Cancer related fatigue long-term

Hi,

I had grade 2 breast cancer 8 years ago needing only radiotherapy. This was followed up by hormone treatments. As I found the side effects of letrozole and (the other one!) amitriptozole not easy to contend with I have been on tamoxifen until December 2022. While really grateful to continue being well, I was hoping to have more energy after coming off tamoxifen as I currently have a nap most days and work only a day and a half. I’m 62, have checked for other causes and do a weekly medau exercise class. Thankfully I am not depressed but something like having visitors for a week knocks me out for several.

Mostly I am looking for reassurance that this sometimes happens so I can come to terms with it! 

Kind regards

Janette Bibby

Hi, sorry to hear about your fatigue. But reading this has helped me to realise its not just me who feels this way. I had grade 2 cancer , surgery and Radiotherapy.  I only had lextrazole for 2 months as it made me feel dreadful and very nauseous.  It’s now 6 months since my treatment but I am suffering badly with fatigue. I am nowhere near as active as I was. I have had blood tests which are normal.  I have been told fatigue can take time to go, but I am getting really fed up of it, I sometimes have to go to bed at 7pm! I don’t think friends and family understand how bad the fatigue feels.

It certainly helps when we know we are not the only one! Thank you for replying. I make sure I do some things I enjoy along with the mundane and that helps but all our kids are grown up and gone (bar one! the noisiest one!) so my situation is relatively easy. Take care JanBan member

Hi jo54 

Thank you for your post. 

Experiencing fatigue (the feeling of tiredness or exhaustion) after receiving treatment for breast cancer is very common. Many people find that they start to get their energy levels back as time passes after treatment, but for some fatigue can continue for months or sometimes years.  

Other factors may also contribute to fatigue, such as: the emotional impact of a breast cancer diagnosis; altered sleep patterns; reduced activity and poor diet.   

There are things you can try to help manage fatigue as discussed in the previous links. You may want to keep a diary to record when you feel most tired. This can help you plan activities you enjoy in the times when you have more energy. Trying to stay physically active can help. Eating a healthy well balanced diet is also important. The following tips for better sleep may also be helpful.  

It is important to know your limits and don’t expect too much of yourself although it can be frustrating not being able to do all the things you want to. 

It can be difficult to describe fatigue and other people may not always understand how you are feeling as @JanBan says.  

You mentioned you have already checked for other causes for your fatigue, but do go back to your GP if you still feel concerned. 

You may be interested in the Macmillan booklet Coping with fatigue (tiredness)

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