Hi Carolyn! So no appetite for choc is a good thing? That’s what I call looking on the bright side!
Here in Oxfordshire it’s dry but grey and windy and really quite cold. I hope they are right about this heatwave, we’re going to the Peak District for a few days in the camper van and could really do with some sun!
I’m still waiting for the cape to show any signs of working. Not optimistic as my aches and pains seem to be getting worse, though nothing that paracetamol can’t fix. Next consult with onc is 2may, then we decide whether to give the cape a few more weeks or move on to gemcarbo. Has anyone here had that?
Onc is very practical and has made it clear that if I get any worrying symptoms before 2may, I should let them know straight away. It feels quite reassuring, like a safety net under the high wire. But I’d still prefer not to fall!
Everyone, enjoy the sunshine when it comes!
Hello tatyana
Hope the cape works for you …lots of ladies here have been on it ages …yes we are promised sunshine for the next 3 days here …for some reason warmer weather does help the achy bones and gives everyone the feel good factor to do more.
Hope u enjoy your time in peak district with the camper van …it’s good to get away. …
Hugs xx
Hi all
Yes looking forward to some sunshine?. We went to the lake district in our motorhome last summer it’s so beautiful there - never been to the peak district one for the list though. Hoping to tour Europe in the van in june pending scan results.
Have a great time! X
Hello Anne, this is my 1st post on this forum but I wanted to share my story with you. Like yourself I jumped straight into stage 4 BC with whole spine, ribs, pelvis, hip and skull mets. I felt guilty as I hadn’t gone to the gp earlier and my dense tissue was only discovered at a routine mammogram though I was told it had been there a long time. I put my back ache down to my job and rib pain down to a strain. I often wonder would it have made much difference if I’d took more notice of my body instead of ‘getting on with it’. But hindsight and regrets are no good. After being told the chances of my BC spreading would be very unlikely and rare to hearing the bone scan results was a roller coaster. My diagnosis was in Nov 2017 and I have completed 6 rounds of EC chemo with luckily few side effects and subsequent bone scans have shown it chemo has been effective. I have recently started letrozole and palbociclib and continue with denosumab injections and Adcal tablets. I do ache and suffer hot flushes but am doing pretty good and am enjoying make g the most of life. I do get a bit fed up and angry occasionally but try to be bright and positive and look on the bright side - like my hair beginning to grow back!! I meet alot of friends and plan trips out, meals out, coffee catch ups and mini breaks and see as much of my family as possible and value all my friends and family and other sufferers whose support it is invaluable. I hope you are able to get through your bad days and enjoy the good ones. X
Hello Julie
Welcome to the forum …I hope you find lots of support and kindness here to help you through it all. It’s a real kick up the rear end to get dx with secondary bc …somehow with primary I just got on with it but this time round. .it’s different .
Hugs xx
Funny face
I can’t believe it but gave my easter Egg to hubby yesterday …up to a few weeks ago I would have had it under 24 hour guard …mine all mine !! Seem to fancy savoury stuff more now.
Seems there is a bonus to E and E after all.
Snow ? Can’t believe it but we have had too much rain here but promised sunshine for a few days now ! 
Thank you for sharing this with me. It was brave and helpful. I was a very sociable person but I don’t feel able to see people. Now as I blame myself for all the pain I’m causing. I even blame myself for the trouble the doctors are having. Everyone told me too that it wouldn’t have spread. The schoo nurse included. Clearly they were just being nice. I have three small areas on the bone but at the first consultation the nurse kept saying that once it’s out it’s hard to contain. As you can see I’m not being brave and positive I’m just allowing myself to be overwhelmed by feelings of regret and worthlessness. My partner says I need to believe that the treatments should
work. I’m having chemo bone injections and hormone therapy. Thank you again for your brave post. The ladies here are knowledgeable and encouraging. Best wishes Anne
The broken back sounds really painful and I hope the treatment helps you to be more comfortable x
I hope so too x
Afternoon ladies
Just to add to the mammogram debate. I have no faith in them what so ever.
Had first one nearly 53 second one nearly 56. Both came back clear. It was only just over a year later I noticed an indentation in side of breast. I was diagnosed with lobular breast which does not show up on mammograms as it starts off as soft tissue. Nobody tells that when you go for mamammgrams.
In August 2009 was told it had already spread to bones so it must have been there when I had mammogram Jan 2008.
Welcome to all the newbies.
Linda
Hi. I have secondary breast cancer in bones and have denosumab injection every 4 weeks. I have had about 12 lots now. I had a root canal treatment in Jan/Feb whilst on it and now need another (the first part is done with temp filling in and awaiting dental hospital appt to finish. My oncologist has suddenly said I shouldnt have the next injection because of this (due in 2 weeks now). I dont agree with him since a) I am not currently having dental work and b)why is it an issue now when it wasnt 2 months ago. My real question is has anyone had a break from denosumab (at the moment itll be an 8 week gap) and does anyone know if a break/gap affects its success? Thank you.
These posts are so helpful. I had no idea that is was possible to manage bone mets for so long. You ladies have helped a lot! I am trying to stop blaming myself. I am on chemo (palciobib?) and hormone. My dentist was very dismissive of the hospital’s concerns about dental work. I need some fillings and he said it’s fine to have them while having the bisphosphonate injections. Thank you again Anne
Will do! I’ve booked it all in for the first available date. Thanks to all of you this now seems a little more doable!
Thank you. I’ll certianly check!
Just to let you know that I have had a few “ordinary” fillings whilst I’ve been on denosumab. My dentist assures me that is fine as they don’t go near the bone. Extractions are a problem as the tooth obviously comes from the bone and “implants” are a definite no-no. So denosumab doesn’t need to be stopped for all dental procedures. I dread to think what happens if you need an extraction. Touch wood, I haven’t had that problem. I’ve been taking denosumab for over two and a half years.
Windflower
Thank you. That is exactly what my dentist said. I will also double check with the hospital when I go. Thank you. You are a great source of information!
Last year on Xmas eve I lost a front tooth filling …my lovely dentist fitted me in and just replaced the filling very careful …no injection or drilling. …it took 3 months to settle so I think we have to be very careful.
It’s tricky as we are all older and haven’t got perfect teeth. .
Hugs xx
I don’t know what it is! My hands are a bit numb in the mornings since I’ve been taking palciobiblib. Sunshine is lovely x
Hello silver lining
Must say I’ve not heard of the hand thing but everyone gets different side effects of treatments .think my hubs would be glad to see me stop texting so much and often says he will get my phone surgically removed from my hands !
Hugs xxx
Well gorgeous weather again …hubs bought a new all singing all dancing lawn mower yesterday. .got it home and unpacked. .didn’t work so took it back for a replacement.
He’s up at silly o clock this morning assembling it …a boy with a new toy …he shot across the lawn doing wheelies with it ! Maybe he should have bought a “senior one” that was a bit slower !!
Grass looks nice though. .hubby not looking so healthy.
Hugs xx?