you or not but in between coming home and taking girls swimming so short of time. Anyway, the latest is that the mets are now in the liver too… although not on the brain I do have mets on my skull which we didn’t know …
now waiting for the onc coming back but think he will say chemo… ?
Hello nanofthree
I’m sorry that you have to start the big guns chemo and loose your hair …it’s a horrible side effect which most of us fear …although mine was 13 years ago …I remember it well …my fringe coming out in the shower etc etc.
Maybe you could try cold capping. .lots of ladies here do and cope well …I’ve seen ladies in he chemo unit …yes its looks cold though !!
Yes …got the printer set up eventually. …think I’m too old for technology these days …
Hugs xxx
Hi all I’ve been reading but not posting for a while because my treatment seems to be going ok.
CA15 has come down from 377 to 300. I understand that the norm is 30, but only been on Tamoxifen and Denosumab for 5.1/2months since mets in scull and spine diagnosed.
I have been reading your posts and the reality of this illness hits when I read how most of you have been on a very cruel rollercoaster ride.
It’s the arthritus in feet, knees and hip that give me problems.
I know that the cancer is dancing around my body and looking for a spot to take a rest and deposit something nasty.
I am to have my first CT scan since diagnosis at the end of October, and to be honest I am terrified what it’s going to show. I knew from the start of my breast cancer in 2013 that I would be lucky to go 5 years without secondry as I had 14 lymph nodes removed and they all had cancer in them.
It’s just so difficult to just get on with it but we have no option. I want to stay around to see my 4 beautiful granddaughter 's and my great grandson who is due early December to grow into wonderful people,
Sorry to unburden myself on you all but on a bit of a downer at the moment.
Lots of love hugs and kisses to you all, we are all in the same boat hopefully none of us yet are in the speedboat. We all want to be in that slow boat to China.
Hello crissy and nanofthree
Life’s tough for you both at the moment so I’m sending u lots of hugs and stay with us here for kindness and support when u have the bad days …but there will be good ones too to enjoy …
People always say stop and smell the roses …this can be a little treat …a nice new lipstick, some choc or even a nice walk sometimes helps …
Hugs xxxx
It must be that time of year where we are feeling down but at least it has stopped raining in London. I had my scan results on Friday and tamoxifen has stopped working and I have a met on my spine which is causing my hip pain. So back to radiotherapy and changed to letrozole and the drug that brings on the menopause as I am peri not post. Absolutely gutted but I was coping ok with the news until my Mum who has been very practical and strong throughout got really upset yesterday and now in need of some hope as frightened these tablets won’t work for long. On the bright side my daughter is 21 next weekend and determined to enjoy . Enjoy the weekend
Wendy. .I’m sure letrozole will work it’s magic for your new mets …loads of ladies here on it …Jeanette and I in particular are 2 years down the line with it and it’s done exactly what it says on the tin …kept the little blighters from partying too much in the bones …don’t know for much longer but I hope there is something else oncologist will pull out his magic bag when the time comes .
Well ff …where’s my soup ? I’m looking forward to some too …mmmm mm. .
Has anyone noticed their feet getting smaller with this cancer lark ? In the last year I have dropped a whole size … ( pity my bum doesn’t do the same) I have two theories :
I am abducted by aliens at night that are filing down my toes bit by bit
Or
I’m wearing more sensible shoes these days which allow for bunions and swollen feet !
Oh Renee
Nice to hear from you …we were all worried …phew that’s a lot of treatment …I’m a numpty with regimes but they are certainly hitting your cancer from all directions! !
My friend is on cape and letrozole combo …and tolerating it well but other sensible ladies here will know about all this …
Just wanted to pop in and say hello really
Hugs xxxx
Regarding treatment I had Fec and Taxetere in 2009. After that I was on Letrozole for 4 years until Feb 2014 when it stopped working. Since then I have been on E/E.
I have only heard of Cap as a tablet chemo did not realise there was so many.
I am now starting to get panicky about tomorrow and scan results.
Well at least you have taken me seriously …it’s weird isn’t it? Not complaining as I like being a size 5 rather than a 6 …would prefer to be a size 12 in jeans as well though. …no chance with all the crap food and choc I eat !!!
Happy days xxxx
