Hi Kate, hope you enjoy your day too.
No sport here today, we’ve got 10 people coming for a late lunch. It’s such a gorgeous day, it would be a shame not to spend it in the garden.
Angela ???
Rosie, please don’t leave the forum.
I’m sitting having a gin and soda as we speak and don’t give a t*ss what anyone else thinks about that.
I’ll also be having buttery mash with my Sunday lunch later and Yorkshire puddings and some red wine. ??
Who cares. Xxx
Ladies the subject of diet will always bring about a debate as we are all so different In our views and there is nothing wrong with that at all!
My opinion is that I don’t believe diet and lifestyle has any bearing on us getting cancer, my reason for this is that every walk of life gets cancer, young ,old ,thin ,fat, fit, unfit, drinkers, teetotallers, smokers, non smokers, vegans, meat eaters and the list goes on!
Also if I believed it was down to something I had eaten, drank, done or not done etc then I would be responsible for doing it to myself and I can’t life with that thought!
Please don’t feel the need to leave the forum, a lively discussion isn’t a bad thing, and we are all entitled to air our views, it’s not a personal attack on anyone it’s just our individual opinon and we must all do what we feel is right for us. Xx Jo
I would be sad if anyone feels they should leave the forum. I’ve found it a supportive place. Diet advice is helpful and it’s good to hear different views. We won’t always agree but everyone should feel able to contribute. I’ve picked up some great tips x
Ff that’s amazing. Well done you.
And to hear that you’re going strong after nearly 13 years is brilliant. I plan on doing the same. ?
I’m avoiding refined sugar. If anything, I found it was making my hot flushes worse. I’m still having a square or two of organic chocolate with a cup of tea during the week and alcohol on a weekend.
I’m not even going to try and cut out dairy as I love cheese and I’m partial to the odd creamy savoury sauce. I don’t feel like I need them in order to have a good life, but they are very pleasurable and it’s nice if life can include little pleasures of all varieties.
X
Congratulations on being stable Mable again ff. ?
I’m also interested in tumour markers. My oncologist has never mentioned them to me.
I’m off for my pre op soon ready for liver biopsy on Wednesday. ?
I’m expecting it to be painful after reading other experiences.
I’m worried that I won’t be able to swim as we’re going away for a cpl of days at the weekend. X
Angela, best of luck for the liver biopsy. Do you know how long you’ll have to wait for the results?
I hope they clear you for swimming, it’s so frustrating to be in the middle of the best summer Britain’s had for years, and not be able to dive in! My husband has been using our local outdoor pool for the first time in his life and loving it (usually he’s a wimp when it comes to cold water!), but I can’t join him because of my low neutrophils. Such a waste!!
Funny face, your story has been such an inspiration. I hope the good news keeps on coming for our favourite Stable Mabel!
Angela, hope your biopsy isn’t too painful and you don’t have to wait too long for results. Good luck
Bon x
Thanks for the messages of support ladies.
Biopsy is tomorrow afternoon. It was just the pre op today. They had a nightmare getting blood, so I’m hoping it’s not too difficult for them to get the cannula in. In fact feet were mentioned for the bloods ?
I was told that would be painful too.
Apparently the turn around for results is only a cpl of days so I’m hoping to get those at my oncology app on Friday morning.
I should be able to swim by Saturday too, so I have that to look forward to.
I can understand your frustration at not being able to swim with the low neuts tatyana. Apparently that’s a problem for a lot of people on my new regime too.
I’m hoping I get as lucky as I did on chemo and have no problems there. ??
FF, I’m really hoping you can share even more good news with us soon. ?
I know what you mean about being neat.
I can’t settle when there’s housework to be done and it’s never ever finished.
I wish I could just ignore mess sometimes and relax, so maybe it’s not such a bad thing that you’ve taken your foot off the peddle slightly.
X
FF, this is wonderful! I am so glad you felt you could share it with us. I appreciate your sensitivity to others’ feelings,but personally I just love getting good news from anyone, it gives me great joy!
Yes we all know that the Alien could spring back to life some time in the future, but that’s then, this is now! Ding dong!??? Love and hugs!
Morning ladies.
FF, this is fantastic news. ???
You must feel wonderful. I feel great for you. I think when someone shares good news it gives us hope that it could be us next. The witch is dead. ??? absolutely brilliant. X
Nicky I’ve only been in this secondary game for a month and already see how I’ve had to start educating myself. Through reading this and other forums, reading peer papers, googling my head off etc etc. It’s like a full time job.
I go to oncology appointments with a list of suggestions. I must say he’s never brushed me off and has even sought funding for a special dna test I’ve requested.
The biopsy went great. Yes, it felt a bit odd, but not particularly painful. Apparently I was their best patient. ?
Three samples were taken. I asked the doctor to take as much as possible and he said he would. It turns out the biggest lesion is just over 1cm, not 2. In fact he said there was very little liver affected, but that size doesn’t really matter it’s how the cancer is affecting the surrounding tissue?
Nicky, it’s so good to hear you say soft tissue can become NED. I have one lesion that is quite close to a portal vein. ? I’m really worried that one. I wish I could just have it cut out before it gets the chance to grow.
Funnyface what wonderful news. Long may the witch be dead Wendy x
Having a quick dip into the forum but had to post a fantastic WOW to FF!! I think you are an inspiration to many, I’m so happy for your good news, it lifts everyone when this happens! If you can do 13 years and be NED then there is hope for all of us!!
Silver, FFs idea of reporting symptoms so you get a scan…yup, I’d be doing that. As Nicky said, we only have one shot at life and owe it to ourselves to be proactive and well informed. I was too frightened in the early days to do this but it is empowering. I think we have a culture in UK of being so grateful for free treatment that we don’t dare question anything! When I started reading the U.S. Inspire website I realised that their patients had much greater knowledge and control over their treatment…rant over, enjoy the sunshine xx
Funny face
You are a legend and thanks for sharing your good news …your oncologist has been a hero over the years. .prescribing the best treatment plans for you.
I saw my new oncologist yesterday and I felt very confident with her …nothing was too much trouble and I felt in very safe hands whatever the outcome of my scans is going to be !
Silver, I can sympathize with you about the garden- isn’t it horrendous! Ours is quite small, but a large proportion of the plants are not long established, the previous owners didn’t really do gardening so we’ve spent four years planting stuff and I really love it now. But it’s so hard for newish plants to survive in this weather. We water what we can, using lots of recycled washing-up water, but we can’t get round all of them. You try your best, then suddenly notice yet another plant with crinkly leaves.
Why won’t it just RAIN?!!
Great news ff - you give me such hope and inspiration. I remember looking at yours and nickys posts when I was first diagnosed with secondaries and after a nurse (she worked in breast clinic but was not a specialist breast nurse!) saying to me “you might be offered a bit of palliative chemo but lots of ladies decide not too as side effects not worth it”!!! I thought that’s it then until I came on here and read your stories
Ramade I’m so sorry your having a tough time chemo is so gruelling and so hard when there is no change how manyou sessions have you got left?
Sarah x
I’m feeling great thanks just got back from 3 weeks travelling Europe in our camper?. Just on letrozole and denosumab atm scan results in couple of weeks x
Hi Zana,
Sorry you’ve had this diagnosis so soon after your lumpectomy, you must be feeling really battered. You’ve come to the right place, if you browse through the recent posts on this thread you’ll find some really encouraging stories.
I can’t help you myself specifically about bone Mets, as mine are in lymph nodes, lungs, etc but none diagnosed in bones yet (doesn’t mean they ain’t there!). But the people here are very welcoming and supportive no matter what your particular diagnosis is. One thing I’ve learned is that we’re all different and none of us is a statistic, so try to ignore statistics and concentrate on you as an individual.
I hope you’ll feel better when you’ve seen the team, it does get easier when there’s a plan. Best of luck and big hugs!
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Silver, I don’t want to make you jealous, but we had some proper rain on Friday. The garden just loved it!
Ff, please send us some of your rain, you don’t want it but we do! I hope you get some sun for your beach trip.