Wishing you well for tomorrow.
I can only imagine how dreadful this time has been for you.
I am wishing you well and hoping once you begin the physical journey of recovery your emotional recuperation/strength will return.
Easy words to say from someone who’s only been through this once but I really hope you can get through this third episode.
This is just so unfair.
When you are able it would be wonderful to hear how you are faring…
I’m sure tonight won’t be an easy one for you…
Very positive thoughts winging your way from Kent.
Tight hugs,
Welsh girl x
Nancy good luck with your op i hope it goes well… im a second timer… and felt bloody unlucky at that so i feel so much for you and helen having it for a 3rd time.
I didn’t seem to be getting much support to start with,but I have been really poorly with the EC chemo and people started to notice me then! I am going to a day care centre next week where there will be people who I can talk to.
My family are absolutely fantastic but I do tend to hide my feelings from them most of the time.
I had my 2nd docetaxol yesterday and I feel absolutely brilliant today,just hope I don’t get too many side effects.
Really sorry I didn’t include you Helen in my previous posting…
Trying to scan/read too quickly!
Really so very unfair to go through this for the third time!
Good to know you are now receiving more attention now but how awful that you felt so poorly…
Do hope today’s ‘high’ can be repeated many times so you can feel more like your real self again. Feeling ‘absolutely brilliant’ is what you deserve…
What does local recurrance look like? My scar line has became a bit red and sore again. I have an itch at the end of it which is also red. Spoke with my nurse today and she said just to keep an eye on it. The least wee thing makes me worry, but with having TNBC i am aware of the high risk factors with recurrence. Just had Mastectomy 1st March, no node involvement. However grade 3. I think I recall reading on the site someones recurrence was a rash around they scar. Can anyone help?
hi jo
mine came up as a lump. cant advice on how else it can manifest itself but if you are worried pester your cancer team. peace of mind is so important. you take care xxx
hi everyone
back home with a whopping big scar. was sick this time which has never happened me before but the staff on the ward were so nice and did everything to make me feel more comfortable. gettting staples out on tuesday and then have to wait for results. dont like playing this waiting game. i couldnt wait to get back on the forum to see how you all were. sending you thanks and lots of hugs to you all OOOOOOO
hi havent been on here for a while. found more tumours in my arm in july. had hoped the surgeon could remove them but they have decided that not an option. cancer is still localised but have now been put on xeloda which could be a permanent thing. would love to hear from anyone in a similar situation. not coping tooo well at the minute because i feel my life will now have to be planned like a military operation to avoid infection as best as possible. sorry for moaning but any pratical tips would be so helpful. thank you
Localised is relatively “good” news. Having permanent chemo is not so good.
Xeloda doesn’t usually affect the blood count. So, I don’t think infection would be a problem. However, tiredness and the hand and feet problem are! There is a cream called Utterly Smooth cream and other types of creams which will help a lot with the later.
I’m starting my 3rd cycle tomorrow and my blood count is more or less what it was before I started. If you search for “xeloda” or “capecitabine”, you will find plenty of info on this forum. There were also talks about a reduced dose for my 4th cycle (yey!). Also the option of having a few months break if you are struggling with side effects. If you have any questions, there are a few of us on it for a while or just starting it like me, I’m sure if we see your post, we can all help.
Sorry to read your news and just wanted to say that our helpliners are here to offer you support and a listening ear if you need one, they can also talk to you about other support services BCC can offer you, the lines are open 9-5 weekdays and 9-2 Sat on 0808 800 6000.
thanks for advice on xeolada but anymore woulb be gratfully received.can you go and do a normal supermarket shop or go into the town. i am so hyper now about infetion that i havent been out of the house except to a secluded beach with my dogs. am using cream for my hands and feet but dont understand what the symptoms are likely to be.also i was due to fly to london to a wedding that my daughter is taking part in and now i feel i cant go. help!
Thinking of you both, M1yu and Nancy as you approach this next stage of treatment.
I can understand your fears Nancy but maybe speaking more here on the forum, or with your BCN or a support group might help allay your deep fears regarding infection whilst living a normal life.
M1yu and BCC have given you good advice so I’m hoping in time you’ll be able to make the next step…
Sending you my very best wishes whilst you are so worried.
M1yu, I do hope your treatment continues to support your recovery too.