Bone mets - please join in (Part 1)

Oh ff …Lucky you loosing that weight but I know it was hard work for you …I’m being miss piggy eating pizza as I type here! !
I’ve been out today doing some retail therapy ( got to be done) and I went to a large shoe store …all the heeled boots and glitzy shoes were tempting …then I put on my sensible head looked at the flats …walked away most uninterested !!
All the money you save on choc and naughty food .you should put in a jar and then splash the cash on some new clothes.
Xxx

Oh Renee. .what a let down not getting the last nuking done today but it will soon be over.
When I was having my bone juice at chemo unit last week. .lady in next chair was having herceptin by injection in her thigh …so.much easier than iv and she was up and gone quickly …

Wow having a nurse for 2 hours …maybe u could just make a big pot of coffee and share some donuts. …or even ask her to cut your toe nails even to fill the time !!
Hugs xxxxx

Hi

I have been lurking about reading your posts since May when I had an xray of my hip after a fall. It showed a suspicious shadow which after a CT scan and biopsy was confirmed as a bone met. I have found reading your posts very encouraging and they have helped me through some very dark times while waiting for results. I had been on tamoxifen since my primary in 2014. I have been on letrozole since July and I am having my 2nd zometa infusion in a fortnight.  My oncologist is also talking about adding palbociclib to the mix. There doesn’t seem to be many of us on it. I know it is new but I can only really find much about it on the American sites.  I have a couple of weeks to think about it but I am feeling a bit overwhelmed by it all. Had just got my head round the letrozole and 3 monthly zometa. Got myself all worked up about changing over to letrozole as I convinced myself I was going to have every side effect going. Tamoxifen was a breeze… just a pity it didn’t work. Anyway so far so good with the letrozole.x

Absolutely and get sorw near time of new injectoo. Didnt get it this week as calcium to low and i fair miss it x

Hello pippin
Yes denosumab does work like that …I have mine 6 weekly and find I ache for a while before the jab and then get a couple weeks pain free between. .I get flu like symptoms for a few days after it too.

Hello Ben ten
Welcome to the forum. …you will find a lot of support and help here .
There isn’t many ladies on ibrance( paclociblib) yet because it’s still not funded for everyone. If you search you will find a thread here with some information.
There’s a lot of us here on letrozole …but if you go into " going through treatment" …hormone therapy you will find oodles of threads there too for info.
It’s always hard to accept secondary dx but feel free to rant and rave as we understand …
Xx

Oh Bon, what a beautiful picture! Definitely warrants a frame!
Hugs Janette xx

Oh bon …what a gorgeous photo …definitely needs printing off and framed …

Think we are meeting next Monday for coffee arnt we? Be nice to see you.
Xxx

Thank you Carolyn for your welcome. I am so glad I found this site.x

Whoop whoop FF…so exciting for you and you will make a lovely nanna …enjoy shopping for all pink fluffy things …that little girl will steal your heart and your purse strings !!
Hugs xxxxx

Congratulations FF

Hiya FF

I’m so sorry about your poor back …must be horrible but hopefully they can find out what’s caused it …I think Barton here had something similar a while ago …maybe if she’s reading she can offer some advice …
Hugs xxx

Hi all,

I did not post here for ages and did not read to be honest, I think I only come back when I am feeling low and do not know what to do, quite a selfish thing isn’t it.

I apologize, but probably some of you have felt the same way. I hope you are all fine.

Here is my small issue now:

I have been feeling ok, apart from my continuous bleeding dow there, so I continued insisting to be checked up and finally I was diagnosed with another cancer, this time endometriosis one, as if the other one is not enough. Luckily this one was a primary not invasive. I had a total histerectomy last week as they said that this is my only choice to have this one cured. No treatment needed afterwards. Now I am recovering. However my oncologist is not happy with the response of the bones so she wants me to have sam rads on my spine. I do not feel any pain at all and I am not sure I need that. I am so scared that after a radiotherapy I will start experiencing pains and I just do not want them, or at least would like to postpone them as long as I can. I know that I am selfish but I would highly apprecieate if you give me any kind of advise or share with me similar stories. I know that I will have to make the decision myself but yet, would be eager to know what you think.

Thanks

Evening Avrelia

So sorry to hear regarding another cancer. Hope you are recovering well after such a major ooeration.

Regarding your spine I would think it is upto you if you want the radiotherapy especially as you say you have no pain. You are still recovering from a major operation which normally takes about 6 weeks.

Linda

Evening Funnyface

Hope your back is feeling alot better now.

Congratulations on your forthcoming grandchild.

Hope your treatment is going OK.

Linda

Hi Averila!

hope you are feeling well after the op.

 

i’ve got mets on my spine and pelvis and in the summer my onc sent me for some radiotherapy.  I honestly didnt think I needed it and as it’s something that you can’t have indefinite, didn’t want to ‘burn my bridges’.  Anyway, had 5 sessions and has to be said have been great.  Felt a bit uncomfortable during the treatment but once i did the sessions it has improved a lot and made me realise that I was in more pain than I thought.

 

you have to do what feels right for you so don’t let anyone make a decision for you

 

xxxx

Thanks you so much about your kind and tender support. At least I know now that it is not that horrible. However I am going to have a word with the oncologist first to see why does she think I need that treatment at that very moment. Hugs to all. 

 

O funny face …glad u got some sleep. .5 hours is better than nothing …sounds like u r on the mend but a slow process of recovery! !
2 years ago …I sneezed and cracked a rib …took a month to heal and it was horrible as I couldn’t breath without pain. Convinced myself with fear it was something cancer related though !!
Hugs xx

Hello Renee
Sorry u have such pain but rads will sometimes cause that for a few weeks before it gets better.
Hoping you are being well looked after by the family and getting lots of slobbery kisses from the dog too !!
Hugs xxx

Hello Jeanette
Well got my ct scan booked for the 25th October. .think it’s the same time as yours. …but I’m having it done at our private hospital as a NHS patient so best put my posh underwear on for that !!
Hoping letrozole still doing it’s magic
Xxxxx