Bones ache
Bones ache Hi good morning to you all,
Just wondering if anyone out there is suffering from bone ache. I am taking arimedex since lumpectomy last October followed by radiotherapy finishing in Jan 07. For the last few weeks my bones and also muscles in my body really ache. Its a job to get out of bed sometimes and after sitting for a while find it very difficult to get up. This morning am in agony, even the muscles in my bum hurt. Is there anyone else out there that is suffering. Just sick of taking pain killers all day. Is this just something I have to put up with?
Elaine
Me too Elaine Yes, I started Arimidex in January and within two weeks had full on body and joint pain/aches along with other pretty bad side effects. I spoke to my BCN and she said you have to take them for 3 months then they will re-assess the pain, apparently it would settle during this time! The pain got worse until like you I could barely walk and even on good days looked like an 80 year old walking round instead of a 42 year old! My lifestyle means that I am up and 5am every day and then muck out the stables and our 10 kennels, I then ride and look after all our animals (34 dogs, 2 horses, lamb, cats and chickens). So I can’t afford to take it ieasy, much though I would love too! I resorted as you say to taking pain killers, which I did not want to do.
I saw my Onc a month ago (3 months after starting the tablets) and he felt that the pain I was getting was too much and outweighed the benefit of taking the Arimidex, I also had to have a brain scan, bone scan and yesterday a further a bone scan just because of all the problems I was experiencing. Yes, I have a brain which was good news and am now waiting to hear about the second scan results.
So I am now 6 weeks off Arimidex and a lot of the pain has gone, bar my left knee and femur area (guess thats why I was scanned twice?). But, I will be going onto Tamoxifen as my Onc feels the small amount of difference it will make in my case, makes it well worth trying these out. I would ask your BCN or Onc as every case is different and everyone reacts differently to the drugs, I appear to be highly sensitive to most (incl chemo), which is why I reacted in such a severe way to Arimidex! Lucky me eh?
Lynn
thought i was being a baby glad its not just me with joint pains , its horrendous in the mornings for me ,i seem to live on paracetomol as cant take anything stronger as im allergic to oppiates. my knees are the worst trying to kneel down is out of the question unless theres a crane handy lol!! im on arimadex since finishing rads in feb also going to docs agin today as have a nagging pain in shoulder thats there constantly. oh to get back to relatively normality whatever that may be. sending hugs as long as they dont hurt too much!! xxx
Hi,
When I went for check-up last week spoke about Arimidex…I can’t have it yet cos I’m not post-menopausal yet,
anyway my BCN said she reckons it makes you feel older than you are because of the joint pain it causes…said her friends on it and its as much as she can do to get up in the mornings…reckons you need to do alot of walking when on it.
love
karen x
painand walking if i could walk without pain i would go for miles!!! seems shoulder pain is spine schillosis??? cant spell it anyway its pulling my muscle about a bit , so more to worry about .hey just shoot me !!! lol love lynn xx
Hi Lynn
“hey just shoot me” - I feel like that even though I’ve stopped taking the dreaded things!
Lynn x
Aches… Hi Girls
So glad that I just popped onto the site…I have been on Arimadex for one year and the aches and pains have really got worse. It really is perhaps normal now to feel all the twinges in my legs, feet, hands in fact everywhere. The other day I was striding out with my dogs and my left leg and hip got a shooting pain that really made me stop and take breath…then it passes. To be honest I really dont think that the doc’s have yet got to grips with Arimadex and the likes inhibitors(?) Are we like guinea pigs? But…if it keeps the dreaded away then I will cope.
But to heck with it, Im going away this week and I am going to go horse riding again, even if they have to lift me on a crane I WILL get up!!!
Keep smiling girls
Debbie x
yup me too! I have been on Arimidex for nearly 8 months now and recently the pains have been getting worse. They ease off when I am mobile and at work but ifI have been siting or lying down it is painful getting up again.
It is worse in the mornings and at the moment the pain is in my fingers and knees and toes. I also havehad a rash but E45 helps that. The pains seem to be working their way around my body. I have not taken any pain killers for yonks as they didnt really work.
Louise
I used to take Arimidex too… For 18 months after the mastectomy. I had such dreadful pains in my hips and knees and leg bones that I told the oncologist that either he sorts something else out or I just come off it and take my chances. I was at the point where I had hardly any quality of life, my husband told me I was crying in my sleep from the pain.
Well my oncologist put on Aromasin (I hadn’t even heard of it) that was 18 months ago and I have no side effects whatsoever from it…
AROMASIN is a hormonal therapy that is approved for women who
have gone through menopause and have had estrogen-receptor positive early stage breast cancer.
It might be worth discussing it with your oncologist. I hope this has been of some help. Love Roz
Appt next week Thanks for your reply. Have made an appt with doc…guess what cannot get in until 25/5/07 so guess will have to live with it for the time being…will certainly mention the drug to him…
Elaine
Hi Elaine May I ask how old you are? If you have been through your change, like I have, then Aromasin is a good AI to take. But I am also on an American breast cancer website and and a lady on the site said that her onc in America isn’t too happy putting her on it as it is steroid based (I think that is what is says). But my South African oncologist is very happy about the drug, that is why I am on it.
Elaine, how do I give you my email details on this site so that I can tell you about the other breast cancer website?
Hello yo You have to go to the Breakthrough org site…support for you, just registar your details, its a site similar to this where you can email each other or just go on line to send messages. Any problems I will ask Karen she is good at it…It would be great to get your email address think of all the goody things we can gossip about…lol
You know how hold I am…I was forty 12 last week you came to my party remember…the fireman etc…were you that drunk you naughty girl. Will keep trying the other website if I do not hear from you ,I will send a message on here with better instructions.
Speak soon
Elaine
PS We are off to New York this weekend on a cyber trip…see chit chat and fun under TGIF