Bone mets - please join in (Part 1)

Hello pina
Welcome to the forum …rads can help pain a lot for many of us …I had hips / pelvis done in one blast two years ago and it did help I think.
It’s a decision you need to make but be guided by your oncologist …ask lots of questions and anything can help if it’s pain relief! !
Hugs xx

Hello Ramade

Just sending you a massive hug and hope rads helps the pain .
Keep in touch xxxxx

Hi everyone. I was dx November 2009 with stage 2 grade 3 involving lymph nodes. Had double mastectomy & took lymph nodes. The “bad” chemo 6 months, daily radiation 6 weeks, herceptin weekly for a year, tamoxifen 5 years. They wanted to put me on a different daily pill for 10 more years. I’ve had enough. So my right hip has been hurting for over a year. Now I’m hurting into my pubic bone. PET scan showed a hot spot in my left hip but they said it was indicative of a torn psoas muscle so sent me to ortho. They said not a torn muscle and looked like it’s from my degenerated lumbar spine, scholiosis, and dx today with spina bifida occulta. My question…would just a torn muscle show in a pet scan? Because from my understanding, the glucose serum they mix with your blood draws cancer cells to that spot, thus showing hot spots on a PET scan. Do torn muscles or maybe even pain show up as hot spots? I’m really worried. I’ve had X-rays, CT’s, MRI’s, PET scan, everything except a bone biopsy, but I’ve heard of women having mets in hips that doesn’t show up until later?

*both pain and hot spot in right hip, not left. Sorry. I hope I’m posting in the right place?

Hi all

Thought I would add my 10p worth. When I had rads to hips I had no immediate relief or extra pain but after a couple of months felt better and could walk pain free and sit without burning pain in hip. Unfortunately I have more mets in spine and being radioed this week so am expecting the same . I also now have to have a bone scan to check elsewhere and dreading they will find something as have pain in rib near my breast bone but as my Onc says we can zap bones!

Hi Ramade,
I am happy that your new treatment is going well. Does radiation kill only the cancer cells? You will also be on new medication i suppose. Is this hormone therapy ? I am on the same medicines but dose reduced. I have pain in my ribs and spine. I was wondering if radiation may help.
It is autumn festival here in India . A time for family gathering and celebration.so we are having lots of fun.
love and best wishes to all

Hi there just to say i have had radiation to my spine it took a full 3 months to be pain feee. Initially was sore and had flare up but is so worth it. Hope this helps xx

Thank you - it’s good to hear all your thoughts on the radiotherapy. I’ve now got an appointment to see radiotherapy consultant in 2 weeks, full body Mri in 3 months to check on spread and onc appt in 3 months to decide whether to switch to tablet chemo- capetabine. My oncologist said it’s in the bone marrow of my vertebrae- not quite sure exactly on the implications?

Glad to hear mostly positive things about the radiotherapy ?

Hello, much love to all of you and thanks for all your lovely comments. Every day this week I have had what they call a heavy load of radiation down the spine, and area from the neck 14 inches down abd 5 inches wide. I feel blitzed now but have good pain meds and feel very calm. They said that there is a lot of cancer in every bone in my body but that the organs are at the moment free. As soon as the inflammation goes down I will be back on a chemo to try to solve the smaller pieces of cancer. The good news is that they did x rays through the radiatiin machine and saw that the bone is desperately trying to rebuild itself. Will update in a few days.

love again to all of you very very brave troopers.

ramade xx

Hello Ramade
That sounds very good and it’s a lot of nuking but if it helps …sounds like you will need some rest for a few weeks but don’t feel guilty … lots of box sets, comfy pj’s and cushions on sofa for you …
Keep in touch and sending hugs xxxx

Ramade- sounds like you should be glowing after all that treatment. Hope you are comfortable and the pain meds are doing their job. Have a lazy few weeks. Xxx

Hi girls

Sorry about the radio silence for a while. Things seemed to have calmed down although had visitors and that was crazy. Anyway, got a date for the oopherectomy 23/10 and whilst they said it’d be a day op I’ve asked to stay the night, and they’ve agreed.
I also saw the onc last week and they’ve added everolimus to the exemestane. Hopefully it’ll stop the growth - ct scan in November.
How is everyone doing? :heart::heart:

Hello pmol
Good to hear from you and you will be better after the oomphdaisy op!! It will save the monthly injection that you are probably having now. Some of the ladies here have had it so hopefully will be able to give u info.
I also agree that a lot of day patient stuff is just too quick and a night in hospital just gives you the extra rest you will need.
Take care xxx

Hello babsy
Sorry you had problems with the morphine …something that is supposed to help you not almost put you into hospital.
Hope u are well settled into the coastal life now and relaxing with some nice sea air …
Xx

Hello ladies
Well it’s October. .I’ve just packed all the flip flops and summer stuff away so if we get an Indian summer I’m going to be the sweaty Betty in warm clothes !!
Decided to have a capsule winter wardrobe …20 jumpers, 20 jeans and 12 pairs of boots !! Please stop me doing anymore retail therapy …I just don’t need anymore clothes !!!
Xx???

Hello Maria
Actually I’m still wearing my beloved sketchers …but boots will be my next step !! Boots just stacked in bottom of wardrobe …plenty of room there for more if I move some handbags first !!!
Xxxxc

Oh dearie me ff …now I’m feeling guilty but I also own a dozen pairs of ballet type pumps, sketchers and enough pairs of furry slippers to warm up the whole of UK cold feet !! Ha ha.
When u say pocketbooks …I think u mean the little messenger type bags we use as I think in US you call proper handbags. …“purses” . In UK a purse is something we put our cash and credit cards in …within our bags !!!
Down here in Devon we call sweaters "Woolies " too …strange language really.
Hugs xxx

Ff
I watched the vegas attack coming in live this morning …horrific again on innocent people enjoying life …my son was there in may …renewing his marriage vows. …
What a world for the future generations. .
Xxx

My heart hurts for these victims of such a senseless attack. These acts of violence need to stop! It sickens me that so many innocent people have lost their lives over such a senseless act of evil and hate. So incredibly sad :frowning:?