just been dx with brain mets, as well as being dx with lung and liver in jan.
i just wanted to know if anyone else has brain mets. im a very very scared and feel like i only have a few months to live.
would like to hear from anyone esle with brain mets and how they are coping.
H
xx
Diagnosed with brain mets 2 weeks ago. The news was devesting. Have had WBR for a week and am now recovering. Not sure where I go from her but like ou find it very scary. There are other threads on here which are really good. Ask you onc all the questions , bring a list in with you. Good luck and love xx
Mills
Hi hemly31 and mills
I’m sorry to read of your recent diagnosis of brain mets, I’m sure you will receive lots of support from the other forum users, In addition I wondered if you knew of some other Breast Cancer Care’s secondary support services.
There is a secondary breast cancer Telephone support group, the aim of the group is to give you the opportunity to talk privately and confidentially to other people around the UK with similar experiences. Discussions cover issues such as relationships, work, money, living with uncertainty, treatment, as well as everyday life, for more information telephone 0808 800 6000 or email <script type=“text/javascript”>eval(unescape(‘%64%6f%63%75%6d%65%6e%74%2e%77%72%69%74%65%28%27%3c%61%20%68%72%65%66%3d%22%6d%61%69%6c%74%6f%3a%74%65%6c%65%70%68%6f%6e%65%73%75%70%70%6f%72%74%67%72%6f%75%70%73%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%2e%6b%22%3e%74%65%6c%65%70%68%6f%6e%65%73%75%70%70%6f%72%74%67%72%6f%75%70%73%40%62%72%65%61%73%74%63%61%6e%63%65%72%63%61%72%65%2e%6f%72%67%2e%75%2e%6b%3c%2f%61%3e%27%29%3b’))</script>.
We also have a secondary live chat session on a Tuesday evening from 8.30 - 9.30 pm, this is facilitated by an expert moderator and a nurse who are on hand to point you to sources of help and information. But for most people, the chance to talk to others in a similar situation is what counts, simply use the same login details for both the live chat and the forums. For more information see the link breastcancercare.org.uk/content.php?page_id=6218
Kind regards
Katie
Helmly and Mills
Really sorry to hear this- what a horrible shock, just when you get round one thing, something like this…its awfful. I can’t offer much except a cyber hug at this points and just to say thinking of you both,
loev
Cathy
So very sorry to read you have this new trouble to worry about. There is a very good american site, BrainMetsBC.org, which you may like to look at for inspiration and information.
Take care,
Jenny
x
hi all,
its been a hectic week i can tell you, i had a bran mri and shows that i have more than 5 tiny tumors which im hoping that they are going to get rid of via whole brain therapy. im hoping as they are small that the radiotherapy will tackle it.
no news about my chemo treatment yet, doc said i may continue with avastin and maybe chemo tablets, i have an appointment next week so will know more then.
im doing ok i think considering…
H
xx
Hi H,
You are doing more than OK, you are doing briliantly.
I think chemo can cross the brain/blood barrier after WBR, so you may find they put you on xeloda which can work for brain mets.
I hope you manage to have a good weekend…
Jenny
x
can anyone tell me if they have felt dizzy and heavy head with brain met i have it in spine , i am to scared to mention dizzy spells to onc incase it is please some help me stop worrying x
hemly did the
onc said you only had a few months or is that how ur feeling at the moment. tykerb is suppose to be a good table form of cemo its on trial at some hospitals, ask your onc good luck hun take care x
All I can tell you Sophie is that my daughter suddenly started getting headaches which wouldn’t go away … at first they thought it was the radiotherapy she was receiving to her back after having a skin met removed and told her to drink more but when headaches persisted and got worse a couple of weeks later and she then started being sick then they sent her for a brain scan and brain mets were discovered. Its no good looking back but if only we had insisted that she had a scan when she first started getting the headaches then they wouldn’t have got so big before she started treatment.
But this was really to say that she didn’t have any dizziness until after she started taking the steroids … it was definitely headaches in her case. I know its easy to say but try not to get too worked up about it otherwise you will make yourself worse. I often feel dizzy and heavy headed when I worry.
Keep in touch and let us know how you go on
Love Sue ( Lisa’s Mum)