Lovely wedding. .watched every minute from 9am but Victoria Beckham looked liked she was going to a funeral in that drab dress and she’s a dress designer …all that money and a handsome hubby doesn’t seem to bring her much happiness …she wants to live in our shoes …that’s what misery is.
But a good day for the British economy with all those designer outfits , shoes and hats bought. Thought George Clooney wife stole the day in her beautiful mustard outfit and of course queen looked nice in lime green .
Hello all, this is my first post. I was diagnosed in June 2016 (breast spread to spine + ribs) and was initially put on docataxel, herceptin, pertuzumab + zometa. Docataxel was stopped after 6 sessions. Then in January this year I was told that wasn’t working so they put me on TDM-1 and denosumab.
Anyway now I have horrendous tingling and pains in my toes, hands, feet which means that I haven’t slept for 2 weeks!! I think I am losing the plot.
Any advice on how to manage this intolerable torrent?
I am seeing my oncologist on Wednesday and I do have a fairly helpful CNS.
Thanks in advance x
So glad you had a good day. Blood count back up so on Ibrance again but lower dose. I haven’t heard of the tingling but someone else may well have done! I was very achy after my first zometa injection. Still sunny here!
Hello ladies
Been a bit quiet here lately as I haven’t been too well …had a brain scan a few weeks ago and been waiting for results .
Brain head and face. .clear
Dental x ray …clear …no jaw probs.
Lymph nodes in neck …clear.
Still haven’t found out why I have a numb swollen face and dizzy spells but carrying on with exmestance and everolimus for another 4 weeks.
Had a new oncologist today …brilliant …just got everything checked out whilst I waited ( 5 hours but worth it )
Carolyn, so glad to hear that nothing sinister is going on. Now let’s hope they can do something about those symptoms! And it’s great that you like the new oncologist.
Sorry to read in Cape thread that it’s stopped working for you …somehow treatment becomes like a pair of comfy slippers and starting new stuff is so nerve wracking …but hope the gem carbo works well for you …I don’t think u loose your hair either with that one …
I was sad to stop letrozole a few months ago as I seem to tolerate it well but that’s life!
Awww Carolyn, I know I’ve already been in touch about your fantastic news but just wanted to jump on here to to join everyone else in celebrating your good news!..I hope you celebrated last night!
Let’s hope they can get your numbness sorted soon but at least you know it’s nothing sinister!
Hugs Janette xx
Hi Carolyn Great news and hopefully you are now able to relax and enjoy the bank holiday. Lots of best wishes to you all and heres hoping everything is working for us
Thank you so much for saying about the swollen face …oncologist says not a side effect !! I call everolimus the devil pill but determined to keep going and give it a try . It also says on Google it can intereact against denosumab too …aagh. .no win.
Sometimes with these things you have to try to solve them yourself. Hospital have no ideas.
Also, I have been taking codeine as a pain relief so am.now going to stop them for a week and see if it could be them interacting with the devil pills !
Hi Carolyn,
Really pleased that your brain scan showed nothing to worry about. It is just terrifying waiting for those results. I hope you get your face swelling sorted out soon. Does sound like some sort of drug interaction.
Lots of love
Waffles x
Yes. Pleased about your good news Carolyn, everolemus has dizzyness listed asa s/e, and I agree about the oncs not knowing about all the side effects…I think they also play them down too! I remember being told I’d likely get none on Cape…and the first month I got every one…AND a dvt to boot.!
i was told Paclitaxel likely wouldn’t give me half the listed side effects, but iv had most of the comm9n ones now…today it’s constant nausea and muscle/bone pain, other days it’s rashes-or sore dry eyes
Also get a load of nasty ideas running through my head but we all get those don’t we at times.
