Cancer in humerus, collarbone and rib. Breast cancer secondary/primary/secondary from unknown primary

Following MRI of shoulder, I have been diagnosed with cancer in head and neck of humerus, collarbone and back rib.
Largest is 4.5cm, another is 1cm.
Don’t know yet if secondary breast cancer, primary bone cancer or secondary to unknown primary.
I am terrified.
Please help :pray:

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Hi,

I’m so sorry to hear about your diagnosis. I can only imagine how scared you must feel right now. Please know that you are not alone—there are many people, including medical professionals, friends, and family and lots of lovely ladies here, who are here to support you through this challenging time. Focus on one step at a time and trust in your medical team to provide the best care possible. Sending you strength and positive thoughts as you navigate through this. Lots of love

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Thank you.
I’m dreading telling my son and daughter. :sweat:

Hi @hope44441,
I’m really sorry to hear about your diagnosis and understand it must be a really scary time right now. Please know that you’re not alone. I hope you find the forum a really supportive place and you can always give our nurses a call on our free helpline (0808 800 600) if you would appreciate having someone to talk all this through with.
Please don’t hesitate to reach out :heart:

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@hope44441 I’m so sorry to hear of your horrible shock. It’s truly terrifying and first of all, I am sending you a massive hug. It’s such a hard and awful time for you.

The first thing I noticed is your name - hope44441. Hope is everything. Do not give up hope. When I was at my most terrified, my lovely GP told me of his friend who is in her early 30s and with a baby who had been diagnosed with Stage IV breast cancer which had metastasised to her brain, liver and lungs. At the moment she is in complete remission.

Another GP friend of mine has a sister who has been living with Stage IV breast cancer for 10 years now.

My breast cancer nurse at Royal Marsden told me that the majority of breast cancers are now curable and those that are not, are treatable and that people live with it like they do diabetes and other chronic diseases.

These were the things I clung to when I was awaiting scan results. These are all people I spoke to firsthand and who I trust. At the point I am at now, I realise that hope was everything.

I have just finished Danny Baker’s 3rd autobiography. He got through head and neck cancer. It was horrible for him but that was back in 2010. He is still here.

Breathe, go for walks, eat healthily, talk to friends. Put your self-care kit to use right away. I was dreading telling my son who was 14 at the time but he was ok. He really was and continues to be. You are not alone. We are all here.

Love Salbert
x

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Thank you xxx

Thank you for such a lovely message. These are the stories I need to hear at the moment!
Xxx

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Keep us posted and imagine us walking with you. I have been amazed and humbled by how many friends and family rallied round and carried me through this time. I know you will find the same happens to you. It can be overwhelming though, so I found the support on this forum to be a lifeline. People who knew and understood.

Sending you love and strength,

Salbert
x

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Hi, it’s such a shock for you. I found I had breast cancer through the same rout - first found metasteses on spine ribs and humerus, then it took nearly 3 months to establish it was breast cancer as there was no primary. It’s a frightening excruciating wait for information. I hope you get some answers soon. I remember going for a mammogram, saying to the nurse “I must be the only person here who actually wants breast cancer” because not knowing where it’s come from is worse. The scanner eventually found one slightly enlarged lymph node under my arm which came back as lobular breast cancer so now I have a diagnosis and treatment plan which has made life a lot better. About your children; particularly if they don’t live with you, you can always choose when to tell them about it. I waited till I was over the initial shock of it, and had a diagnosis and I’m really glad I did. It meant I was in a better place to deal with their emotions when I spoke to them as I’d had time to process thinks a bit. There’s no right way of dealing with telling them though. Macmillan offer some free counselling sessions which I found helpful. All the best for the future xx

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That is such a lovely reassuring and comforting message for Hope. Lots of love Hope xxx

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