Breast pain 18 months after lumpectomy

Alison51 You are talking as if you were me! I feel exactly the same. Everyone thinks you are OK cos you’re walking and talking. I too had a lumpectomy mine was in February 2016 and I still have pain now and then. And since having lymph node removed for my SEN that hurts loads if I’m not careful.

Hi I had my surgery and radiotherapy in August 2014 and I still get burning and discomfort from time to time in my breast. I can only presume it’s scar tissue that flares up now and again and I’m due for my mammogram in June I have them every 18 months down here in Wales , I would prefer annual but I’ve been told that research has shown no difference in outcome , that’s easy to say unless you’re waiting for your next one for reassurance!! anyway I would say that a year on I presume you had radiotherapy they say it’s the gift that keeps on giving so I think what you are experiencing is not unusual I certainly was still having pain and discomfort at times and as still do , so try not to worry x

I bad a lumpectomy in 2004 and still experience a sharp pain every now and then. So my assumption is that it never goes away.

I had lumpectomy in March last year then chemo and rads and still get painful twinges In breast , I was never so thankful to get results of my first mammogram, so glad I found this forum x

I’m so in pain I don’t know who to talk to as I don’t want to worry anyone my family x had the operation last Thursday and I can’t believe the pain I’m in I’m a very strong woman but I feel so weak please help me get though this I understand everyone just thinks just get over it I’m all over the place I’m back at the hospital on Wednesday I don’t now what they will do next ?

I had a lumpectomy 14 months ago and still get a lot of pain both in my breast and under my arm. I am also suffering with the side effects of the medication ( Letrazole) to be honest can’t remember the last pain free day I had ?

I 'd hoped that I’d be able to sleep on my stomach again eventually…but 2 years after my lompectomy I still can’t… I live in hope.

 

Hi, I had lumpectomy June 17th 2016 and another op on 21st July as margins weren’t clear. I had the usual soreness in the area initially but for the past 2 weeks the area seems to have flared up with pain, a stabbing sensation and burning, it’s more painful now than when I had the ops done. I’m at the hospital on 16th June for first mammogram since ops. This sudden onset of constant pain has worried me but after reading all the comments on this forum, it seems that it’s not unusual.

I had 2 as well  but in July and September 2015 plus rads in January 2016. I find the burning sensation and the achiness  comes and goes and it’s only at night that it gets to me. 

Hi…feeling pretty scared & anxious as i went thru a lupectomy & treatment in 2014, and have had regular check ups. however, in the past few weeks i have been experiencing that burning, stabbing pain that most of you have mentioned as well though what concerns me is that it’s been almost 3 since the initial diagnosis. My dr is scheduling me for a mammogram and ultra sound to check things out. I am scared but I am sort of relieved to have found this site and feel a bit better reading other’s experiences. I hope it’s nothing but ever since beening ill and having the surgery etc etc…its so hard NOT to be feeling overly stressed and worrisome when something occurs.

I had chemo April to September 2016, surgery lymph nodes remove in October and rads in December, and still in pain around the site where tumour was, starting work on Monday and I’m so tired, my feet feelings like when I was on chemo. Does anyone find it uncomfortable to wear bras.

I had lumpectomy may 15th then 25th another because marginwas not enough .i start chemo july 13th.little nervous last 2 day had very sharp pains reading some of the comments i see it is normal feeling better about that thank you

This site is great , I had my lumpectomy last August after my routine mammogram showed two growths and whilst in surgery had lymph nodes removed. I sympathise with you over the tenderness and pain ,I try and live with it because I don’t know who to talk to cos people say oh you look good and you’d never think I’d been ?I’ll. As I’m new o the area I live I don’t know anyone to talk to and just explain my pain and anxieties. 

I could only have radiotherapy as I also have CLL and had chemo back in 2006/7. The meds they put me on was Anastrozole and had some side effects nausea,hot flushes. My gp wasn’t happy giving me something for the nausea and when she did I could only have 28tabs that lasted a month.

 I think I have gone off the reply by telling my story but I know exactly how you feel and the need to talk is vital

Me again, I also forgot to say I also have pain now and again in or under the breast where I had surgery. I also notice this if my granddaughter leans against me in that particular area. Same goes I for if I get a hug in that area too. I did mention this to my Oncologist last time I saw her and she said its from having Radiotherapy. Hope this helps others that may be experiencing similar.

Oh you poor thing ,what a lot of scary side effects to deal with .Exhausting .Have you discussed what possible percentage gain you get from the meds with your Onc ?I know lots of ladies who on balance have decided that the gain was not worth the pain.Some of us are just so much more affected by the side effects than others ,quality of life is very important and there are no guarantees that the meds will stop a re-occurrence ,Hope things settle down for you soon .Jill.

Ps I had op June 2015 and still uncomfortable in operated breast .

Hi yes,some of us on the computerised system that they use have a very small percentage gain and my consultant told me that they are still not really sure who benefits from these drugs and who doesn’t,some of us may be suffering horrible side effects with little or no gain.They are currently doing research into this .If you take the meds and they don’t cause you much problem then it’s not an issue ,if they greatly affect your quality of life it is miserable many lady’s do stop after discussion with their breast care team .

People seem to recommend the Accord brand -although we are all different so may not be the best one for you .What are you on now ?

Y’now (don’t take this the wrong way please) I’d SUCH a relief to hear that other people have experienced the same sort of confusing things! The medics seem to keep me in the dark over what I can expect - when I told my GP I was still in pain she said had I been lifting heavy things, perhaps the pain is muscular! But it’s in the site of the op n it was worrying me SO much. Now I read your comment and breath a sigh of relief NOT that u r in pain but that it sounds like it’s pretty normal so long after the up. Bless you, thank you Cx

I completed my chemo in Jan 17 and rads concluded in march. I was 42 when diagnosed and periods stopped then made a dramatic return in July. (Third one is late and goodness know what’s going on with my hormones!! Oncologist described it as a hormone disco!!)
Boobs have been really itchy and has a baked look about it! Even as I type this I experience a burning sensation around my scar and where they did sentinel node biopsy. Sometimes it feels like there is something crawling inside my boob. Sets your mind whirring and wondering if this is the norm. Feel quite abandoned after treatment and have been referred to a psychologist as breast nurse is worried I’m not dealing with life after BC. Just found this thread and it’s reassuring to know that other ladies are experiencing the same feelings as me!!! Much love to u all :heart: