It’s been a hard few mths since my diagnosis with secondaries, adjusting to a probable shortened future. I’ve also had issues with my oncologist, but this week saw a third one. The second one was hopful of a long future, but the third one said it is possible to cure the bone cancer if it completely calcifies which it is starting to do. I was over the moon, told family and friends, but now I’m worried I’ve misunderstood him, because surely there is no cure? That’s what all the websites say! Have I grasped at the rare possibility because it’s what I wanted to hear? It will be 3 mths before I see him again, and now feel quite low after a massive high. My husband is likely to revert to having less sympathy for my situation, but I’m still ill, with pain and side affects. What now?
Oh iMac - that’s a really hard one but ultimately I think what he may have meant that where your bone cancer was has started to heal. Unfortunately stage 4 is incurable but that doesn’t mean you’re going to die soon. Please think about your treatment so far and the success it is having - a 3 month span to next appt hopefully means he feels you are doing well.
imac - in my mind you can either dwell on it, and let this awful disease rule every waking minute or take control and do as much as you can whilst you can. The outcome will be the same, as it is for everyone, but surely stepping out and doing things you want to is better than constantly being worried by the what ifs.
I hope that you can take some comfort from the fact that your bone mets are showing signs of healing. Celebrate that and move forward. You can do it xxxx
Thanks Chocolates. You are using the word healed which to me means cured. What is the difference? I am doing lots both creatively and socially, Inc travel. Just hit a temp low. Just concerned people around me especially the husband, will expect me to be suddenly back to normal, when I actually still feel same, with constant pain.
Thankyou Belinda. That certainly clarifies things! I’m so glad you responded well to treatment, even after a late diagnosis, it’s heartening. When I asked the oncologist if calcification stopped the cancer spreading, he said it means it’s gone. I was so impressed with how the session had gone, him being thorough after a very lax locum doc, I was too swept away to ask clarification. After analysing his comments (which I didn’t ask him to explain further) I had decided this meant providing I stayed on successful treatment. I know cancer can mutate and change and treatment can stop working. I’m going to speak to my nurse tomorrow.
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