Yes it would be great to have a secondary nurse, it’s really a very different job from primary and could make a real difference. I so admire what these nurses do.
Bon, I also had a two hour wait once, the result is that now if I get to see the doc less than half an hour late, I feel really pleased!
Ironing? Ha!
A breast care nurse at my hospital actually said to me they didn’t really know what to do with secondary patients and we tend to fall into a hole in the service! She said she would call me back after her holiday last October, still waiting for that call!!
Cannot praise Penny Brohn enough, The Haven too!
When I had my primary bc …I literally fell over bcn everytime I went to oncology but no signs of any secondary bc nurse at all now.
It would be so nice to have that support but my oncologist secretary is very good.
I understand that more time and finances are now available for primary bc to avoid reoccurrence but we do seem to be the forgotten ladies at times.
Xx
That’s really bad and upsetting. We all deserve support and advice. I wish I lived nearer Bristol!
Let’s all go to Bristol !!
That’s a good idea. I’ll have a look on the website. We’ve booked a weekend away as a family and I’m really looking forward to it. Hope everyone who has the sunshine and the Bank Holiday enjoys it x
Thank you!
Hello ladies
Bet there isn’t a washing machine in the UK that isn’t in use today !!! Mine is on its 2nd run already.
Hope everyone is enjoying the sunshine …it does help the achy bones! !
Yup, first wash hung out and almost dry already! I think I can hear the sound of barbecues being resurrected and scrubbed down… Now, where’s the sunscreen?
I agree. So impressive that you are looking after people. I’ve been very selfish recently.
FF, your post really struck a chord with me, because I have two elderly and infirm parents who are now living in a care home but until a few weeks ago were still living in their own house and just about barely managing to cope, purely because of the loving help and support they were receiving from caregivers like you. I can’t tell you how much it meant to them to be able to remain in their own home as long as possible, and how many times the carers saved the day by spotting a problem early and/or picking up the pieces after a crisis.
So my heart goes out to you with the most sincere thanks for what you are doing. To do it when you have such health issues of your own is just amazing. My father also has a kind of dementia that can cause fits of aggression, so I know how that goes, too. Sending you lots of hugs. Enjoy the game- and the not cooking dinner!
Hats off to you FF, I think you are amazing!
Hugs Janette xx
I can’t believe you are volunteering and helping others. You make me feel very ashamed. I have just been feeling very sorry for myself. You really are impressive
You shouldn’t keep your mind off you you should be proud of what you do. I am doing my best but am still finding it hard.
Hi Anne, just wanted to say, I’m now 1 yr on from diagnosis of recurrence, and 4 months on from secondary diagnosis, and trust me, I’m still finding it hard! But at the same time I’m enjoying life. A lot. It’s still early days for you, you still have to get used to this whole rollercoaster. Sometimes it’s great to do stuff that takes your mind off it, other times you just need to look after yourself and give yourself time to let those emotions settle down. Be kind to yourself and enjoy the sunshine!
That’s encouraging. Well done you! I had secondaries from the start and feel really embarrassed about it! It feels really unusual. I am enjoying the sunshine today and reading my book. I’m also eating seeds and putting turmeric in my coffee! Several people have urged me to do something positive.
Thank you for your message. It’s very hard to accept but my oncologist says it’s actually not that uncommon. Hope your treatment is going well.
Hello ladies
Just a little heads up …last week I was on anti biotics …they didn’t work and I felt really sicky etc.
If u Google the drugs u are taking and then put in “interaction .” .it will list all the things u shouldn’t take.
My anti biotics were listed as a no no for me on my medication !!
Always worth checking when we are already dealing with side effects .
Hugs xx?
How are you getting on? Hope the treatment isn’t too awful and you are coping
Hi everyone,
I very rarely post on here, but always read what others have said.
Going back to dentistry, I have been led a bit of a merry dance lately. I was supposed to have a crown removed from a back molar, the underlying tooth filled and then a new crown fitted. The first part was to be done yesterday. It was quite difficult to arrange this as the dentist wanted confirmation from my consultant that it would be OK to do it, because of the danger of osteonecrosis. My consultant is presently on maternity leave so the secretary asked another one who said it would be OK but it must have it no less than four weeks after my Denosumab injection and no less than four weeks before the next one. I therefore booked an appointment with the receptionist for yesterday and cancelled my injection for that day. However, after waiting about 20 minutes after the appointed time in the dentist’s, I was informed they couldn’t do it as the receptionist had only booked me in for 30 minutes and it would take 75 minutes! I was really fed up. You would have thought someone would have told her how long it would take. The dentist also said that asking the consultant had only been a precautionary measure, as the jaw bone wouldn’t be involved. Fillings are OK (which I have had before whilst on Denosumab) but extractions or implants are not.
I made another appointment for 21st May and then had to phone the Macmillan unit to explain what had happened. The lovely nurse there decided I should come for my appointment for bloods and to see the doctor on 31st May and then he could say when I could have my next injection.
This is really annoying as we are trying to book a holiday some time in June that will not clash with any of my appointments.
I am off for a CT scan tomorrow. I had to press for it as I hadn’t had one for twelve months and haven’t got any noticeable symptoms. I don’t think I have ever had any TM tests, just the usual blood tests.
Anyway, I just wanted to let off steam and hope I haven’t bored anyone!
Ruth (Windflower)