Hello, first post here. Have been diagnosed with left breast lobular cancer, having had mammogram, ultrasound and core biopsy. More recently, an MRI showed other areas of potential concern and I’m going for another round of the above tests next week. My concern right now is that, since seeing my consultant with the MRI results last week, I have felt ‘twinges’ in both my breasts and occasional discomfort in what feels like my breastbone area. Could this be a psychosomatic response or is somethin else going on? Would be happy to hear from anyone who might have had a similar experience, please…..
1 Like
Hey sorry to hear of your diagnosis. I never felt any aches, pains or twinges pre diagnosis. I had 1 lump that was known and other suspicious areas that had to have further MRI and Mammogram biopsies and like you felt every twinge and pain whilst waiting. I never realised it until now reading your post that they actually disappeared when I found the further areas of concern were benign.
Its hard to say for sure until you get the results and I’d mention to your BCN so they’re aware but in my case it was certainly psychosomatic and I haven’t felt them since!
Sending love xx
Hi @nette1
Sorry you have to be here, but welcome!
When I was diagnosed I started feeling pains in my arm and back and convinced myself it must have spread. Then, when I was recalled from my first mammogram I started getting tenderness in my ribs and again though the worst. The first time everything disappeared when I had surgery and with the pains after the mammogram recall these disappeared when I was given the all clear (and finding out what they actually wanted to take a second look at was on the other side!).
Like @katie91 has said, definitely mention this to your team, but the mind can do funny things when we are under stress. x
Thanks for your reply. Yes, the ‘sane’ me says just wait and speak to my BCN ( I hoping to ring her before my repeat tests next week) but the part of my mind I can’t seem to control says all sorts of things!! I’m glad to read your further areas were benign. May I ask where you’re at in your treatment now? x
1 Like
Thanks for your reassuring words. May I ask where you are in your breast cancer journey now? x
I am about to see the consultant on Wednesday. I had a lumpectomy in 2016 (lobular), bilateral mastectomy in 2023 and another wide excise incision , a year ago to remove a recurrence of same cancer on chest wall. I also have lived many years with M.E. and Fibromyalgia. It is hard to tell if the chest pain I am experiencing is related to cancer or fibromyalgia. Has anyone else experienced the same situation? I am seeing a different consultant as the previous one had no understanding how Letrozole etc made me so very ill. He discharged me as “ You refuse to take the treatment I am offering …” I had tried 4 different types over 9 years for about 6 weeks a time until I was too ill to continue.
Of course, happy to share! I was diagnosed with ER+/HER2- IDC nearly two years ago. I had a lumpectomy, 5 days radiotherapy and now taking tamoxifen for five years. The time after diagnosis was the worst bit for me out of everything as other things were found and surgery was delayed twice which was really upsetting. However, my surgery went well with good outcomes, radiotherapy was straightforward and I have no issues from tamoxifen. I know not everyone has such an easy ride and I do appreciate how incredibly fortunate I have been. x
Awww I totally understand and was in your exact position 3 months ago!!
I was diagnosed in October and after lots of furrher tests it was still just the one known area that was removed on 16th December. It was 13mm and they got clear margins and after testing sentinel nodes they were clear too. I’m just awaiting oncotype test to see if chemo will be needed.
The waiting for treatment plan stage I found the hardest. The only thing that helped me during this time was distraction and keeping as busy as possible!! Sending lots of love 
it will all get easier xx
1 Like
Thank you or your reassuring response. Yes, I think you’re right- at the beginning, there is a tentative plan in place then further, more sensitive (MRI) tests reveal other possibles and you’ve taken a sideways/backwards steep in a way. I guess, at 64, I’m lucky never to have had a health scare like this so dealing with the anxiety/stress that creeps up on you and shows itself in weird ways, is what I need to learn to deal with 
with love xx
1 Like