Bone mets - please join in (Part 1)

Hello ff
Hope you are safe and well there after the hurricanes …just watching it on TV now.
Wow …thats a lot of weight loss …you will just have to tuck the surplus skin in your size 14 pants …no one will see it under neath !!
Xx

Yes, a shout out to FF, hope you are safe! The weather looks very angry and frightening very frightening over there!
Our weather here is horrible, BUT nothing compared to Florida and the Caribbean!
Hugs Janette xx

Hiya
Think we have the tail end of the hurricane here as it’s very windy!! …hubby’s garden looks like a flower cemetery and where do all the plastic carrier bags come from …that fly around and then hang on the phone wires and trees?
Keep safe everyone xx

Evening everyone

Just to let you all know eventually got my scan results today not good news now got 2 tiny spots of edge of liver so changing treatment to Cap which I start next week.

Not looking forward to change of treatment as I have alot of things planned at the end of this month. Daughter and granddaughter are going to be bridesmaids which I still hope to attend.

Can I pick anyone’s brains regarding this treatment.

How soon after starting treatment did you notice any sides effects?

Did you have to stop the hormone treatment before starting Cap.?

Did you suffer alot of side effects?

I am starting on the normal doseage I am not sure what they mean by that.

Does anyone know what the different dosages are?

Sorry about all the questions hate going into the unknown.

Not had chance to catch up on the forum today.

Hope everyone is as well as can be expected in our situation.

Night night.

Linda

Hello lindy loo

Oh dearie me sorry your treatment has stopped working …it’s tough as you sort of get used to it and it’s side effects …like a comfy pair of slippers …but you can now be a cape crusader …if you go to that thread …you will get loads of support as it’s a tried and tested chemo pill and there will be so much help and support to ease you into it.
Try not to worry too much ( says me here just on a little letrozole pill a day )

Sending u hugs …but please stay here on this thread too …
Xxx

Hi Ramade

No they did not say which one had failed. The upside I suppose it worked for 3.1/2 years and before that Letrozole worked for 4 years. Hopefully I will get as long on the new treatment Dont want to go in introvenus chemo. Hopefully something new will come along.

Carolyn

Thank you for your response. I have posted on the Cap thread as well. Hopefully you will get as long as me on Letrozole fingers crossed. Wish someone would find a cure.

Pleased the way it has worked out and managed a lovely holiday with all family. I feel life is mapped out.

Take care.

Linda.

Hi Funnyface

Thank you for your kind words and support. I did realise you have been on cap. I have been looking on Amazon regarding uddly cream. I am not sure which one is best as there is so many to choose from.
How are you getting on with E/E?

I am going try and delay treatment for 2 weeks. I just don’t want to be poorly and spoil the day.

Take care.
Linda

Isn’t that the cream they use on cows udders to keep them soft etc …I think there was a veteran actress saying how she uses it for her face wrinkles …think it was Raquel Welch or Jane Fonda?
Xxxxx

Ps …noticed sainsburys doing a big promotion of horse mane shampoo for strong quick hair growth …so with this and udder cream. …we will be all shopping at the vets before long …
Xxxx

Morning to everyone who has sent me kind words and information about the udderly cream. I will order some today from Amazon.

Off out today for lunch with a friend and a few drinks.

Once again thank you all. Will keep you all upto date with progress once I start treatment.

I don’t know what I do would do if I did not have the support from ladies on this forum.

Sending hugs.

Linda

Oh Renee

You are certainly going through more treatments than most ladies would tolerate …hang in there and take lots of naps and rest …

But…hopefully hitting the little blighters from all directions will be bye bye mets !!

Sending hugs xxxx

Linda

All the best for the new treatment …it’s good you are getting so much support on the Cape thread too…
Stay with us here …we are all a little family really.
Hugs ?

Hi Renee I love to read your posts. Your spirit is so generous. You remind me of my mother in law. She had lots wrong with her but she was always cheerful, at least in public and everyone loved to see her including those who cared for her. Thank you. Love Bon xx

Ff
Love your attitude …when I got dx with secondaries …the 1st thing I said was …well I’ve had 11 years healthy and well …so what I’ve got a sell buy date now …but at least I’ve got a chance to squeeze a few more things into life !!
No one knows whats around the corner …just a day at a time …
???

Hi ladies
Just checking in for Ladybird. We saw onc today and he said mets were stable in femur and pelvis but something now showing up in a vertebrae which needs attention.
Suggests we see another onc at Christies who specializes in this and he will probably change her from Letrozole to another.
Mentioned radio which didn’t go down well.
Ah well off we go again!
Good luck everyone.
X

Hello ladies

Is it just me or has anyone put their heating on today ? Im cold …Letrozole is not keeping me warm …so sweatshirt and jeans for me …flip flops back in cupboard. Hubs is reminding me it’s only September but when I’m cold …I need heat !!
Hugs xxx♨

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Hello Renee
Glad it’s just not me feeling cold today. Normally September is lovely month for holidays here in the West Country but this year it’s gone belly up and winter has set in too quickly …
Your friends hopefully will take some warm clothes but the fresh sea air will be nice in Croyde bay.
Xxx

Hello ladies …hope you have all had a good weekend. .it’s been radio silence here so sounds it’s all been good !!
Saturday night I was home alone ( very rare in my house and to get the remotes all to myself) …anyway I heard an almighty thump upstairs. .aagh was it a burglar or the roof collapsing …so I put my big girl pants on …put all the lights on and went upstairs to investigate and what am I like? Armed myself with a yellow plastic fly swat …why? Anyway a big mirror had fallen off wall in bedroom and hey hoo …it didn’t break either …I didn’t need 7 years bad luck !!
Hugs xxx

OMG. …FF …you know what we are like in the UK with guns. .not many of us own them !! But I have two fly swats …1 plastic and the other a zapper and I’m not afraid to use them !!! Ha ha …I hate flies.

Hubby keeps a baseball bat under the bed but the thump was in that room …so I would have had to say to burglar " excuse me please whilst I fish under the bed for the baseball bat to hit you with “”

It’s warming up a bit here today …but flip flops are a no no for my cold feet !!

Hugs xxx