Bone mets - please join in (Part 2)

Hi Shaw1 how are you today?

I was diagnosed last February just after my 52nd birthday with Lobular Breast Cancer & then in April/May after scans & a pelvic bone biopsy it was confirmed I had stage 4 breast cancer. I have it in the top & bottom of my spine, left & right pelvis, top of my right leg & my left clavicle.

I take Letrozole, Ribociclib, Denosumab Injections & Adcal D3.

I’ve just in the last few days had to have a break from the medication because it’s causing so much brain fog, severe exhaustion & diarrhoea unfortunately.

I know I have to start meds again soon but I’m enjoying a couple of weeks off & just to have a little clarity of mind is just amazing!

Some people seem to have very few side effects, I do wish I was one of them as it’s so difficult to function mentally. I’ve never experienced tiredness like it if I’m honest & having an under active Thyroid also makes me tired even though I take Levothyroxine each day.

Hopefully my symptoms improve soon as I don’t see how I’ll cope on the meds otherwise

Sending love :heart:

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Hi. I also have little ones and have recently developed extreme pain when I touch or lay on my ribs. Oncologist is sending me for a CT scan on Monday. What does the pain feel like?

I have had BC twice and am now on abemaciclib and letrozole.