Hi just got an automated messages saying that an appointment has been arranged to speak with Breast Care Nurse via telephone.
All tests are done including CT scan. What happens over the phone. Please can someone tell me what usually happens and what they will discuss over the phone
I had most of my appointments on the phone due to it being lockdown including results and treatment plan but I donât know if that is necessarily the same here .
I would just advise to get a pen and paper and write down all of your questions in advance as you tend to forget to ask them at the time. Make sure that if there are further questions or you need more information that you have a way to contact someone / who that is and how and when they can be reached before you come off the phone - that is the most important thing. Xx
Thanks for the advise. Everyday I feel so anxious, sleepless nights, how long does it take to get a treatment plan after CT Scan.
I got a rough idea from the surgeon who informed me about the biopsy results as week ago. 5 months chemo before surgery. But really the waiting is something else.
Hi sshini93
First of all welcome to the club that no one wants to join but when youâre here you will always get some truly great support, I know I did.
The bcn is normally in attendance when you first speak to the surgeon/ consultant after the results are back following biopsies/ mammograms etc. Iâm taking it that you are further down the line since youâre talking about your discussion with the surgeon re chemo etc.
I would be presuming that the nurse wants to touch base with you again and go through any worries about upcoming surgery and what to expect. If you havenât spoken to any nurse then this is probably them introducing themselves.
As @JoanneN said grab a paper and pen together with pre-prepared questions for her. You should also have received lots of leaflets regarding what to expect during your treatment.
I had a specific notebook so I could take it with me during all the appointments making notes and writing questions. Mine has a big dragon on the front - it was there to protect me though this minefield I felt!
If you can you can always record the telephone call and then you can replay as itâs difficult to try and scribble everything down.
Definitely ask for a name and contact details though.
Itâs always usually a two week wait for appointments and another two weeks for results. The waiting is the worst part. You will find yourself thinking âcome on, I just want to get things moving!â But unfortunately they need to put things into place and they usually have weekly multidisciplinary team meetings (MDTs) where cases are discussed so they have to be factored in too.
Everyone tells you not to worry and they are trying to reassure you, genuinely, but you canât help it, I know. Itâs natural.
Once they have everything sorted you should then be given the treatment plan. This is a guide for you though so things may change depending on discussions at meetings etc.
Always ask for clarification and if you can take someone with you to appointments so they can take notes as you may not be in the right place to think clearly let alone write everything down.
I hope Iâve helped a little bit and please reach out to me and the other lovely people on this forum. There are nurses here too so maybe speak to them as well for reassurance. Remember itâs your body and you are allowed and have every right to ask the medical professionals what the next steps are and challenge them if youâre unsure.
Take care
Lynn x
Thank you very much for the information you have given me 
yes my mum received lots of leaflets and booklets about breast cancer, chemotherapy, how to care for someone who has breast cancer etc. all these information is from macmillan. Right now, based on what they told me, her lump is 5cm and it has affected 3 lymph nodes in armpit area.
The surgeon I met on biopsy results day asked my mum âare you ready for chemotherapy?â He was really nice, and also said not to worry about losing hair, he said âlook at me I donât have hair tooâ . As far as I know, she has invasive BC no special type, grade 3, ER-, they were waiting results of HER. My mum also have type 2 diabetes.
Otherwise my mum she is doing all good, eating normally, doing her house work, no change to breast, no nipple discharge or inverted, the only symptom is lump which is not too visible and pain on and off especially that goes up to armpit area
Hi sshini93
I do apologise I hadnât seen that it was your mum who had breast cancer! Iâm so sorry but Iâm pleased that youâre being so proactive and reaching out on this forum. Your mum sounds very positive and thatâs all you can do. Youâre obviously helping as much as you can. There are so many people on here who can help with any questions and Iâm guessing there are quite a fewâŠ.
Thereâs a lady on IG that I follow her- ohtits
She posts reels of herself every week or so following her story and sheâs gone through chemo and radio too. Shes out walking her dog and always puts a positive spin on things, even when sheâs been in a low mood.
Sheâs soo lovely. Worth a look I think.
Anyway good luck to your mum and again well done for being soo supportive.
Lynn x
Yes the waiting is absolutely horrible . I hope that everything goes as well as possible for your Mum . Itâs good for her that she has you in her corner but remember to look after yourself and get some support for yourself if you need it .xx