I just want to say, I for one am not worried or upset by stats etc. I’m just not interested in them.
I understand some people are, and that’s their choice.
I’ve never been normal in my life and don’t plan on being normal now, so normal stats would be of no use at all to me. ?
Tatyana, watching football in the village hall sounds lovely. I’m always a bit envious of those who live in villages where everyone gets together for events and celebrations. ?
I certainly don’t think anyone should be told off for mentioning stats. I looked at them a lot when I was first diagnosed. I’m not sure it did me much good but people should do what suits them. However, I would say that for me the best thing has been to listen to what my oncologist says about me. We’re all different. If a patient wants to know what the future may hold the oncologist will have the best idea. Mine says she doesn’t know! Best wishes to all x
Hey ho Silver! I can’t see what’s wrong with posting anything you want! This thread is for people who already have a secondary diagnosis, of course stats are only stats, but some people like to have information, and this is a great place to share. I know I’ve learned a lot which I would never have learned if people felt they couldn’t post anything gloomy!!
It’s a different matter with other areas of the forum where people are still coming to terms with a primary diagnosis, I try to make sure anything I post there is reasonably optimistic!
But there’s some amazing optimistic stuff here too. As for the stats: with my first ever diagnosis I was quoted 70%. I thought that sounded good. Many years later, I think 20% sounds good. It all depends where you are coming from!
Kate, I love your attitude! “2-3 years! Huh! I’m not having that-- I’ll show you!” Go girl!
Dear Silver and Tatiana,
You’re both too kind, I’d say more stubborn, and not liking being told what to do!
Love to you both, Kate x
Does anyone keep in touch with Finty? I did hear she was having treatment in Germany and had posted on an American site. Thanks
Finty opened this thread on 2010 ( 8 years ago) and she moved to the US website "inspire " …she was quite active there for a while. One of the other members was trying to contact her but said her profile was now inactive. …
That’s about all I know but I have only been here since October 2015 myself.
Can anyone tell me what bone Mets are please ?
Mets is short for metastases, which is when the cancer spreads to somewhere other than its original place.
Hi everyone, A word on stats, it is better to be anecdotally alive than statistically dead. We only become a statistic when we die!! On this thread we are all very much alive. I have had bone mets for nearly 10 years now. I had a bit of progression last year and had to have rads and meds were changed. I am now well again, tumour markers are the lowest they have been for about five years. I have just moved into a wreck if a house which we are renovating so spend most days covered in dust from mortar, plaster and bricks and sometimes soot. Here’s hoping everyone has an enjoyable weekend?
Hello All,
Well I am now menopausal and ready to start the main drugs.
I am due to start Letrozol and penu something. has anyone any advice.
Thanks
A
Well said Alex.
And good luck with the house. We did exactly the same while I was on fec-t last year. At one stage we had no loo for two weeks. ?
It’s not for the faint hearted, but totally worth it in the end. ?
It’s good to hear that there are other renovators out there. Feelthefear, you are right it’s not for the faint hearted, having no loo for a couple of weeks must have been difficult. We had a big gas leak and problems with water pipes when we moved in but only had to use a bucket of water to flush the loo for a couple of days. We have found the original lime plaster under the layers of woudchip so I have enrolled in a lime plastering course. The cottage is grade 2 listed and is in a conservation area which means we have to have listed consent for a lot of stuff. The new thatch is going on next week which will stop the rain coming in through the roof.
Kate21, I don’t think I have made any lifestyle changes since diagnosis, I pretty much do as I please. Last year I did reduce my carb intake last year to help support a neighbour who has type 2 diabetes, however I think I have more energy as a consequence.
AlexDe xx
??? spider alert
Got up …just putting on my bra …huge hairy spider in it …aagh .
Also …got a big furry bumble bee in lounge that needs to go to SPECS AVERS. …he’s trying to get lunch out of my silk flowers! Bless him
Nothing. .I expect to what you girls have found with renovating your old houses. …many years ago we did up a old terrace house …found a mouse in the toaster. .so hubs switched it on …toasty mouse for breakfast anyone ?
??
Alexde, it’s reassuring to hear from someone who is doing so well and hasn’t made major lifestyle changes such as no dairy, no sugar, no alcohol, no meat, no fish etc.
I really enjoy a glass of wine, the odd piece of chocolate, a delicious wedge of cheese, buttered toast. ?
I’m not overweight, I jog 3 or 4 times a week and only ever cook from scratch. I’ve gone organic wherever I can, im hoping this is enough.
Everything in moderation of course and no refined sugar for me. That just means organic chocolate. ??
The thought of a life with absolutely no little pleasures absolutely depresses me. I hope that’s not what I need to do to gain an extra few years. ?
A new thatch roof sounds lovely. ?
The sun is shining so here’s to a good weekend Alexde, Kate21 and everyone else. ??
FTD, I so agree with you on lifestyle. I eat a pretty healthy diet, cook from scratch, lots of organic, lots of fruit and veg. But I do love a piece of cake, a bit of chocolate, the odd glass of wine etc. I’ve tried quite hard to find evidence regarding diet, and I have never found any solid scientific evidence that there is anything to be gained from extreme measures such as totally excluding dairy, or sugar, or whatever. Or from eating manuka honey or goji berries.
I’m not knocking it, I totally get how it can make you feel better if you take control and make some changes. And anything that makes anyone feel better is fine with me! But I don’t think there’s a magic bullet. Sugar won’t kill you and honey won’t save you. Enjoy them both.
Best diet advice I ever heard: “Eat food. Mainly plants. Not too much.”
On a different topic, I’m in awe of you renovators. I’ve always been daunted even by painting the front room! But Alex, your cottage sounds wonderful!
And Carolyn: you and spiders. Is your real name Ziggy Stardust by any chance?
Hugs all round and enjoy the tennis, if anyone can bear to sit indoors in this weather!
Hello tatyana
Diet is always the bain of conversation here …after my primary bc 14 years ago …I did the Jane Plant diet for 3 months …I was miserable, felt malnourished and decided just to be a little bit sensible by avoiding too much alcohol and fatty
foods …I was in remission for 11 years so guess maybe it helped but we will never know !
Yes …Fed up with spiders …just call me the spider pied piper …my son says he’s found loads of dead ones daily on his patio …apparently they die of thirst in the hot weather!
I used to love diy back in the days too …funny I could plaster a wall but couldn’t ice a cake ! Once wallpapered a big hallway …23 rolls it took!
Alexd, thank you for your inspiring post, I’m now 4 years on from mets dx, like you I haven’t changed my lifestyle either, I’m a great believer in everything in moderation, I am a total chocoholic and every Saturday and Sunday evening I have my Dairy milk fix and a cheeky couple of glasses of wine, we very rearly have take aways and eat relatively healthy mid week.
Life is for living ladies enjoy it!!
I commend you for renovating your house though, the thought of emulsioning one room fills me with dread!!!
Hugs to all Janette xxx
Morning ladies.
Kate21, I don’t believe anyone said that lifestyle choices make no difference?
However, good for you that you seem to have cut out sugar. I know for some people that’s very difficult.
Like I said in my earlier post, I’ve cut out refined sugar. I’ve also cut back on natural sugars.
I was never a chocoholic so it hasn’t been that difficult. And I’d certainly not dream about reaching for cake or chocolate at a gig or let’s say a football match. I’d probably like an alcoholic drink at some point though. ?
Reading through the other ladies posts I think most of us are making an effort to eat very well with only odd treats. I don’t think eating chocolate twice a week is going to make a huge difference, but I’m no expert.
I thought it was when cells are being constantly stimulated (daily) by sugar that we need to worry.
However, I’m convinced my cancer was caused by grief and not lifestyle. I’m still very wary of feeding these rogue cells sugar though.
Hi Kate, I just want to say I’m with you all of the way in that I’m an absolute supporter of freedom of speech.
I totally agree that everyone on here should be entitled to their own opinions and be respected whatever their choices happen to be.
If anyone sends you offensive personal messages, then I’d be very tempted to out them by sharing their messages here. It is very sad that when people need support the very most, they’re being judged.
Unfortunately, there will always be people who love to get on their high horses if they spot an opportunity to knock someone down.
In the words of Bob Hoskins
Be yourself. If someone doesn’t like you they’re either stupid , blind, or they’ve got bad taste. Accept who you are, you’ve got no one else to be. Don’t try to change yourself, there’s no point. Don’t apologise. Don’t make excuses. Be yourself and if anyone else doesn’t like it they can **** off.
Don’t worry about other people’s opinions. Everyone’s a critic, but ultimately what they say only matters if you let it. Don’t believe your own press. People can just as easily sing your praises as they can tear you down. Don’t waste your time on things you can’t change. Let it slide off you like water off a duck’s back
And finally,
Don’t take yourself too seriously. People who take themselves too seriously are boring.
Good advice I think. ?