I’ve just been diagnosed with secondary mets on my liver. Waiting to hear if I’ve got bone mets too.
I’ve been offered a place on a trial for Cabazitaxel. I can’t find much about it other than the patient info leaflet they’ve supplied. I was diagnosed last Monday and this is all happening very fast - I need to give them an answer on Wednesday. I wondered if anyone else with liver mets is taking this drug and can give advice on the side effects?
The alternative is the usual weekly pacitaxe I believe.
Would love to hear advice from anyone who’s take this chemo.
x
Hello and welcome to the forum …I hope that you find some ladies that are on the same trial and u can support each other. The name of the trial sounds like two chemos being used together for maximum strength but I’m sorry I don’t really know !!
Please use the threads for help and also kindness from real ladies that understand .
Carolyn xx
Yes I was on the concept trial during 2015 and got allocated to the cabazitaxel arm. I found it a relatively easy chemo and more importantly my extensive liver mets disappeared (back now unfortunately but I got a year free of liver mets so worth it). Worst side effect was yucky taste in my mouth - couldn’t find much to eat that beat it and I did lose my hair (they say you shouldn’t but my hair gradually thinned and once I was finished I had very little left, but came back after 8 weeks). Let me know what else I can tell you and I will try to remember!
Hello ladies, was interested to read about cabazitaxel as i had never heard of it. |when i looked it up the only reference i could find was for prostrate cancer. is it now being used just for liver mets or any ohers? i have just about exhausted all chemo’s so am keen to learn about new ones. tjanks for any info you can give me. x
Hi all,
Sorry not to have posted in a while - disappointingly last week in the end my liver function was too poor to get onto the trial. I was just under the permitted lower level. I’m on weekly paclitaxel now and hoping for the best.
F
Thanks minttea, i think i have had a look at the concept trial but found it was no use for me…i cant remember why but i’ll double check. x
Concept trial np good for me as i had already had docetaxol…knew there was a reason!!
Did Cabazitaxel work for you or did you choose paclitaxel, just been offered a similar trial and don’t know what to do !
Hi Street fighter
I was on the Concept trial last October and was assigned to the Cabazitaxel arm. It worked well for me with few side effects, a bit like Mint tea … loss of taste but only in first cycle then it came back. Hair thinned a bit and I got more tired towards the 6th (last) cycle . Otherwise very doable, it shrunk my liver mets and stabilised bone mets. Unfortunately liver mets now back so moving on to try Capecitabine.(I’m triple neg secondaries after having 2 bouts of HR+ primaries 10 and 22 years ago!).
Hope this isn’t too late to help and good luck with whichever you choose .
Maggie x