Hi i am attending a clinic next wed re some breast issues i have been having i completed treatment in Jan this year had WLE 6 nodes removed after snb chemo and rads to breast and axilla have been experiencing pain some swelling around scar but very worried about pitting and thickening in lower part of breast which resembles orange peel i was wondering if any of yiu breast lymphodema ladies had experienced this i am at clinic next week
HI, I suffer with breast lymphoedema. I have a lot of thickening and hard fibrous tissue but no pitting of the skin. I have regular hivamat massages with the lymphoedema nurses to help control the symptoms but am so troubled with it I am having a mastectomy in June. I hope you get some answers and reassurance. Best wishes x
Thanks Flossie im at clinic on wed so hopefully I can get to bottom of it i forgot to mention that the seam on my bra leaves a indentation in breast which seems quite prominent x
Hi I have lympodema 4 months after radiotherapy . I felt sore and my skin was thick like Orange peel. Bcn referred me to lympodema clinic and I have massage there every two weeks and wear a compression sleeve daily. At first I was worried about the sleeve just another thing! But I’ve coped very well with it and I massage myself each day too. The nurse at clinic , who is amazing, says I can choose when to wear sleeve now as things are looking and feeling so much better. I hope you get this sorted soon. It’s all doable but another thing to get through. Lots of love and best wishes x
Thanks for sharing ladies this is all really helpful to me as i have been really worried these last couple of weeks
Its breast lymphodema being referred to the lymphodema clinic for now been told to avoid heavy lifting its not in arm just in breast thank you both for your advice it was very helpful x
Thank you Flossie im sorry to hear that you have had problems with it xxx
I will keep you posted how i get on i really hope things improve for you Flossie xx
Oh Flossie i really feel for you to lose your breast after all this time but if it is the best thing for you i don’t blame you i really do wish you well with it take care xx
Thanks for for that Flossie i will let you know when I have had my appointment at clinic what they say xx
Hi Flossie hope you are feeling OK after the op, i still haven’t had an appointment yet with lymphodema clinic i have been tokd the waiting list is quite long they have booked me a physio in to see if it will help but no improvement with the swelling and pain
I hope you have a good recovery and finally be able to put it behind you x
Just to add i did have my clinic appointment who explained it was breast odema due to lymphatic system nit working properly so I was referred to the lymphodema clinic xxx
Thanks Flossie hope you are feeling OK after the op xxx
Fingers crossed you get the drain out soon and feeling better take it easy and take care x
I had an SNB just over a week ago. And only last 2 days had pain in breast. Near the nipple is now an area of soreness. It also feels a bit hard. Does anyone know if this is the start of the dreaded lymphedema? I’m worried now. Only had 2 out. Both being positive. ? and due to have a clearance at time of masectomy.
My breast has that appearance and feels thick and lesther but only on one side you can also see ridges which must be the fluid i am seeing a lymphodema physio this Monday coming i have no swelling in the arm but it does feel heavy and sort of nerve type pain but my breast is really painful and quite red x i will keep you posted how i get on x
I Flossie had my app on Monday, not in arm but in breast, been given a compression bra its awful but if i need it to help me i will put it on, got these foam pads with little bumps all over to help massage the fluid and shown how to do a simple lymphatic massage in tre style though it wasn’t as bad on app day, sods law!!
I hope you are recovering well from mx take it easy xx
Hi Flossie i hope your app went well and everything is healing as it should be, i think you are really brave going through this so long after original dx and surgery etc but 5 geats is a long time to suffer they underplay how painful it is when then talk you through possible long term issues from radiotherapy im surprised how soon after my treatment ending it has happened its really painful i have big boobs to start with even with my surgery boob being smaller its still big with the swelling i hope the things they have given me work, i will be seen in a couple of months but if i have any problems in the meantime i can just ring
Will you be opting for recon, kr are you apprehensive after your experience with the lymphodema Flossie i wish you well with whatever steps you take xx
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