hello kitten kat, i was diagnosed in Feb last year and i remember all those feelings you describe so well. The anxiety, the sick feeling in the pit of my stomach and lack of sleep. I have finished now and am on arimidex for 5 years. i think I was in shock for the first few weeks when I found out I had bc. I am now back at work with lots of thick curly hair now. i won’t pretend it is easy adapting to life again after treatment but it is getting easier each day. I wish you luck with your treatment and all of us on here know about those first few days after diagnosis ( I would say they were worse than the treatment in some respects because you do not know whats going to happen next). Ask any questions you like and would like to support you in any way i can. xxxxxx
thanks again…I think I’m getting my head round it, nearly…x
Hello I just been diagnosed with invasive lobular breast cancer grade 2 in my left breast (25/09/09). I am so distraught, feel like my world has been blown apart. Cannot stop crying, feel sick and light headed. To make it worse on thursday (1/10/09) going to find out if it has spread to the right breast. Then arrange an MRI scan and hopefully a plan of treatment. How long does all this take? I feel so alone, look forward to anyone who can give me words of comfort. I thank this site for giving me the support I need.
Hello Lozza
Just wanted to say I am a lobular breast cancer lady. I was misdiagnosed by four years as my symptoms were not in the guidelines and my GP refused to refer. I had cancer in 15 of my lymph nodes by the time I put myself into the system at age 50. I’m doing well and it will be 5 years since my diagnosis this February. I just felt I wanted to offer you support and encouragement. You may not see light at the end of the tunnel at the moment but believe me you will get through this.
I suggest you wait until Thursday and take it from there. Whatever, we are here for you. I hope Thursday goes well.
Jeannie
Hi girls Lozza and Jeannie,
Heres another lobular lady!! I was diagnosed at the end of May and had 3 ops for ductal but they could not get clear margins. I asked for a mx for the third op but they said no as I was a larger breasted lady I could lose a little more. Thats when they found the lobular cancer and I did have to have a mx which is now nearly 3 weeks ago. I asked for a double mx but they gave me an MRI scan to check the other side. I had that within 3 days and although it was uncomfortable for me as I had to lie on my front on my 3 x opened scar, it only took about 20 minutes and I was able to move a little inbetween the scans. The other side was clear and my 9 nodes they removed at the time of the mx were all clear, that was nearly 3 months after my first WLE and SNB which was clear then. I was so worried about them. Just take each test as it comes, the hard part is waiting for those results but it does pass very quickly. You will have good and bad times, the night is the worst when you wake for no apparent reason and can’t get back to sleep. This is def the place to come and share your feelings, everybody here will know exactly how you feel.
Jeannie, sorry to hear you were misdiagnosed, thank goodness the guidelines are better now. So glad to hear you are doing so well, it means so much to us newly diagnose girls.
Take care, love to you all,
Jane
Hi Lozza - its me from the first post - I just wanted to say hello and to reassure you like everyone did for me that this will all pass - the fear, anxiety, feeling sick etc and the crying too - you’ll still cry as I do but it moves on once you start on the treatment road - I had 6 chemos, 3 fec and 3 tax as I had 1 node involved and then rads and am now on tamoxifen. It has only been about 9 mths since diagnosis yet feels sometimes like 9 wks and sometimes 9 yrs!! It is all do-able and once you start whatever treatment you need you will feel easier…take care, mary x
ps Jeannie - so glad you got sorted and are doing well!