Bone mets - please join in (Part 1)

Hello Ruth

Its good to let off steam and this is the place to do it as we totally understand …it’s bad enough dealing with this disease but chasing and having to keep things on par is something we shouldn’t have to do.

I’m chasing scan results and getting no where …I do not have a bcn nurse!

Hugs xxx

It is very time consuming dealing with all the appointments and things. It can all get a bit frustrating. Totally understandable. But a holiday sounds good!

I hope it’s working.

How are you getting on butterfly? Hope you are seeing some daily beauty in life. My mother sent me a picture of some ducklings today. So sweet

Well done you. In my hopeful times I see that in some cases secondaries can be kept relatively quiet for some time. There are ladies here who will confirm that. I didn’t have any treatment for primary as the secondary was found in my bones. On Ibrance and Aristozole plus bone injections. Seeing family today and learning to see beauty again. Hope your treatment is bearable and successsul. I think there’s quite a few they can try!

I’m doing my best! I’ve certainly struggled to come to terms with the secondary diagnosis. It seems that everyone I meet has had no spread and is over it all. It’s so good to connect with people who understand. It’s also reassuring to hear that sometimes treatment can work well! Thank you for the encouragement

Hello ladies

All quiet here so guess you all enjoyed the lovely sunny weekend …
Summer is such a nice time of the year …got my flip flops out and summer things now …that will jinx the weather. .all chunky jumpers binned. …

Oh ladies what a shock …woke up 2ish for my coffee /bicky and there’s a huge hairy spider on my pillow . No time to scream …hit him with my kindle but he ran off …So pillows,sheets removed and found the little blighter licking his wounds …hit him with my slipper …still refused to give in so sprayed him with fly spray that seem to give him energy to recover …well was a bit short of lethal weapons for hunting spiders so in the end grabbed him in a baby wipe and flushed him down loo. Enjoy your swim mate …

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Oh ladies what a shock …woke up 2ish for my coffee /bicky and there’s a huge hairy spider on my pillow . No time to scream …hit him with my kindle but he ran off …So pillows,sheets removed and found the little blighter licking his wounds …hit him with my slipper …still refused to give in so sprayed him with fly spray that seem to give him energy to recover …well was a bit short of lethal weapons for hunting spiders so in the end grabbed him in a baby wipe and flushed him down loo. Enjoy your swim mate …

 

Carolyn, it gave me the creeps just reading your story! If they have a picture of a spider in the newspaper, I have to turn over the page and not read it!

Got into bed last night hoping he didn’t have any brothers or sister’s seeking revenge but took a few extra tools to bed just in case …a bowl to cover one with and a fly swat !! I am not that scared but hate the thought of them crawling on my pillow. Didn’t I read somewhere once that everyone swallows a few whilst sleeping during their lifetime ! ???

Ff
Stink bugs sound awful …ugh. it’s funny once u get it in your head …it makes sleeping difficult.
We have these rough ugly bees that keep coming in our lounge. .they are not honey bees but have a large stinger. Hubby thinks he’s killed about 2 a day for the last month as they won’t go if u open the window and are quite aggressive …think they must have come from Europe or something. …never seen them before.

We have a moth infestation…so creepy, keep finding pure all over things and even under my quilt!

 

so I think stink bugs and huge ferocious bees would really creep me outxxx

Yes. Lovely weather and a stunning bride. Loved the dress. So elegant

How are you getting on butterflyflyfree? Hope you are okay and enjoyed the Royal Wedding and maybe some sunshine.

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I.just loved the royal wedding yesterday …breath of fresh air …and a boost to UK economy with all those designer outfits, hats and shoes!
Victoria Beckham looked miserable and drab but George Clooney wife stole the style stake for her beautiful outfit. Queen looked lovely in lime green too.

I’m proud to be British when I see how the wedding was staged so beautiful .

I have excellent support and am just starting not to think about cancer all day every day! My secondaries are in my bones. I am on Anastrozole and bone injections plus Ibrance but I have had to have two weeks off Ibrance as my white cell count has dropped. Appointment tomorrow. Do you know what treatment you’ll be on? I’m not sure where your secondaries are? Maybe you’d prefer not to say. Enjoy seeing your daughter. Enjoy all you can. It’s easier said than done but between appointments and treatments life needs to be lived. Well done you for the progress you’ve made. Hope it’s sunny there!

By the way why does Victoria Beckham look so miserable? Her life looks pretty good from the outside!

It was nice and quiet on the beach yesterday but I did watch it later and loved their happiness, the music and Bishop Michael’s sermon. Let’s hope they are given the chance to have a happy life together without all the pressure.