Thank you Ramade. They have put me on Pregabalin now xx
Hiya nicky
So another holiday ā¦Lucky you and hope u had a nice time. I read the old threads on E and E and it does seem to cause a lot of misery but Iām determined to keep going a bit longer.
I remember a few years ago it was withdrawn by NICE due to cost and side effects and a very low success rate but oncologist says itās back and avaliable again. Guess they have been offered it at a reduced rate and we are guinea pigs maybe !
Paclocibib ( ibrance) is the better option but only available still for first line treatment.
Oh funny face
I am disappointed that u r having the scratchy time as I keep telling myself that you cope with E and E so well ā¦and I must be a wuss ā¦I havenāt really had the itch like u but obviously a very common side effect .
I hope it gets better you poor love ā¦this combination is definitely the devil pills with things and very few of us here on it. I know Lyndyloo took it for over 3 years with no problems ā¦I know she wonāt mind me saying but itās a tough one to manage. Good side is it takes appetite away and Iām enjoying the weight loss like you !
Well upwards and onwards as they say ā¦letās hope itās kicking the little blighters .
Hello ladies
Very quiet here lately ā¦do hereās a wake up call to the regulars. .
Iām up bright and early this morning drinking coffee in the garden ā¦such a lovely time of day watching all the little birds feeding on the fat balls hubby puts out for them.
What is it with me and spiders ā¦Iām like a pied piper for them. .last night one crawled out my handbag ā¦Oh yes ā¦it was HUGE ā¦body was about 2 inches and fat hairy legs ā¦Lucky my hero ā¦hubby was on hand to do his big white hunter thing!
??
Oh Carolyn, where would we be without our superhero husbands! Mine had to rescue me from a spider in the bath yesterday. Not that I wanted to use the bath, I just couldnāt be in the same room with that horridbthing looking at me!
I have two weeks off before I start my next chemo, gemcarbo. So weāre sneaking off for a week in France in the campervan! Trying to fend off the"this could be the last time" thoughts, and just enjoy it. Struggling a bit with neck and shoulder pain from my lumps. But Iām sure Iāll be fine once we hit the road!
Enjoy this sunny Sunday everyone!
Oh tatyana
That sounds lovely a week in the camper van. .rest and relax ready for the new chemo. My sis has a camper van. .loves it as she has a pampered dog and can take him with them.
Bon
Itās a way forward for lots of primary ladies to avoid chemo unnecessary and of course a huge savings to NHS too ā¦
I also read on another site that low doses of Cape chemo pills are now found to work just as well as high dosage and so lower side effects hopefully and of course a saving too.
Let hope progress helps the next generation to avoid such drastic treatments .
Yes I saw that. It was really interesting. Thanks for posting the article
Yes I read that article too very encouraging lots of progress being made - it amazes me how medicine is advancing!
We are also off in our camper van next week touring Europe for 3 weeks. Got a beautiful new addition to the family my sister had a baby boy last week - very emotional as when she first told me she was pregnant wondered if I would get to hold him and her I am enjoying lots of cuddles?
Congratulations Sarahlew, how wonderful to have cuddles with your new baby nephew. Give him a hug from me!?
Thanks tatyana!
Sarahlew, Greetings from my campervan. We are only in Dorset but itās beautiful and warm and sunny. Cuddling your nephew must be a great joy. Thereās nothinglike it. Congratulations xx
Thank you ladies yes going to treasure every moment with him!
You are having glorious weather Dorset is beautiful keep having a wonderful time fellow camper bon?
Hi all, I havenāt been on for a while. Just trying to catch up on the latest news.
Carolyn - a note about codeine, my husbsndās head swole up terribly a few years ago. We were skiing and heād had a chest infection the week before. One day we skied pretty hard with friends, stopped for a drink and Markās face was swollen with his glasses embedded into his skin. By the time we skied back to the village he was practically blind his whole face/head was swollen. This went on for several days. The doctor said it was a reaction between the codeine and antibiotics which was made worse by the strong sun.
Perhaps the may heatwave may have been a contributing factor for you? X
Hiya riverside dawn
Nice to hear from you ā¦think I read on another great you are doing OK on the regime.
Trouble is we all take so many pills and potions itās hard to tie down where the problem is from !
Looking at the time you posted ā¦you seem to have the same bizarre sleeping habits as me ā¦I make coffee, read or play on the Kindle but of course then Iām asleep to lunchtime ! But hey hoo ā¦Iām retired so allowed.
Hello nicky
Oh the joys of wriggling babies ā¦twins are 8 months now ā¦wriggle and jiggle too much for me to manage. They are being christened of Sunday which will be nice ā¦followed by a hog roast nearby to church.
Glad u have recovered so well after the liver op and off on another holibob. A friend has just been dx with aggressive liver cancer but they canāt find the primary one so treatment still being delayed.
So u are off to be used as a dart board later ā¦denosumab and faslodex ā¦ouch .
Hiya ff
Sorry u have heart problems now to face ā¦what with your toe and eyes ā¦itās been a nightmare time for you.
Glad the itching is better ā¦I had visions of you out in your garden ā¦scratching against a tree like balooh in jungle book !! Ha ha. ?
Trying to get some energy to buy some shoes for christening on Sunday. ā¦
Xxxxx
Ff
Getting really fed up with all these side effects of pills ā¦I just donāt feel me anymore!
Iām not sure whether size 10 wide is US size as it sounds rather large ! Iām a humble size 5 in UK size.
I actually bought just a pair of cream lace ballet pumps ā¦boring but my jacket is lace .
When it comes to pill popping these devil pills . .I just feel like not bothering but then I think why let the cancer win ?
Nicky, have a wonderful holiday and good luck at the oncs.
Carolyn, have a wonderful special christening day and hope it blogs out everything else for the day.
Ff glad your itching is better hope they sort your heart out.
I will have a wriggling baby boy to cuddle in October
Love to all Non xx
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